The Prevention Research Centers' Managing Epilepsy Well Network

被引:51
|
作者
Dilorio, Colleen K. [1 ]
Bamps, Yvan A.
Edwards, Ariele L.
Escoffery, Cam
Thompson, Nancy J.
Begley, Charles E. [2 ]
Shegog, Ross [2 ]
Clark, Noreen M. [3 ]
Selwa, Linda [3 ]
Stoll, Shelley C. [3 ]
Fraser, Robert T. [4 ]
Ciechanowski, Paul [4 ]
Johnson, Erica K. [4 ]
Kobau, Rosemarie [5 ]
Price, Patricia H. [5 ]
机构
[1] Emory Univ, Rollins Sch Publ Hlth, Dept Behav Sci & Hlth Educ, Atlanta, GA 30322 USA
[2] Univ Texas Hlth Sci Ctr Houston, Houston, TX USA
[3] Univ Michigan, Ann Arbor, MI 48109 USA
[4] Univ Washington, Seattle, WA 98195 USA
[5] Ctr Dis Control & Prevent, Div Adult & Community Hlth, Natl Ctr Chron Dis Prevent & Hlth Promot, Atlanta, GA USA
关键词
Epilepsy; Self-management; Quality of life; Research network; Prevention; Mental health; E-Health; Depression; SELF-MANAGEMENT; ADULTS; MODEL; CARE;
D O I
10.1016/j.yebeh.2010.07.027
中图分类号
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要
The Managing Epilepsy Well (MEW) Network was created in 2007 by the Centers for Disease Control and Prevention's (CDC) Prevention Research Centers and Epilepsy Program to promote epilepsy self-management research and to improve the quality of life for people with epilepsy. MEW Network membership comprises four collaborating centers (Emory University, University of Texas Health Science Center at Houston, University of Michigan, and University of Washington), representatives from CDC, affiliate members, and community stakeholders. This article describes the MEW Network's background, mission statement, research agenda, and structure. Exploratory and intervention studies conducted by individual collaborating centers are described, as are Network collaborative projects, including a multisite depression prevention intervention and the development of a standard measure of epilepsy self-management. Communication strategies and examples of research translation programs are discussed. The conclusion outlines the Network's role in the future development and dissemination of evidence-based epilepsy self-management programs. (C) 2010 Elsevier Inc. All rights reserved.
引用
收藏
页码:218 / 224
页数:7
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