How We Can Improve the Quality of Care for Patients Requesting Medical Assistance in Dying: A Qualitative Study of Health Care Providers

被引:27
|
作者
Oczkowski, Simon J. W. [1 ,2 ,3 ]
Crawshaw, Diane [1 ,3 ]
Austin, Peggy [1 ,3 ]
Versluis, Donald [4 ,5 ]
Kalles-Chan, Gaelen [3 ]
Kekewich, Mike [6 ]
Curran, Dorothyann [7 ]
Miller, Paul Q. [3 ,8 ]
Kelly, Michaela [9 ]
Wiebe, Ellen [10 ]
Dees, Marianne [11 ]
Frolic, Andrea [3 ,12 ]
机构
[1] McMaster Univ, Dept Med, Juravinski Hosp Room A3-20,711 Concess St, Hamilton, ON L8V 1C1, Canada
[2] McMaster Univ, Dept Hlth Res Methods Evidence & Impact, Hamilton, ON, Canada
[3] Hamilton Hlth Sci, Hamilton, ON, Canada
[4] McMaster Univ, Sch Nursing, Hamilton, ON, Canada
[5] Vancouver Isl Hlth Author, Victoria, BC, Canada
[6] Ottawa Hosp, Dept Clin & Org Eth, Ottawa, ON, Canada
[7] Ottawa Hosp, Ottawa, ON, Canada
[8] McMaster Univ, Dept Med, Div Emergency Med, Hamilton, ON, Canada
[9] London Sch Hyg & Trop Med, London, England
[10] Univ British Columbia, Dept Family Med, Vancouver, BC, Canada
[11] Radboud Univ Nijmegen, Radboud Inst Hlth Sci, Q Healthcare, Med Ctr, Nijmegen, Netherlands
[12] McMaster Univ, Dept Family Med, Hamilton, ON, Canada
关键词
Medical assistance in dying; euthanasia; assisted suicide; quality of care;
D O I
10.1016/j.jpainsymman.2020.08.018
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Context. Since Canada decriminalized medical assistance in dying (MAID) in 2015, clinicians and organizations have developed policies and protocols to implement assisted dying in clinical practice. Five years on, there is little consensus as to what constitutes high-quality care in MAID. Objectives. To describe MAID clinicians' perspectives on quality of care in MAID, including challenges, successes, and clinical practice suggestions. Methods. We conducted an exploratory, multicenter, and qualitative study at four Canadian centers. Using a semistructured interview guide, we conducted interviews with 20 health care providers. Interviews were transcribed and deidentified before analysis. Adopting a qualitative descriptive approach, we used a thematic analysis to identify primary and secondary themes in the interviews and practice suggestions to improve quality of care to patients who request MAID. Results. We identified three major themes. 1) Improving access and patient experience: clinicians described struggles in ensuring equitable access to MAID and supporting MAID patients and their families. 2) Supporting providers and sustainability: clinicians described managing MAID workload, remuneration, educational needs, and the emotional impact of participating in assisted dying. 3) Institutional support: descriptions of MAID communication tools and training, use of standardized care pathways, interprofessional collaboration, and human resource planning. Clinicians also described suggestions for clinical practice to improve quality of care. Conclusion. Canadian health care providers described unique challenges in caring for patients who request MAID, along with practices to improve the quality of care. (C) 2020 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.
引用
收藏
页码:513 / +
页数:17
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