Implementing compassion in pediatric healthcare: A qualitative study of Canadian patients', parents', and healthcare providers' perspectives

被引:6
|
作者
Sinclair, Shane [1 ,2 ,3 ]
Jaggi, Priya [1 ,2 ]
Bouchal, Shelley Raffin [1 ]
Kuhn, Susan [4 ]
Schulte, Fiona [5 ]
Guilcher, Gregory M. T. [3 ,4 ]
Rapoport, Adam [6 ,7 ,8 ]
Punnett, Angela [6 ,9 ]
Fernandez, Conrad, V [10 ]
Letourneau, Nicole [1 ]
Chung, Joanna [11 ]
机构
[1] Univ Calgary, Fac Nursing, 2500 Univ Dr NW, Calgary, AB T2N 1N4, Canada
[2] Univ Calgary, Compass Res Lab, 2500 Univ Dr NW, Calgary, AB T2N 1N4, Canada
[3] Univ Calgary, Cumming Sch Med, Dept Oncol, 2500 Univ Dr NW, Calgary, AB T2N 1N4, Canada
[4] Univ Calgary, Alberta Childrens Hosp, Cumming Sch Med, Dept Pediat, Calgary, AB, Canada
[5] Univ Calgary, Alberta Childrens Hosp, Hematol Oncol & Transplant Program, Div Psychosocial Oncol,Cumming Sch Med,Dept Oncol, 2202 2 St SW, Calgary, AB T2S 3C3, Canada
[6] Univ Toronto, Dept Paediat, Toronto, ON, Canada
[7] Univ Toronto, Dept Family & Community Med, Toronto, ON, Canada
[8] Emilys House Children Hosp, Toronto, ON, Canada
[9] SickKids, Div Paediat Haematol Oncol, Toronto, ON, Canada
[10] Dalhousie Univ, IWK Hlth Ctr, Dept Pediat, Halifax, NS, Canada
[11] British Columbia Childrens Hosp, Med Psychol & Hematol Oncol BMT Program, Vancouver, BC, Canada
关键词
Compassion; Pediatric; System; Implementation; Operationalization; Quality care; OF-LIFE CARE; KNOWLEDGE TRANSLATION; VALUING FEEDBACK; SERVICE PROGRAM; PERCEPTIONS; PROFESSIONALS; SATISFACTION; LEADERSHIP; HEARING; NURSES;
D O I
10.1016/j.pedn.2021.08.001
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Background: Compassion has received significant scholarly attention over the past decade. Research has been largely theoretical, with interventions focused on self-care practices of healthcare providers (HCPs), rather than implementation at a systems level. This study aimed to identify how compassion can be operationalized within pediatric healthcare. Design and methods: Data was analyzed from a secondary dataset of a larger Straussian grounded theory study of perspectives and experiences of compassion in pediatric healthcare. Patients (n = 33); parents (n = 16); and HCPs (n = 17) were asked specifically how compassion could be implemented within the clinical culture and healthcare system. Results: 66 participants generated an operational model of compassion indicating how compassion could be implemented across the organization and larger healthcare system. The data revealed four themes and associated subthemes: teach and train; recognize and reward; measure and report; and embed compassion across the healthcare system. Conclusions: Improving compassion in pediatric healthcare needs to extend beyond the efforts of individual HCPs. Compassion is the responsibility of the entire healthcare system and needs to traverse the patient and family experience. In addition to embedding compassion in policy, procedures, practice, and education, compassion should be considered a performance indicator that is measured and reported. Practice implications: This study provides a preliminary framework for organizational leaders to operationalize compassion across the services, structures, polices, procedures and practices of pediatric healthcare. This includes ongoing compassion training across the organization; assessing compassion, recognizing compassion as a performance indicator, and ensuring that the infrastructure and ancillary services of the organization reflect compassion. (c) 2021 Elsevier Inc. All rights reserved.
引用
收藏
页码:E103 / E112
页数:10
相关论文
共 50 条
  • [1] Compassion training in healthcare: what are patients' perspectives on training healthcare providers?
    Sinclair, Shane
    Torres, Mia-Bernadine
    Raffin-Bouchal, Shelley
    Hack, Thomas F.
    McClement, Susan
    Hagen, Neil A.
    Chochinov, Harvey M.
    [J]. BMC MEDICAL EDUCATION, 2016, 16
  • [2] Compassion training in healthcare: what are patients’ perspectives on training healthcare providers?
    Shane Sinclair
    Mia-Bernadine Torres
    Shelley Raffin-Bouchal
    Thomas F. Hack
    Susan McClement
    Neil A. Hagen
    Harvey M. Chochinov
    [J]. BMC Medical Education, 16
  • [3] Parents' Experiences Discussing Pediatric Vaccination with Healthcare Providers: A Survey of Canadian Naturopathic Patients
    Busse, Jason W.
    Walji, Rishma
    Wilson, Kumanan
    [J]. PLOS ONE, 2011, 6 (08):
  • [4] Healthcare providers perspectives on compassion training: a grounded theory study
    Shane Sinclair
    Thomas F. Hack
    Susan McClement
    Shelley Raffin-Bouchal
    Harvey Max Chochinov
    Neil A. Hagen
    [J]. BMC Medical Education, 20
  • [5] Healthcare providers perspectives on compassion training: a grounded theory study
    Sinclair, Shane
    Hack, Thomas F.
    McClement, Susan
    Raffin-Bouchal, Shelley
    Chochinov, Harvey Max
    Hagen, Neil A.
    [J]. BMC MEDICAL EDUCATION, 2020, 20 (01)
  • [6] COMPASSION FATIGUE AMONG PEDIATRIC HEALTHCARE PROVIDERS
    Branch, Carole
    Klinkenberg, Dean
    [J]. MCN-THE AMERICAN JOURNAL OF MATERNAL-CHILD NURSING, 2015, 40 (03) : 160 - 166
  • [7] Patients' and healthcare providers' perspectives of diabetes management in Cambodia: a qualitative study
    Nang, Ei Ei Khaing
    Dary, Chhavarath
    Hsu, Li Yang
    Sor, Sokrath
    Saphonn, Vonthanak
    Evdokimov, Konstantin
    [J]. BMJ OPEN, 2019, 9 (11):
  • [8] Chronic pain after pediatric surgery: A qualitative study with children, parents, and healthcare providers
    Rabbitts, J.
    Aaron, R.
    Fisher, E.
    Lang, E.
    Bridgwater, C.
    Tai, G.
    Palermo, T.
    [J]. JOURNAL OF PAIN, 2017, 18 (04): : S1 - S1
  • [9] What are healthcare providers' understandings and experiences of compassion? The healthcare compassion model: a grounded theory study of healthcare providers in Canada
    Sinclair, Shane
    Hack, Thomas F.
    Raffin-Bouchal, Shelley
    McClement, Susan
    Stajduhar, Kelli
    Singh, Pavneet
    Hagen, Neil A.
    Sinnarajah, Aynharan
    Chochinov, Harvey Max
    [J]. BMJ OPEN, 2018, 8 (03):
  • [10] Patients' perspectives and the perceptions of healthcare providers in the treatment of early rectal cancer; a qualitative study
    Smits, Lisanne J. H.
    van Lieshout, Annabel S.
    Debets, Saskia
    Spoor, Sacha
    Moons, Leon M. G.
    Peeters, Koen C. M. J.
    van Oostendorp, Stefan E.
    Damman, Olga C.
    Janssens, Rien J. P. A.
    Lameris, Wytze
    van Grieken, Nicole C. T.
    Tuynman, Jurriaan B.
    [J]. BMC CANCER, 2023, 23 (01)