Health-related quality of life in sarcoidosis

被引:6
|
作者
Korenromp, Ingrid H. E. [1 ]
van de Laar, Mart A. F. J. [2 ,3 ]
机构
[1] St Antonius Hosp, Dept Pulmonol, ILD Ctr Excellence, NL-3435 CM Nieuwegein, Netherlands
[2] Med Spectrum Twente, Arthrit Ctr Twente, Enschede, Netherlands
[3] Univ Twente, NL-7500 AE Enschede, Netherlands
关键词
computer-adapted test; patient-reported outcome measures; quality-adjusted life years; quality of care; DOUBLE-BLIND; FATIGUE; QUESTIONNAIRE;
D O I
10.1097/MCP.0000000000000079
中图分类号
R56 [呼吸系及胸部疾病];
学科分类号
摘要
Purpose of review The review presents an overview of the scientific publications in the field of health-related quality of life (HRQL) in sarcoidosis. Recent findings Literature on HRQL in sarcoidosis is limited. HRQL was mainly used as a primary or secondary endpoint in intervention studies. Moreover, most studies have measured HRQL in sarcoidosis by means of the generic questionnaire 36-Item Short-Form Health Survey. Sarcoidosis-specific questionnaires and computer-adapted testing are innovative approaches to the field. Summary HRQL as a primary or secondary outcome in sarcoidosis studies is still scarce. In addition to the proper definition of the concept, the mode of measurement of HRQL remains a matter of debate. Because health-economical evaluations require data on gained quality of life, future studies on sarcoidosis should include HRQL as the study endpoint.
引用
收藏
页码:503 / 507
页数:5
相关论文
共 50 条
  • [41] Oral health-related quality of life
    Cohen, LK
    [J]. ORAL HEALTH-RELATED QUALITY OF LIFE, 2002, : VII - VIII
  • [42] Health-related quality of life in narcolepsy
    Ervik, S.
    Abdelnoor, M.
    Heier, M. S.
    Ramberg, M.
    Strand, G.
    [J]. ACTA NEUROLOGICA SCANDINAVICA, 2006, 114 (03): : 198 - 204
  • [43] Measuring health-related quality of life
    Devlin, N
    [J]. NEW ZEALAND MEDICAL JOURNAL, 1999, 112 (1099) : 434 - 434
  • [44] Alexithymia and health-related quality of life
    Salminem, JK
    Saarijärvi, S
    Toikka, T
    [J]. JOURNAL OF PSYCHOSOMATIC RESEARCH, 2002, 52 (05) : 324 - 324
  • [45] HEALTH-RELATED QUALITY-OF-LIFE
    JACOBSON, G
    [J]. CEPHALALGIA, 1995, 15 (05) : 336 - 336
  • [46] Measuring health-related quality of life
    Wright, SP
    Doughty, RN
    [J]. NEW ZEALAND MEDICAL JOURNAL, 1999, 112 (1096) : 366 - 366
  • [47] Health-related quality of life in morphoea
    Klimas, N. K.
    Shedd, A. D.
    Bernstein, I. H.
    Jacobe, H.
    [J]. BRITISH JOURNAL OF DERMATOLOGY, 2015, 172 (05) : 1329 - 1337
  • [48] Health-Related Quality of Life and Sorafenib
    Spinzi, Giancarlo
    Terreni, Natalia
    [J]. HEPATOLOGY, 2010, 52 (04) : 1523 - 1523
  • [49] Health-related quality of life measurement
    Sajid, M. S.
    Tonsi, A.
    Baig, M. K.
    [J]. INTERNATIONAL JOURNAL OF HEALTH CARE QUALITY ASSURANCE, 2008, 21 (04) : 365 - +
  • [50] MEASURING HEALTH-RELATED QUALITY OF LIFE
    Sampogna, Francesca
    [J]. ACTA DERMATO-VENEREOLOGICA, 2009, 89 (05) : 560 - 560