Perception Gap in Health-Related Quality of Life Between Young Adult Survivors of Childhood Cancer and Their Family

被引：4

作者：

Morino, Tappei ^{[1
]}

Shinohara, Yuki ^{[1
]}

Niu, Qian ^{[1
]}

Shimoura, Kanako ^{[1
]}

Tabata, Ami ^{[1
]}

Hanai, Akiko ^{[1
,2
]}

Ogawa, Masahiro ^{[3
]}

Kato, Toshihiro ^{[1
]}

Tanimukai, Hitoshi ^{[1
,4
]}

Tsuboyama, Tadao ^{[1
,5
]}

Matsuoka, Mari ^{[1
]}

Adachi, Soichi ^{[1
]}

Aoyama, Tomoki ^{[1
]}

机构：

[1] Kyoto Univ, Grad Sch Med, Dept Human Hlth Sci, Kyoto 6068501, Japan

[2] Inst Phys & Chem Res RIKEN, Med Sci Innovat Hub Program, Yokohama, Kanagawa, Japan

[3] Kobe Gakuin Univ, Fac Rehabil, Kobe, Hyogo, Japan

[4] Kyoto Univ Hosp, Dept Palliat Med, Kyoto, Japan

[5] Bukkyo Univ, Sch Hlth Sci, Kyoto, Japan

来源：

JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY | 2021年 / 10卷 / 06期

关键词：

cancer care continuum; survivorship; quality of life; pediatric; acute lymphoblastic leukemia; supportive care;

D O I：

10.1089/jayao.2020.0232

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Young adult survivors of childhood cancer may have a perception gap with their families. Patients aged 18-39 years after treatment of cancer and their families (28 pairs) completed a survey that contained questions on health-related quality of life using the 36-item short form survey. There was a significant difference in the role-social component score (mean difference -2.23; p = 0.04) with family reporting higher scores than patients. Families may overestimate the social function of cancer survivors, emphasizing the importance of the long-term follow-up by taking into account the risk of a gap (IRB approval No.: R2257-1).

引用

页码：735 / 739

页数：5

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