Asking questions of a palliative care nurse practitioner on a pancreatic cancer website

被引:3
|
作者
Grant, Marian S. [1 ]
Wiegand, Debra L. [1 ]
Dy, Sydney M. [2 ]
机构
[1] Univ Maryland, Sch Nursing, Baltimore, MD 20201 USA
[2] Johns Hopkins Bloomberg Sch Publ Hlth, Baltimore, MD USA
关键词
Internet; Pancreatic cancer; Palliative care; BREAST-CANCER; ONLINE; PATIENT; NEEDS; COMMUNICATION;
D O I
10.1017/S1478951514000637
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objective: Increasing evidence demonstrates the benefits of online cancer interventions but very little about the needs of those with pancreatic cancer or interaction with online providers. Our study was done to (1) see howmany people would visit awebpage where they could interact with a palliative care nurse practitioner (PCNP), (2) see how many would ask the PCNP questions, (3) determine the type of questions, and (4) obtain feedback regarding the usefulness of the webpage. Method: Mixed-methods descriptive design. Results: There were 2174 visits to the webpage, and a total of 84 participants sent 110 questions/comments. Some 28 (33%) were people worried that they might have pancreatic cancer. Most questions (59, 53%) had to do with palliative care issues, with the largest subgroup (26, 23%) involving psychological concerns. A total of 39 completed an online survey and were relatives (20, 52%), or patients (17, 44%). They rated the webpage at 3.3/4 as being helpful at learning about the physical symptoms/treatments of pancreatic cancer, at 3.1/4 for learning about emotional issues, at 3/4 for learning about palliative care, at 2.8/4 for learning about hospice, and at 3.3/4 for reading other people's questions. Significance of results: The PCNP webpage was a helpful resource. Most asking questions were worried about having or getting pancreatic cancer. More research is needed into online providers, interventions, and conducting research online.
引用
收藏
页码:787 / 793
页数:7
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