Health-related quality of life in sarcoidosis

被引:6
|
作者
Korenromp, Ingrid H. E. [1 ]
van de Laar, Mart A. F. J. [2 ,3 ]
机构
[1] St Antonius Hosp, Dept Pulmonol, ILD Ctr Excellence, NL-3435 CM Nieuwegein, Netherlands
[2] Med Spectrum Twente, Arthrit Ctr Twente, Enschede, Netherlands
[3] Univ Twente, NL-7500 AE Enschede, Netherlands
关键词
computer-adapted test; patient-reported outcome measures; quality-adjusted life years; quality of care; DOUBLE-BLIND; FATIGUE; QUESTIONNAIRE;
D O I
10.1097/MCP.0000000000000079
中图分类号
R56 [呼吸系及胸部疾病];
学科分类号
摘要
Purpose of review The review presents an overview of the scientific publications in the field of health-related quality of life (HRQL) in sarcoidosis. Recent findings Literature on HRQL in sarcoidosis is limited. HRQL was mainly used as a primary or secondary endpoint in intervention studies. Moreover, most studies have measured HRQL in sarcoidosis by means of the generic questionnaire 36-Item Short-Form Health Survey. Sarcoidosis-specific questionnaires and computer-adapted testing are innovative approaches to the field. Summary HRQL as a primary or secondary outcome in sarcoidosis studies is still scarce. In addition to the proper definition of the concept, the mode of measurement of HRQL remains a matter of debate. Because health-economical evaluations require data on gained quality of life, future studies on sarcoidosis should include HRQL as the study endpoint.
引用
收藏
页码:503 / 507
页数:5
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