Understanding hemophilia caregiver burden: does appraisal buffer the impact of hemophilia on caregivers?

被引:0
|
作者
Schwartz, Carolyn [1 ]
Stark, Roland [1 ]
Michael, Wesley [2 ]
Rapkin, Bruce [3 ]
机构
[1] DeltaQuest Fdn Inc, Concord, MA USA
[2] Rare Patient Voice LLC, Towson, MD USA
[3] Einstein Coll Med, Bronx, NY USA
关键词
D O I
暂无
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
301.1
引用
收藏
页码:S44 / S45
页数:2
相关论文
共 50 条
  • [21] Understanding treatment burden in hemophilia: development and validation of the Hemophilia Treatment Experience Measure (Hemo-TEM)
    Meryl Brod
    Donald M. Bushnell
    Jesper Skov Neergaard
    Laura Tesler Waldman
    Anne Kirstine Busk
    Journal of Patient-Reported Outcomes, 7
  • [22] Understanding Disease Burden Among Persons with Hemophilia A without Inhibitors
    Owens, Wendy E.
    Cyhaniuk, Anissa
    Patel, Anisha
    Raimundo, Karina
    Chan, Elaine
    Ko, Richard H.
    BLOOD, 2018, 132
  • [23] Hemophilia from the partners' perspective: Burden and impact on their lives
    Triemstra, M
    van der Ploeg, H
    Smit, C
    Rosendaal, F
    PSYCHOLOGY & HEALTH, 1999, 14 (01) : 97 - 116
  • [24] Impact of hemophilia on interpersonal relationships: Assessment of parent/caregiver respondents in the hemophilia experiences, results, opportunities (hero) study
    Nugent, D.
    Garrido, C.
    Halter, K.
    Buzzi, A.
    Iorio, A.
    HAEMOPHILIA, 2012, 18 : 63 - 63
  • [25] The Impact of Anticipatory Grief on Caregiver Burden in Dementia Caregivers
    Holley, Caitlin K.
    Mast, Benjamin T.
    GERONTOLOGIST, 2009, 49 (03): : 388 - 396
  • [26] DOES LOWER COGNITIVE FUNCTIONING IN CAREGIVERS AFFECT CAREGIVER BURDEN?
    Huby, N.
    Zhang, L.
    Smith, J.
    Lichtenberg, P.
    GERONTOLOGIST, 2008, 48 : 329 - 329
  • [27] Understanding Treatment Burden in Pediatric Hemophilia: Development of the Child Hemophilia Treatment Experience Measure (Child Hemo-TEM)
    Brod, Meryl
    Busk, Anne Kirstine
    Neergaard, Jesper Skov
    BLOOD, 2023, 142
  • [28] Qualitative findings contributing to the development of a hemophilia-specific caregiver burden instrument: caregiver and health care professional insights
    Von Mackensen, S.
    Wisniewski, T.
    Valentino, L. A.
    JOURNAL OF THROMBOSIS AND HAEMOSTASIS, 2013, 11 : 803 - 803
  • [29] A New Methodology to Assess Utility in Hemophilia Using Quality of Life Measures in Parents and Caregivers: The Caregivers' Burden Study
    Riva, S.
    Mancuso, E.
    Von Mackensen, S.
    Nikolaj-Sen, A.
    Miners, A.
    Axelsen, F.
    Gringeri, A.
    HAEMOPHILIA, 2012, 18 : 69 - 69
  • [30] Quality of life in dementia: does caregiver burden impact on caregiver reports?
    Barrios, H.
    Goncalves-Pereira, M.
    Verdelho, A.
    de Mendonca, A.
    PSYCHOTHERAPY AND PSYCHOSOMATICS, 2013, 82 : 11 - 11