Pediatric Concurrent Hospice Care A Scoping Review and Directions for Future Nursing Research

被引:22
|
作者
Lindley, Lisa C. [1 ]
Keim-Malpass, Jessica [2 ]
Svynarenko, Radion [1 ]
Cozad, Melanie J. [3 ]
Mack, Jennifer W. [4 ,5 ]
Hinds, Pamela S. [6 ,7 ,8 ,9 ]
机构
[1] Univ Tennessee, Coll Nursing, 1200 Volunteer Blvd, Knoxville, TN 37996 USA
[2] Univ Virginia, Sch Nursing, Charlottesville, VA 22903 USA
[3] Univ South Carolina, Dept Hlth Serv Policy & Management, Ctr Effectiveness Res Orthoped, Columbia, SC 29208 USA
[4] Boston Childrens Hosp, Dept Pediat Oncol, Dana Farber Canc Inst, Pediat, Boston, MA USA
[5] Boston Childrens Hosp, Div Populat Sci, Dana Farber Canc Inst, Boston, MA USA
[6] Childrens Natl Hosp, Nursing Res, Washington, DC USA
[7] Childrens Natl Hosp, Dept Nursing Sci Profess Practice & Qual Outcomes, Washington, DC USA
[8] Childrens Natl Hosp, Washington, DC USA
[9] George Washington Univ, Dept Pediat, Washington, DC 20052 USA
关键词
concurrent hospice care; end-of-life care; hospice care; pediatrics; scoping review; OF-LIFE CARE; CHILDREN; END; CANCER; REFORM;
D O I
10.1097/NJH.0000000000000648
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
In 2010, forgoing curative therapies were removed as a hospice eligibility criterion for children through section 2302 of the Patient Protection and Affordable Care Act called Concurrent Care for Children. Given that concurrent care is a federally mandated option for children and their families, no review of the science has been conducted. The purpose of this study was to systematically collect the evidence on concurrent hospice care, critically appraise the evidence, and identify areas for future nursing research. Of the 186 articles identified for review, 14 met the inclusion and exclusion criteria. Studies in this review described concurrent hospice care from a variety of perspectives: policy, legal, and ethics. However, only 1 article evaluated the impact of concurrent hospice care on outcomes, whereas several studies explained clinical and state-level implementation. There is a need for further studies that move beyond conceptualization and generate baseline and outcomes data. Understanding the effectiveness of concurrent hospice care might provide important information for future nursing research. The approaches used to disseminate and implement concurrent hospice care at state, provider, and family levels should be explored.
引用
收藏
页码:238 / 245
页数:8
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