Collection and transfer of data: the AIEOP model

被引：16
|
作者：
Pession, A. [1 ]
Rondelli, R. [1 ]
机构：
[1] Univ Bologna, Policlin St Orsola Malpighi, Pediat Clin, Bologna, Italy
来源：
BONE MARROW TRANSPLANTATION | 2008年 / 41卷 / Suppl 2期
关键词：
Advanced Multicenter Research; information based medicine; data management; pediatric hematology-oncology;
D O I：
10.1038/bmt.2008.52
中图分类号：
Q6 [生物物理学];
学科分类号：
071011 ;
摘要：
Advanced Multicenter Research (AMR) is a Web-based information technology infrastructure, fully integrated to manage every single part of a clinical trial, but with 'independent' and 'customizable' components to wholly meet each team's requirements. The AIEOP group utilizes AMR for the management and analyses of the majority of the expected nationwide oncology cases and the most common primary immunodeficiencies, and for all the AIEOP protocols, studies and registries centralized at the AIEOP Operation Office. Standard for data quality control is applied to each AIEOP database according to the AMR standard procedures. The AMR AIEOP network represents a model of Information Based Medicine, a crucial tool for well-informed pediatricians, essential to guarantee better childcare in a setting of patients such as children with cancer.
引用
收藏
页码：S35 / S38
页数：4
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