Quality of life and the patient journey in hidradenitis suppurativa

被引：0

作者：

Daveluy, Steven ^{[1
]}

Okoye, Ginette A. ^{[2
]}

机构：

[1] Wayne State Univ, Sch Med, Dept Dermatol, Detroit, MI USA

[2] Howard Univ, Coll Med, Dept Dermatol, Washington, DC USA

来源：

JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY | 2024年 / 91卷 / 06期

关键词：

hidradenitis suppurativa; patient journey; quality of life;

D O I：

10.1016/j.jaad.2024.09.008

中图分类号：

R75 [皮肤病学与性病学];

学科分类号：

100206 ;

摘要：

Hidradenitis suppurativa is a debilitating inflammatory disease with a profound impact on quality of life for affected patients and caregivers. The patient journey in hidradenitis begins with symptom onset and proceeds through diagnosis and treatment. It is fraught with misdiagnosis, lack of awareness, misinformation, and inappropriate treatments that lead to shame, blame, isolation, and medical mistrust. This review highlights the relationship between hidradenitis and quality of life, emphasizing the patient journey and opportunities to improve care along its tortuous course. ( J Am Acad Dermatol 2024;91:S8-11.)

引用

页码：S8 / S11

页数：4

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