Presenting Palliative Care Units and Specialized Outpatient Palliative Care Teams on the Internet - a Corpus-Based Meta-Analysis of Websites

被引:2
|
作者
Peters, Joachim [1 ]
Dykes, Natalie [2 ]
Heckel, Maria [3 ,4 ]
Ostgathe, Christoph [3 ,4 ]
Habermann, Mechthild [1 ]
机构
[1] Friedrich Alexander Univ Erlangen Nurnberg, Lehrstuhl Germanist Sprachwissensch, Bismarckstr 1, D-91054 Erlangen, Germany
[2] Friedrich Alexander Univ Erlangen Nurnberg, Lehrstuhl Korpus & Comp Linguist, Erlangen, Germany
[3] Friedrich Alexander Univ Erlangen Nurnberg, Palliativmed Abt, Univ Klinikum Erlangen, Erlangen, Germany
[4] Comprehens Canc Ctr CCC Erlangen EMN, Erlangen, Germany
来源
ZEITSCHRIFT FUR PALLIATIVMEDIZIN | 2022年 / 23卷 / 01期
关键词
specialist palliative care; palliative medicine; information; general public; applied linguistics; OBSTRUCTIVE PULMONARY-DISEASE; HEALTH-CARE; NONCANCER PATIENTS; CANCER; SYMPTOMS; PREVALENCE; TIME;
D O I
10.1055/a-1689-7524
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background Websites play an important role in providing information about palliative services; both for patients, relatives and interested laypersons. Method We analysed 488 websites from Wegweiser Palliativmedizin (31.7.2019; 242 inpatient services; 246 were outpatient services). We use statistical keywords and manual queries to explore descriptions of the services and frequently named symptoms. Results Both types websites contain general information on palliative medicine and more specific information on the sort of care units in question. Differences between in- and outpatient units relate to the way that professionality aspects are portrayed. Discussion The websites describe a narrow spectrum of diseases (cancer) and symptoms (pain, shortness of breath, nausea), which hardly matches the current academic discourse including e. g. neuro-degenerative conditions and psycho-social symptoms. Conclusion We propose that the sites could be extended with this information in order to enable patients and relatives to relate the services to their own situation and to more comprehensively depict the scope of palliative medicine.
引用
收藏
页码:46 / 53
页数:8
相关论文
共 50 条
  • [21] Differential Family Experience of Palliative Sedation Therapy in Specialized Palliative or Critical Care Units
    Shen, Hui-Shan
    Chen, Szu-Yin
    Cheung, Denise Shuk Ting
    Wang, Shu-Yi
    Lee, Jung Jae
    Lin, Chia-Chin
    [J]. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2018, 55 (06) : 1531 - 1539
  • [22] Integrated outpatient palliative care for patients with advanced cancer: A systematic review and meta-analysis
    Fulton, Jessica J.
    LeBlanc, Thomas W.
    Cutson, Toni M.
    Starr, Kathryn N. Porter
    Kamal, Arif
    Ramos, Katherine
    Freiermuth, Caroline E.
    McDuffie, Jennifer R.
    Kosinski, Andrzej
    Adam, Soheir
    Nagi, Avishek
    Williams, John W.
    [J]. PALLIATIVE MEDICINE, 2019, 33 (02) : 123 - 134
  • [23] Medical Care Analysis of Oncological and Non-Oncological Palliative Care Patients in Specialized Palliative Home Care
    Geist, Marcus J. P.
    Kessler, Jens
    Bardenheuer, Hubert J.
    [J]. ZEITSCHRIFT FUR PALLIATIVMEDIZIN, 2018, 19 (03): : 149 - 155
  • [24] Specialized Outpatient Palliative Care: Results of a Cross-Sectional Study
    Weckbecker, Klaus
    Puth, Marie-Therese
    Just, Johannes Maximilian
    Horn, Kirsten
    Grabenhorst, Ulrich
    Porz, Johannes
    [J]. GESUNDHEITSWESEN, 2021, 83 (12) : 993 - 997
  • [25] SAPV - specialized outpatient Palliative care from radiooncological Involvement in Recklinghausen
    Riesenbeck, D.
    Reimann, P.
    [J]. STRAHLENTHERAPIE UND ONKOLOGIE, 2011, 187 : 88 - 89
  • [26] Effectiveness of a Specialized Outpatient Palliative Care Service as Experienced by Patients and Caregivers
    Groh, Gesa
    Vyhnalek, Birgit
    Feddersen, Berend
    Fuehrer, Monika
    Borasio, Gian Domenico
    [J]. JOURNAL OF PALLIATIVE MEDICINE, 2013, 16 (08) : 848 - 856
  • [27] Introduction of ethical Basis Assessments in Specialized palliative care in the outpatient in Augsburg
    Eichner, Eckhard
    Fischer, Josef
    Strauss, Michael
    [J]. ETHIK IN DER MEDIZIN, 2012, 24 (01) : 67 - 76
  • [28] Symptom burden at presentation to outpatient palliative care and home-based palliative care.
    Haupt, E. C.
    Padilla, A.
    Sharma, I.
    Andres, G.
    Khang, P.
    Reich, S.
    Nguyen, H. Q.
    [J]. JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2020, 68 : S63 - S63
  • [29] Assessing Structure and Process of Hospital-Based Palliative Care Consult Teams: the Palliative Care Index
    Courage, Cheryl
    Zalenski, Robert
    Edelen, Alexandra
    [J]. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2013, 45 (02) : 426 - 426
  • [30] Palliative care in heart failure: a systematic review and meta-analysis
    Liao, C. T. Chia-Te
    Kuo, F. H.
    Liu, S. L.
    Lee, M. C.
    Lai, H. Y.
    Kung, S. C.
    Tai, W. C.
    Weng, T. C.
    Ko, P. L.
    Toh, H. S.
    Chen, Z. C.
    [J]. EUROPEAN JOURNAL OF HEART FAILURE, 2020, 22 : 165 - 165