Older adults with advanced cancer are selective in sharing and seeking information with social networks

被引:4
|
作者
Kehoe, Lee [1 ,7 ,9 ]
Sanapala, Chandrika [1 ]
DiGiovanni, Grace [1 ]
Yousefi-Nooraie, Reza [2 ]
Yilmaz, Sule [1 ]
Bauer, Jessica [1 ]
Loh, Kah Poh [1 ]
Norton, Sally [3 ,4 ]
Duberstein, Paul [5 ]
Kamen, Charles [1 ,7 ]
Gilmore, Nikesha [1 ,7 ]
Gudina, Abdi [1 ]
Kleckner, Amber [8 ]
Mohile, Supriya [1 ]
Epstein, Ronald M. [1 ,3 ,6 ]
机构
[1] Univ Rochester, Sch Med & Dent, James P Wilmot Canc Inst, Rochester, NY USA
[2] Univ Rochester, Sch Med & Dent, Dept Publ Hlth Sci, Rochester, NY USA
[3] Univ Rochester, Sch Med & Dent, Dept Med, Rochester, NY USA
[4] Univ Rochester, Sch Nursing, Rochester, NY USA
[5] Rutgers State Univ, Sch Publ Hlth, Dept Hlth Behav Soc & Policy, Piscataway, NJ USA
[6] Univ Rochester, Sch Med & Dent, Dept Family Med, Rochester, NY USA
[7] Univ Rochester, Sch Med & Dent, Dept Surg, Div Support Care Canc, Rochester, NY USA
[8] Univ Maryland, Sch Nursing, Baltimore, MD USA
[9] Univ Rochester, James P Wilmot Canc Inst, Med Ctr, Box 704,601 Elmwood Ave, Rochester, NY 14642 USA
关键词
Cancer; Social networks; Older adults; Medical communication; QUALITY-OF-LIFE; DECISION-MAKING; SUPPORT; OUTCOMES; PERCEPTIONS; SURVIVORS; STYLES; END;
D O I
10.1016/j.pec.2022.06.005
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background: Little is known about how older adults (OA) with advanced cancer interact with social network members (NM), and the nature of communication. This qualitative study aimed to characterize the processes by which OAs with cancer engage with NMs regarding their illness. Methods: OAs 65 + with advanced cancer and considering treatment (n = 29) and NMs (n = 18) underwent semi -structured interviews asking 1) about their illness understanding; 2) to identify NMs with whom OAs discuss health-related matters; and 3) to describe the content, process, and impact of those illness-related conversations. Three coders analyzed transcribed interviews. Codes were categorized and emergent themes were identified to generate hypotheses. Results: OAs seek NMs with medical backgrounds for cancer-related information and NMs with personal expe-rience of a serious illness for emotional support. Patients characterize geographical location, frequency of communication, and length of NM relationship as factors that influence the nature of support the NM provides. Additionally, differences emerged between OA and NM perspectives on the depth of conversations and decision -making. Conclusions: A better characterization of how OAs' seek and share information and support may improve medical communication, disease understanding, and support goals-concordant care.
引用
收藏
页码:3116 / 3122
页数:7
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