Improving the communication of genomics results to patients and families with rare diseases using Experience-Based Co-Design (EBCD)

被引：0
|
作者：
Costa, A. [1 ,2 ]
Frankova, V. [3 ,4 ,5 ]
Alexander, E. [6 ]
Arellanesova, A. [7 ]
Bros-Facer, V. [8 ]
Clayton-Smith, J. [6 ,9 ]
Gumus, G. [10 ]
Havlovicova, M. [4 ,5 ]
Hunter, A. [11 ]
Macek, M. [4 ,5 ]
Metcalfe, A. [12 ]
Patch, C. [2 ,13 ]
Pourova-Kremlikova, R. [4 ,5 ]
Pritchard, M. [14 ]
Robert, G. [1 ]
Roberts, L. [14 ]
机构：
[1] Kings Coll London, Florence Nightingale Fac Nursing Midwifery & Pal, London, England
[2] Soc & Eth Res, Connecting Sci, Well come Genome Campus, Hinxton, England
[3] Charles Univ Prague, Fac Med 1, Inst Med Humanities, Prague, Czech Republic
[4] Charles Univ Prague, Dept Biol & Med Genet, Fac Med 2, Prague, Czech Republic
[5] Univ Hosp Motol, Prague, Czech Republic
[6] Univ Manchester, Manchester Ctr Genom Med, St Marys Hosp, Manchester, Lancs, England
[7] CAVO, Prague, Czech Republic
[8] EURORDIS, Paris, France
[9] Univ Manchester, Sch Biol Sci, Div Evolut & Genom Sci, Manchester, Lancs, England
[10] EURORDIS, Barcelona, Spain
[11] Genet Alliance UK, London, England
[12] Sheffield Hallam Univ, Sheffield, S Yorkshire, England
[13] Queen Mary Univ London, Genom England, London, England
[14] SWAN UK, London, England
来源：
EUROPEAN JOURNAL OF HUMAN GENETICS | 2020年 / 28卷 / SUPPL 1期
关键词：
D O I：
暂无
中图分类号：
Q5 [生物化学]; Q7 [分子生物学];
学科分类号：
071010 ; 081704 ;
摘要：
C23.6
引用
收藏
页码：111 / 112
页数：2
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