The patient journey: a voyage from diagnosis to hidradenitis suppurativa multidisciplinary unit

被引:5
|
作者
Chiricozzi, A. [1 ,2 ]
Micali, G. [3 ]
Veraldi, S. [4 ]
机构
[1] Catholic Univ, Inst Dermatol, Rome, Italy
[2] Fdn Policlin Univ A Gemelli IRCCS, Rome, Italy
[3] Univ Catania, Dermatol Clin, Catania, Italy
[4] Univ Milan, IRCCS Fdn, Dept Pathophysiol & Transplantat, Ca Granda Osped Maggiore Policlin, Milan, Italy
关键词
D O I
10.1111/jdv.15850
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Background Hidradenitis suppurativa (HS) is an inflammatory, recurrent and debilitating chronic skin disease that is often worsened by comorbidities, with a destructive impact on the social and working life of the patient. The low awareness of patients and clinicians regarding HS, together with weak coordination between specialists who manage the clinical care of these patients, may result in a burdening diagnostic and therapeutic delay, lowering efficacy of therapies and worsening prognosis and patients' QoL. Objectives To rule out these critical aspects, a HS-Multidisciplinary Unit with a hierarchical organization is proposed. Methods Based on previously published models of a multidisciplinary unit, a hierarchical structure of a HS-dedicated multidisciplinary unit was designed. Results In this model, an operational core constituted by four healthcare professionals constantly working as team, is supported by a large panel of consultants, local dermatologists and general practitioners, helping in HS patient management. Conclusions This standardization would imply an optimization of professional resources, an amelioration of patient's quality of life, and a shortening of patient journey.
引用
收藏
页码:15 / 20
页数:6
相关论文
共 50 条
  • [1] Quality of life and the patient journey in hidradenitis suppurativa
    Daveluy, Steven
    Okoye, Ginette A.
    JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, 2024, 91 (06) : S8 - S11
  • [2] Multidisciplinary approach for hidradenitis suppurativa patients
    Veraldi, Stefano
    Guanziroll, Elena
    Benzecry, Valentina
    Nazzaro, Gianluca
    GIORNALE ITALIANO DI DERMATOLOGIA E VENEREOLOGIA, 2018, 153 (03): : 18 - 19
  • [3] Telomere methylome may suggest patient's journey in hidradenitis suppurativa
    Damiani, G. A.
    Del Fabbro, M.
    JOURNAL OF INVESTIGATIVE DERMATOLOGY, 2023, 143 (05) : S261 - S261
  • [4] Hidradenitis suppurativa in a journey of an African refugee
    Andrawis, Madonna
    Keeling, Elizabeth
    Byrne, Berbie
    Drumm, Claire
    Rafferty, Siobhan
    Fleming, Sarah
    Carty, Kieran
    O'Mahony, Sarah
    Granahan, Aoife
    Comes, Arianna
    Tobin, Anne-Marie
    CLINICAL AND EXPERIMENTAL DERMATOLOGY, 2024, 49 (06) : 638 - 639
  • [5] Hidradenitis suppurativa: from pathogenesis to diagnosis and treatment
    Napolitano, Maddalena
    Megna, Matteo
    Timoshchuk, Elena A.
    Patruno, Cataldo
    Balato, Nicola
    Fabbrocini, Gabriella
    Monfrecola, Giuseppe
    CLINICAL COSMETIC AND INVESTIGATIONAL DERMATOLOGY, 2017, 10 : 105 - 115
  • [6] The Hidradenitis suppurativa patient journey in Italy: current status, unmet needs and opportunities
    Bettoli, V.
    Pasquinucci, S.
    Caracciolo, S.
    Piccolo, D.
    Cazzaniga, S.
    Fantini, F.
    Binello, L.
    Pintori, G.
    Naldi, L.
    JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY, 2016, 30 (11) : 1965 - 1970
  • [7] The Hidradenitis Suppurativa (HS) "Multidisciplinary Unit": a rationale and practical proposal for an organised clinical approach
    Chiricozzi, Andrea
    Veraldi, Stefano
    Fabbrocini, Gabriella
    Didona, Biagio
    Pasquinucci, Sandro
    Micali, Giuseppe
    Romanelli, Marco
    EUROPEAN JOURNAL OF DERMATOLOGY, 2018, 28 (02) : 274 - 275
  • [8] The Hidradenitis Suppurativa (HS) “Multidisciplinary Unit”: a rationale and practical proposal for an organised clinical approach
    Andrea Chiricozzi
    Stefano Veraldi
    Gabriella Fabbrocini
    Biagio Didona
    Sandro Pasquinucci
    Giuseppe Micali
    Marco Romanelli
    European Journal of Dermatology, 2018, 28 : 274 - 275
  • [9] Hidradenitis Suppurativa is a Diagnosis to be Discussed
    Jemec, Gregor B. E.
    CASE REPORTS IN DERMATOLOGY, 2019, 11 (01): : 91 - 93
  • [10] Multidisciplinary Update on Genital Hidradenitis Suppurativa A Review
    Hamad, Judy
    McCormick, Benjamin J.
    Sayed, Christopher J.
    Paci, Karina
    Overton, Matthew
    Daubert, Thomas
    Figler, Bradley D.
    JAMA SURGERY, 2020, 155 (10) : 970 - 977