Improving the communication of genomics results to patients and families with rare diseases using Experience-Based Co-Design (EBCD)

被引：0

作者：

Costa, A. ^{[1
,2
]}

Frankova, V. ^{[3
,4
,5
]}

Alexander, E. ^{[6
]}

Arellanesova, A. ^{[7
]}

Bros-Facer, V. ^{[8
]}

Clayton-Smith, J. ^{[6
,9
]}

Gumus, G. ^{[10
]}

Havlovicova, M. ^{[4
,5
]}

Hunter, A. ^{[11
]}

Macek, M. ^{[4
,5
]}

Metcalfe, A. ^{[12
]}

Patch, C. ^{[2
,13
]}

Pourova-Kremlikova, R. ^{[4
,5
]}

Pritchard, M. ^{[14
]}

Robert, G. ^{[1
]}

Roberts, L. ^{[14
]}

机构：

[1] Kings Coll London, Florence Nightingale Fac Nursing Midwifery & Pal, London, England

[2] Soc & Eth Res, Connecting Sci, Well come Genome Campus, Hinxton, England

[3] Charles Univ Prague, Fac Med 1, Inst Med Humanities, Prague, Czech Republic

[4] Charles Univ Prague, Dept Biol & Med Genet, Fac Med 2, Prague, Czech Republic

[5] Univ Hosp Motol, Prague, Czech Republic

[6] Univ Manchester, Manchester Ctr Genom Med, St Marys Hosp, Manchester, Lancs, England

[7] CAVO, Prague, Czech Republic

[8] EURORDIS, Paris, France

[9] Univ Manchester, Sch Biol Sci, Div Evolut & Genom Sci, Manchester, Lancs, England

[10] EURORDIS, Barcelona, Spain

[11] Genet Alliance UK, London, England

[12] Sheffield Hallam Univ, Sheffield, S Yorkshire, England

[13] Queen Mary Univ London, Genom England, London, England

[14] SWAN UK, London, England

来源：

EUROPEAN JOURNAL OF HUMAN GENETICS | 2020年 / 28卷 / SUPPL 1期

关键词：

D O I：

暂无

中图分类号：

Q5 [生物化学]; Q7 [分子生物学];

学科分类号：

071010 ; 081704 ;

摘要：

C23.6

引用

页码：111 / 112

页数：2

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