Quality of life and the patient journey in hidradenitis suppurativa

被引：0
|
作者：
Daveluy, Steven [1 ]
Okoye, Ginette A. [2 ]
机构：
[1] Wayne State Univ, Sch Med, Dept Dermatol, Detroit, MI USA
[2] Howard Univ, Coll Med, Dept Dermatol, Washington, DC USA
来源：
JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY | 2024年 / 91卷 / 06期
关键词：
hidradenitis suppurativa; patient journey; quality of life;
D O I：
10.1016/j.jaad.2024.09.008
中图分类号：
R75 [皮肤病学与性病学];
学科分类号：
100206 ;
摘要：
Hidradenitis suppurativa is a debilitating inflammatory disease with a profound impact on quality of life for affected patients and caregivers. The patient journey in hidradenitis begins with symptom onset and proceeds through diagnosis and treatment. It is fraught with misdiagnosis, lack of awareness, misinformation, and inappropriate treatments that lead to shame, blame, isolation, and medical mistrust. This review highlights the relationship between hidradenitis and quality of life, emphasizing the patient journey and opportunities to improve care along its tortuous course. ( J Am Acad Dermatol 2024;91:S8-11.)
引用
收藏
页码：S8 / S11
页数：4
相关论文
共 50 条
  • [1] Patient Satisfaction and Quality of Life Following Surgery for Hidradenitis Suppurativa
    Kohorst, John J.
    Baum, Christian L.
    Otley, Clark C.
    Roenigk, Randall K.
    Pemberton, John H.
    Dozois, Eric J.
    Tran, Nho V.
    Davis, Mark D. P.
    DERMATOLOGIC SURGERY, 2017, 43 (01) : 125 - 133
  • [2] Quality of Life in Hidradenitis Suppurativa: An Update
    Chernyshov, Pavel, V
    Finlay, Andrew Y.
    Tomas-Aragones, Lucia
    Poot, Francoise
    Sampogna, Francesca
    Marron, Servando E.
    Zemskov, Sergey, V
    Abeni, Damiano
    Tzellos, Thrasyvoulos
    Szepietowski, Jacek C.
    Zouboulis, Christos C.
    INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2021, 18 (11)
  • [3] Comorbidities and Quality of Life in Hidradenitis Suppurativa
    Midgette, Bria
    Garg, Amit
    DERMATOLOGIC CLINICS, 2025, 43 (02) : 173 - 178
  • [4] Electronic Patient-Reported Outcomes in Hidradenitis Suppurativa: Content Validity and Usability of the Electronic Hidradenitis Suppurativa Symptom Daily Diary, Hidradenitis Suppurativa Symptom Questionnaire and Hidradenitis Suppurativa Quality of Life Questionnaire
    Ingram, John R.
    Ciaravino, Valerie
    Rolleri, Robert
    Pansar, Ingrid
    Dias-Barbosa, Carla
    Kirby, Joslyn
    DERMATOLOGY, 2024, 240 (01) : 65 - 76
  • [5] Impact of Hidradenitis Suppurativa on Sexual Quality of Life
    Caliezi, Annik
    Rabufetti, Andrea
    Hunger, Robert
    Wolf, Ronald
    Jafari, S. Morteza Seyed
    JOURNAL OF CLINICAL MEDICINE, 2025, 14 (03)
  • [6] Quality of life and psychosocial implications in hidradenitis suppurativa
    Kontochristopoulos, George
    Kouris, Anargyros
    Tzanetakou, Vassiliki
    Platsidaki, Eftychia
    Christodoulou, Christos
    Dessinioti, Clio
    Antoniou, Christina
    JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, 2017, 76 (06) : AB211 - AB211
  • [7] Epidemiology, patient quality of life, and treatment costs of hidradenitis suppurativa/acne inversa
    Kirsten, N.
    Frings, V
    Nikolakis, G. D.
    Presser, D.
    Goebeler, M.
    Zouboulis, C. C.
    Augustin, M.
    HAUTARZT, 2021, 72 (08): : 651 - 657
  • [8] The impact of a wound dressings starter kit on hidradenitis suppurativa patient quality of life
    Schneider, C.
    Sanchez, D. P.
    MacQuhae, F.
    Stratman, S.
    Lev-Tov, H.
    JOURNAL OF INVESTIGATIVE DERMATOLOGY, 2021, 141 (05) : S109 - S109
  • [9] Patient reported quality of life within refined Hurley stages for hidradenitis suppurativa
    Rondags, A.
    van Hasselt, J.
    Janse, I.
    van Straalen, K.
    Prens, E.
    Van der Zee, H.
    Horvath, B.
    EXPERIMENTAL DERMATOLOGY, 2018, 27 : 5 - 6
  • [10] Postoperative Quality of Life in Patients with Hidradenitis Suppurativa Utilizing the Hidradenitis Suppurativa Burden of Disease Tool
    Guart, Jiddu A.
    Byers, Victor V.
    Sasson, Daniel C.
    Bassiri-Tehrani, Brian
    Ranzer, Matthew
    Purnell, Chad
    CUREUS JOURNAL OF MEDICAL SCIENCE, 2021, 13 (02)
12345