The Fabry Outcome Survey is a useful tool to document the natural history of Fabry disease

被引：0
|
作者：
Orteu, CH
Jansen, T
Beck, M
Mehta, A
Ricci, R
Widmer, U
机构：
[1] Royal Free Hosp, Dept Dermatol, London NW3 2QG, England
[2] Ruhr Univ Bochum, Dept Dermatol, D-4630 Bochum, Germany
[3] Univ Mainz, Dept Pediat, D-6500 Mainz, Germany
[4] Royal Free Hosp, Dept Haematol, London NW3 2QG, England
[5] UCSC, Inst Pediat Clin, Rome, Italy
[6] Univ Zurich Hosp, Dept Med, CH-8091 Zurich, Switzerland
来源：
BRITISH JOURNAL OF DERMATOLOGY | 2004年 / 151卷
关键词：
D O I：
暂无
中图分类号：
R75 [皮肤病学与性病学];
学科分类号：
100206 ;
摘要：
引用
收藏
页码：9 / 9
页数：1
相关论文
共 50 条
  • [31] Renal function in patients with Fabry disease: Data from FOS - The Fabry Outcome Survey
    Sunder-Plassmann, Gere
    Beck, Michael
    Clarke, Joe
    Linhart, Ales
    Schiffmann, Raphael
    Mehta, Atul
    [J]. NEPHROLOGY DIALYSIS TRANSPLANTATION, 2007, 22 : 32 - 33
  • [32] Treatment outcome and safety of agalsidase alfa in Fabry disease: Data from FOS - The Fabry outcome survey
    Mehta, A.
    Beck, M.
    Linhart, A.
    Sunder-Plassmann, G.
    [J]. JOURNAL OF INHERITED METABOLIC DISEASE, 2006, 29 : 28 - 28
  • [33] Fabry disease defined: baseline clinical manifestations of 366 patients in the Fabry Outcome Survey
    Mehta, A
    Ricci, R
    Widmer, U
    Dehout, F
    de Lorenzo, AG
    Kampmann, C
    Linhart, A
    Sunder-Plassmann, G
    Ries, M
    Beck, M
    [J]. EUROPEAN JOURNAL OF CLINICAL INVESTIGATION, 2004, 34 (03) : 236 - 242
  • [34] Cardiovascular Events in Patients With Fabry Disease Natural History Data From the Fabry Registry
    Patel, Manesh R.
    Cecchi, Franco
    Cizmarik, Marta
    Kantola, Ilkka
    Linhart, Ales
    Nicholls, Kathy
    Strotmann, Joerg
    Tallaj, Jose
    Thi Chien Tran
    West, Michael L.
    Beitner-Johnson, Dana
    Abiose, Ademola
    [J]. JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY, 2011, 57 (09) : 1093 - 1099
  • [35] CARDIOVASCULAR EVENTS IN PATIENTS WITH FABRY DISEASE: NATURAL HISTORY DATA FROM THE FABRY REGISTRY
    Patel, Manesh R.
    Cecchi, Franco
    Cizmarik, Marta
    Kantola, Ilkka
    Linhart, Ales
    Nicholls, Kathy
    Strotmann, Jorg
    Tallaj, Jose
    Tran, Thi Chien
    West, Michael L.
    Abiose, Ademola
    [J]. JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY, 2010, 55 (10)
  • [36] Renal manifestations in chidren with Fabry disease. Data from FOS - The Fabry Outcome Survey
    Herrero, C.
    Planells, M.
    Pintos-Morell, G.
    Ramaswami, U.
    Parini, R.
    Kalkum, G.
    Beck, M.
    [J]. PEDIATRIC NEPHROLOGY, 2010, 25 (03) : 578 - 578
  • [37] THE FABRY OUTCOME SURVEY: A COMPREHENSIVE APPROACH FOR DOCUMENTING THE OCULAR MANIFESTATIONS IN ANDERSON-FABRY DISEASE
    Ioannidis, Alexandros
    Talbot, Andrew
    Symons, Andrew
    Nicholls, Kathleen
    [J]. CLINICAL AND EXPERIMENTAL OPHTHALMOLOGY, 2017, 45 : 95 - 95
  • [38] Magnetic resonance imaging findings in Fabry disease: Data from FOS, the Fabry Outcome Survey
    Ginsberg, L.
    Manara, R.
    Valentine, A. R.
    Kendall, B.
    Mehta, A.
    Burlina, A. P.
    [J]. EUROPEAN JOURNAL OF NEUROLOGY, 2006, 13 : 25 - 25
  • [39] Renal manifestations of Fabry disease in children and adolescents: results of the European Registry Fabry outcome survey
    Seuma, Agusti R. Palmero
    Morell, Guillem Pintos
    Garcia-Consuegra, Julia
    Ramaswami, Uma
    Parini, Rossella
    Beck, Michael
    [J]. PEDIATRIC NEPHROLOGY, 2007, 22 (07) : 1075 - 1075
  • [40] Fabry disease in children and response to enzyme replacement therapy: results from the fabry outcome survey
    Ramaswami, U.
    Parini, R.
    Pintos-Morell, G.
    Hartung, R.
    Kampmann, C.
    Beck, M.
    [J]. JOURNAL OF INHERITED METABOLIC DISEASE, 2008, 31 : 122 - 122
12345