Older adults with advanced cancer are selective in sharing and seeking information with social networks

被引:4
|
作者
Kehoe, Lee [1 ,7 ,9 ]
Sanapala, Chandrika [1 ]
DiGiovanni, Grace [1 ]
Yousefi-Nooraie, Reza [2 ]
Yilmaz, Sule [1 ]
Bauer, Jessica [1 ]
Loh, Kah Poh [1 ]
Norton, Sally [3 ,4 ]
Duberstein, Paul [5 ]
Kamen, Charles [1 ,7 ]
Gilmore, Nikesha [1 ,7 ]
Gudina, Abdi [1 ]
Kleckner, Amber [8 ]
Mohile, Supriya [1 ]
Epstein, Ronald M. [1 ,3 ,6 ]
机构
[1] Univ Rochester, Sch Med & Dent, James P Wilmot Canc Inst, Rochester, NY USA
[2] Univ Rochester, Sch Med & Dent, Dept Publ Hlth Sci, Rochester, NY USA
[3] Univ Rochester, Sch Med & Dent, Dept Med, Rochester, NY USA
[4] Univ Rochester, Sch Nursing, Rochester, NY USA
[5] Rutgers State Univ, Sch Publ Hlth, Dept Hlth Behav Soc & Policy, Piscataway, NJ USA
[6] Univ Rochester, Sch Med & Dent, Dept Family Med, Rochester, NY USA
[7] Univ Rochester, Sch Med & Dent, Dept Surg, Div Support Care Canc, Rochester, NY USA
[8] Univ Maryland, Sch Nursing, Baltimore, MD USA
[9] Univ Rochester, James P Wilmot Canc Inst, Med Ctr, Box 704,601 Elmwood Ave, Rochester, NY 14642 USA
关键词
Cancer; Social networks; Older adults; Medical communication; QUALITY-OF-LIFE; DECISION-MAKING; SUPPORT; OUTCOMES; PERCEPTIONS; SURVIVORS; STYLES; END;
D O I
10.1016/j.pec.2022.06.005
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background: Little is known about how older adults (OA) with advanced cancer interact with social network members (NM), and the nature of communication. This qualitative study aimed to characterize the processes by which OAs with cancer engage with NMs regarding their illness. Methods: OAs 65 + with advanced cancer and considering treatment (n = 29) and NMs (n = 18) underwent semi -structured interviews asking 1) about their illness understanding; 2) to identify NMs with whom OAs discuss health-related matters; and 3) to describe the content, process, and impact of those illness-related conversations. Three coders analyzed transcribed interviews. Codes were categorized and emergent themes were identified to generate hypotheses. Results: OAs seek NMs with medical backgrounds for cancer-related information and NMs with personal expe-rience of a serious illness for emotional support. Patients characterize geographical location, frequency of communication, and length of NM relationship as factors that influence the nature of support the NM provides. Additionally, differences emerged between OA and NM perspectives on the depth of conversations and decision -making. Conclusions: A better characterization of how OAs' seek and share information and support may improve medical communication, disease understanding, and support goals-concordant care.
引用
收藏
页码:3116 / 3122
页数:7
相关论文
共 50 条
  • [31] A relational view of information seeking and learning in social networks
    Borgatti, SP
    Cross, R
    MANAGEMENT SCIENCE, 2003, 49 (04) : 432 - 445
  • [32] Privacy preserving actions of older adults on social media: Exploring the behavior of opting out of information sharing
    Chakraborty, Rajarshi
    Vishik, Claire
    Rao, H. Raghav
    DECISION SUPPORT SYSTEMS, 2013, 55 (04) : 948 - 956
  • [33] Are physicians social networks linked to breast cancer screening recommendations for older adults?
    Pollack, Craig Evan
    Radhakrishnan, Archana
    Parker, Andrew M.
    Visvanathan, Kala
    Nowak, Sarah A.
    JOURNAL OF CLINICAL ONCOLOGY, 2017, 35
  • [34] Local Ties in the Social Networks of Older Adults
    Cornwell, Erin York
    Goldman, Alyssa W.
    JOURNALS OF GERONTOLOGY SERIES B-PSYCHOLOGICAL SCIENCES AND SOCIAL SCIENCES, 2021, 76 (04): : 790 - 800
  • [35] Social Support Networks of LGBT Older Adults
    Breder, Kelseanne
    NURSING RESEARCH, 2020, 69 (03) : E96 - E97
  • [36] The Complexity of Older Adults' Social Support Networks
    Chaichanawirote, Uraiwan
    Higgins, Patricia A.
    RESEARCH IN GERONTOLOGICAL NURSING, 2013, 6 (04) : 275 - 282
  • [37] OLDER ADULTS' MARITAL STATUS AND SOCIAL NETWORKS
    Kang, H.
    GERONTOLOGIST, 2010, 50 : 324 - 325
  • [38] AGE HOMOPHILY IN OLDER ADULTS' SOCIAL NETWORKS
    Stone, M.
    Lin, J.
    GERONTOLOGIST, 2011, 51 : 466 - 466
  • [39] Alcohol Use and Social Networks in Older Adults
    Spilman, S.
    Liao, D.
    Sacco, P.
    Moore, A.
    JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2015, 63 : S253 - S253
  • [40] Exploring online health information seeking and sharing among older adults: a mini-review about acceptance, potentials, and barriers
    Bachofner, Yves
    Seifert, Alexander
    Sepahniya, Samin
    Fabian, Carlo
    FRONTIERS IN DIGITAL HEALTH, 2024, 6