I had been on the phone with Madeleine's mother for fifteen minutes, and she had sobbed throughout. She pleaded with me, "You won't even let our family visit her together. If you really want to help my daughter, you will let us stay with her." Madeleine, who was twenty-four years old, was dying of end-stage acute myeloid leukemia and was intubated in one of our intensive care units. Her intensivist had requested a clinical ethics consultation for potentially inappropriate medical treatment-in my world of clinical ethics consultation, routine stuff. Except that, in March 2020, nothing was routine anymore. The Covid-19 pandemic calls for creative thinking about ad hoc and post hoc bereavement efforts, and it may result in efforts to revise existing accounts of what constitutes a good death in order to accommodate patients' and families' experiences at the end of life during a pandemic.
机构:
Boston Childrens Hosp, Dept Cardiol, Boston, MA USA
Harvard Med Sch, Dept Pediat, Boston, MA USA
Boston Childrens Hosp, Dept Cardiol, MS BCH3215,300 Longwood Ave, Boston, MA 02115 USABoston Childrens Hosp, Dept Cardiol, Boston, MA USA
Moynihan, Katie M.
Bailey, Valerie
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Boston Childrens Hosp, Cardiovasc & Crit Care Nursing Patient Serv, Boston, MA USABoston Childrens Hosp, Dept Cardiol, Boston, MA USA
Bailey, Valerie
Beke, Dorothy M.
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Boston Childrens Hosp, Cardiovasc & Crit Care Nursing Patient Serv, Boston, MA USABoston Childrens Hosp, Dept Cardiol, Boston, MA USA
Beke, Dorothy M.
Alizadeh, Faraz
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机构:
Boston Childrens Hosp, Dept Cardiol, Boston, MA USA
Harvard Med Sch, Dept Pediat, Boston, MA USABoston Childrens Hosp, Dept Cardiol, Boston, MA USA
Alizadeh, Faraz
Gauvreau, Kimberlee
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Boston Childrens Hosp, Dept Cardiol, Boston, MA USA
Harvard Med Sch, Dept Pediat, Boston, MA USABoston Childrens Hosp, Dept Cardiol, Boston, MA USA
Gauvreau, Kimberlee
Snaman, Jennifer M.
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机构:
Dana Farber Canc Inst, Dept Psychosocial Oncol & Palliat Care, Boston, MA USA
Boston Childrens Hosp, Dept Pediat, Boston, MA USABoston Childrens Hosp, Dept Cardiol, Boston, MA USA
机构:
Univ Wollongong, Fac Social Sci, Sch Hlth & Soc, 33 Moore St, Liverpool, NSW 2170, AustraliaUniv Wollongong, Fac Social Sci, Sch Hlth & Soc, 33 Moore St, Liverpool, NSW 2170, Australia
Fox, Mim
McIlveen, Joanna
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机构:
St George Hosp, Kogarah, NSW, AustraliaUniv Wollongong, Fac Social Sci, Sch Hlth & Soc, 33 Moore St, Liverpool, NSW 2170, Australia
McIlveen, Joanna
Murphy, Elisabeth
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Wollongong Hosp, Wollongong, NSW, AustraliaUniv Wollongong, Fac Social Sci, Sch Hlth & Soc, 33 Moore St, Liverpool, NSW 2170, Australia
机构:
Univ Lancaster, Fac Hlth & Med, Int Observ End Life Care, Lancaster, EnglandUniv Lancaster, Fac Hlth & Med, Int Observ End Life Care, Lancaster, England
Preston, Nancy
Cockshott, Zoe
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Univ Lancaster, Fac Hlth & Med, Int Observ End Life Care, Lancaster, EnglandUniv Lancaster, Fac Hlth & Med, Int Observ End Life Care, Lancaster, England
Cockshott, Zoe
Russell, Sian
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Newcastle Univ, Populat Hlth Sci Inst, Fac Med Sci, Newcastle Upon Tyne, EnglandUniv Lancaster, Fac Hlth & Med, Int Observ End Life Care, Lancaster, England
Russell, Sian
Stocker, Rachel
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Newcastle Univ, Fac Med Sci, Sch Biomed Nutr & Sport Sci, Newcastle Upon Tyne, EnglandUniv Lancaster, Fac Hlth & Med, Int Observ End Life Care, Lancaster, England
Stocker, Rachel
Knight, Jo
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Univ Lancaster, Fac Hlth & Med, Lancaster Med Sch, Lancaster, EnglandUniv Lancaster, Fac Hlth & Med, Int Observ End Life Care, Lancaster, England
Knight, Jo
Mason, Suzanne
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Univ Sheffield, Sheffield Ctr Hlth & Related Res, Sch Med & Populat Hlth, Sheffield, EnglandUniv Lancaster, Fac Hlth & Med, Int Observ End Life Care, Lancaster, England