Reporting genomic research results to population biobank participants - participant preferences and response

被引:0
|
作者
Leitsalu, L. [1 ]
Alver, M. [1 ,2 ]
Palover, M. [1 ,2 ]
Reigo, A. [1 ]
Nikopensius, T. [1 ]
Alavere, H. [1 ]
Metspalu, A. [1 ,2 ]
Tonisson, N. [1 ,3 ]
Esko, T. [1 ,4 ]
机构
[1] Univ Tartu, Estonian Genome Ctr, Tartu, Estonia
[2] Univ Tartu, Inst Mol & Cell Biol, Tartu, Estonia
[3] Tartu Univ Hosp, Dept Genet, Tartu, Estonia
[4] Broad Inst, Cambridge, MA USA
关键词
D O I
暂无
中图分类号
Q5 [生物化学]; Q7 [分子生物学];
学科分类号
071010 ; 081704 ;
摘要
P19.42B
引用
收藏
页码:805 / 806
页数:2
相关论文
共 50 条
  • [41] Population-based Biomonitoring Surveys in Canada-Reporting Results to Study Participants
    Haines, D.
    EPIDEMIOLOGY, 2008, 19 (06) : S69 - S70
  • [42] Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research
    Holm, Ingrid A.
    Iles, Brittany R.
    Ziniel, Sonja I.
    Bacon, Phoebe L.
    Savage, Sarah K.
    Christensen, Kurt D.
    Weitzman, Elissa R.
    Green, Robert C.
    Huntington, Noelle L.
    JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS, 2015, 10 (04) : 414 - 426
  • [43] Research participants' perspectives about the return of uninformative genomic test results in a clinical research setting
    Jamal, Leila
    May, Makenna
    Setzer, Michael
    Yu, Mary
    Berkman, Benjamin
    Similuk, Morgan
    JOURNAL OF GENETIC COUNSELING, 2024, 33 (03) : 689 - 698
  • [44] Practices and Attitudes toward Returning Genomic Research Results to Low-Resource Research Participants
    Raymond, Megan B.
    Cooper, Kayla E.
    Parker, Lisa S.
    Bonham, Vence L.
    PUBLIC HEALTH GENOMICS, 2021, 24 (5-6) : 241 - 252
  • [45] Returning individual research results in international direct-to-participant genomic research: results from a 31-country study
    Lang, Michael
    Zawati, Ma'n H.
    EUROPEAN JOURNAL OF HUMAN GENETICS, 2022, 30 (10) : 1132 - 1137
  • [46] Returning individual research results in international direct-to-participant genomic research: results from a 31-country study
    Michael Lang
    Ma’n H. Zawati
    European Journal of Human Genetics, 2022, 30 : 1132 - 1137
  • [47] Facilitating return of actionable genetic research results from a biobank repository: Participant uptake and utilization of digital interventions
    Phung, Lillian
    Wood, Elisabeth
    Egleston, Brian
    Hoffman-Andrews, Lily
    Ofidis, Demetrios
    Howe, Sarah
    Mim, Rajia
    Griffin, Hannah
    Fetzer, Dominique
    Owens, Anjali
    Domchek, Susan
    Pyeritz, Reed
    Katona, Bryson
    Kallish, Staci
    Sirugo, Giorgio
    Weaver, Joellen
    Nathanson, Katherine L.
    Rader, Daniel J.
    Bradbury, Angela R.
    HUMAN GENETICS AND GENOMICS ADVANCES, 2024, 5 (04):
  • [48] Returning actionable genomic results in a research biobank: Analytic validity, clinical implementation, and resource utilization
    Zawatsky, Carrie L. Blout
    Shah, Nidhi
    Machini, Kalotina
    Perez, Emma
    Christensen, Kurt D.
    Zouk, Hana
    Steeves, Marcie
    Koch, Christopher
    Uveges, Melissa
    Shea, Janelle
    Gold, Nina
    Krier, Joel
    Boutin, Natalie
    Mahanta, Lisa
    Rehm, Heidi L.
    Weiss, Scott T.
    Karlson, Elizabeth W.
    Smoller, Jordan W.
    Lebo, Matthew S.
    Green, Robert C.
    AMERICAN JOURNAL OF HUMAN GENETICS, 2021, 108 (12) : 2224 - 2237
  • [49] Returning a Research Participant's Genomic Results to Relatives: Perspectives from Managers of Two Distinct Research Biobanks
    Petersen, Gloria M.
    Van Ness, Brian
    JOURNAL OF LAW MEDICINE & ETHICS, 2015, 43 (03): : 523 - 528
  • [50] Return of individual genomic research results: what do consent forms tell participants?
    Stacey Pereira
    Jill Oliver Robinson
    Amy L McGuire
    European Journal of Human Genetics, 2016, 24 : 1524 - 1529