Stigmatization and Quality of Life in Patients with Psoriasis

被引:49
|
作者
Jankowiak, Barbara [1 ]
Kowalewska, Beata [1 ]
Krajewska-Kulak, Elzbieta [1 ]
Khvorik, Dzmitry F. [2 ]
机构
[1] Med Univ Bialystok, Dept Integrated Med Care, Bialystok, Poland
[2] Med Univ Grodno, Dept Dermatovenerol, Grodno, BELARUS
关键词
Psoriasis; Quality of life; Stigmatization; SELF-STIGMA; DISCRIMINATION; EXPERIENCES; DERMATOLOGY; OUTPATIENTS; EMPOWERMENT; SYMPTOMS; ILLNESS; SCALE;
D O I
10.1007/s13555-020-00363-1
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Introduction: Each dermatological condition associated with the presence of visible skin lesions can evoke the following psychological response of the patient: shame, anxiety, anger, or even depression. Psoriasis may additionally be a cause of social rejection, which significantly impairs a patient's private life and social functioning, and may contribute to stigmatization, alienation, and deterioration of their quality of life. The aim of the study was to determine the level of stigmatization and the quality of life of persons with psoriasis in relation to sociodemographic characteristics. Methods: The study, which included 166 patients with plaque psoriasis, was carried out with the 33-item Feelings of Stigmatization Questionnaire, Dermatology Life Quality Index (DLQI), and a dedicated sociodemographic survey. Results: Compared with women, men had higher stigmatization scores in the ``Feeling of being flawed'' domain (p = 0.0362), and patients up to 30 years of age scored higher on the ``Guilt and shame'' domain (Xx = 17.1 points) than those older than 30 years ( x = 14.6 points). Also, persons with visible skin lesions presented with higher stigmatization levels in the ``Guilt and shame'' domain than those without (p = 0.0028). Quality of life in persons with psoriasis did not depend on sociodemographic parameters but correlated significantly with two stigmatization domains, ``Sensitivity to the opinions of others'' (R = 0.31; p = 0.0030) and ``Positive attitudes'' (R = 0.27; p = 0.0115). Conclusions: As stigmatization is a social problem, only greater social awareness of psoriasis may contribute to better understanding and broader acceptance of patients with this dermatosis. To help them to cope with the stigmatization and hence to improve their quality of life, persons with psoriasis should be provided with psychological counselling.
引用
收藏
页码:285 / 296
页数:12
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