Implementing compassion in pediatric healthcare: A qualitative study of Canadian patients', parents', and healthcare providers' perspectives

被引:6
|
作者
Sinclair, Shane [1 ,2 ,3 ]
Jaggi, Priya [1 ,2 ]
Bouchal, Shelley Raffin [1 ]
Kuhn, Susan [4 ]
Schulte, Fiona [5 ]
Guilcher, Gregory M. T. [3 ,4 ]
Rapoport, Adam [6 ,7 ,8 ]
Punnett, Angela [6 ,9 ]
Fernandez, Conrad, V [10 ]
Letourneau, Nicole [1 ]
Chung, Joanna [11 ]
机构
[1] Univ Calgary, Fac Nursing, 2500 Univ Dr NW, Calgary, AB T2N 1N4, Canada
[2] Univ Calgary, Compass Res Lab, 2500 Univ Dr NW, Calgary, AB T2N 1N4, Canada
[3] Univ Calgary, Cumming Sch Med, Dept Oncol, 2500 Univ Dr NW, Calgary, AB T2N 1N4, Canada
[4] Univ Calgary, Alberta Childrens Hosp, Cumming Sch Med, Dept Pediat, Calgary, AB, Canada
[5] Univ Calgary, Alberta Childrens Hosp, Hematol Oncol & Transplant Program, Div Psychosocial Oncol,Cumming Sch Med,Dept Oncol, 2202 2 St SW, Calgary, AB T2S 3C3, Canada
[6] Univ Toronto, Dept Paediat, Toronto, ON, Canada
[7] Univ Toronto, Dept Family & Community Med, Toronto, ON, Canada
[8] Emilys House Children Hosp, Toronto, ON, Canada
[9] SickKids, Div Paediat Haematol Oncol, Toronto, ON, Canada
[10] Dalhousie Univ, IWK Hlth Ctr, Dept Pediat, Halifax, NS, Canada
[11] British Columbia Childrens Hosp, Med Psychol & Hematol Oncol BMT Program, Vancouver, BC, Canada
关键词
Compassion; Pediatric; System; Implementation; Operationalization; Quality care; OF-LIFE CARE; KNOWLEDGE TRANSLATION; VALUING FEEDBACK; SERVICE PROGRAM; PERCEPTIONS; PROFESSIONALS; SATISFACTION; LEADERSHIP; HEARING; NURSES;
D O I
10.1016/j.pedn.2021.08.001
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Background: Compassion has received significant scholarly attention over the past decade. Research has been largely theoretical, with interventions focused on self-care practices of healthcare providers (HCPs), rather than implementation at a systems level. This study aimed to identify how compassion can be operationalized within pediatric healthcare. Design and methods: Data was analyzed from a secondary dataset of a larger Straussian grounded theory study of perspectives and experiences of compassion in pediatric healthcare. Patients (n = 33); parents (n = 16); and HCPs (n = 17) were asked specifically how compassion could be implemented within the clinical culture and healthcare system. Results: 66 participants generated an operational model of compassion indicating how compassion could be implemented across the organization and larger healthcare system. The data revealed four themes and associated subthemes: teach and train; recognize and reward; measure and report; and embed compassion across the healthcare system. Conclusions: Improving compassion in pediatric healthcare needs to extend beyond the efforts of individual HCPs. Compassion is the responsibility of the entire healthcare system and needs to traverse the patient and family experience. In addition to embedding compassion in policy, procedures, practice, and education, compassion should be considered a performance indicator that is measured and reported. Practice implications: This study provides a preliminary framework for organizational leaders to operationalize compassion across the services, structures, polices, procedures and practices of pediatric healthcare. This includes ongoing compassion training across the organization; assessing compassion, recognizing compassion as a performance indicator, and ensuring that the infrastructure and ancillary services of the organization reflect compassion. (c) 2021 Elsevier Inc. All rights reserved.
引用
收藏
页码:E103 / E112
页数:10
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