Prenatal counseling: Guidelines for the care of people with spina bifida

被引：9

作者：

Church, Paige Terrien ^{[1
,2
]}

Castillo, Heidi ^{[4
]}

Castillo, Jonathan ^{[4
]}

Berndl, Anne ^{[1
,2
]}

Brei, Timothy ^{[3
]}

Heuer, Gregory ^{[5
]}

Howell, Lori J. ^{[6
]}

Merkens, Mark ^{[7
]}

机构：

[1] Sunnybrook Hlth Sci Ctr, Dept Newborn & Dev Paediat, 2075 Bayview Ave,M4-234, Toronto, ON M4N 3M5, Canada

[2] Univ Toronto, Dept Paediat, Toronto, ON, Canada

[3] Seattle Childrens Hosp, Dev Pediat, Seattle, WA USA

[4] Texas Childrens Hosp BMC, Meyer Ctr Dev Pediat, Houston, TX USA

[5] Childrens Hosp Philadelphia, Div Neurosurg, Philadelphia, PA USA

[6] Childrens Hosp Philadelphia, Ctr Fetal Diag & Treatment, Philadelphia, PA USA

[7] Oregon Hlth & Sci Univ, Dev Pediat, Portland, OR USA

来源：

JOURNAL OF PEDIATRIC REHABILITATION MEDICINE | 2020年 / 13卷 / 04期

关键词：

Spina bifida; myelomeningocele; fetal therapies; prenatal care; counseling; neural tube defects;

D O I：

10.3233/PRM-200735

中图分类号：

R72 [儿科学];

学科分类号：

100202 ;

摘要：

As the diagnosis of Spina Bifida (SB) is often made prenatally, SB-specific prenatal counseling is needed. It is essential to provide information about medical care and lifelong impact of this diagnosis, treatment options available to women carrying fetuses affected, and resources that will assist in the care of individuals with SB. This article outlines the SB Prenatal Counseling Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida and acknowledges that further research in SB prenatal counseling is warranted.

引用

页码：461 / 466

页数：6

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