Efficient Clinical Counseling for Sickle Cell Disease

被引:0
|
作者
Morrone, Kerry A. [1 ,2 ]
Manwani, Deepa [1 ,2 ]
Cabana, Michael D. [1 ,2 ]
机构
[1] Childrens Hosp Montefiore, Dept Pediat, Bronx, NY USA
[2] Albert Einstein Coll Med, Bronx, NY 10467 USA
关键词
Sickle cell anemia; Adherence; Counseling; Coach; Communication; HYDROXYUREA USE; YOUNG-CHILDREN; ACTION PLAN; MANAGEMENT; ANEMIA; ASTHMA; TRIAL; COMMUNICATION; CONSULTATION; ADOLESCENTS;
D O I
10.1016/j.jnma.2021.01.006
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Sickle cell anemia (SCA) is a chronic illness that requires frequent health care visits for preventative management. Adherence to national guidelines such as the National Heart Lung and Blood Institute (NHLBI) Expert Panel Report on the Evidence-Based Management of Sickle Cell Disease can be challenging to both the clinician and the patient. Utilizing effective communication strategies with patients and their families can improve clinician/patient relationships, as well as adherence to national guidelines. Aims of this overview are to review challenges faced in outpatient subspecialty medicine and describe evidence-based techniques for more effective communication for patients with sickle cell anemia.
引用
下载
收藏
页码:382 / 387
页数:6
相关论文
共 50 条
  • [31] Genetic counseling in sickle cell disease: Insights from the Indian tribal population
    Pooja Aggarwal
    Deepa Bhat
    Journal of Community Genetics, 2023, 14 : 345 - 353
  • [32] PERCEIVED COUNSELING REGARDING CONTRACEPTION AND PREGNANCY AMONG WOMEN WITH SICKLE CELL DISEASE
    Martin, C.
    Segall-Gutierrez, P.
    Corley, P.
    Opper, N.
    Mishell, D.
    Johnson, C.
    CONTRACEPTION, 2012, 86 (03) : 306 - 306
  • [33] SICKLE-CELL DISEASE - SCREENING, DIAGNOSIS, MANAGEMENT AND COUNSELING IN NEWBORNS AND INFANTS
    MOORE, SR
    JOURNAL OF THE ROYAL SOCIETY OF HEALTH, 1993, 113 (03): : 155 - 155
  • [34] Barriers and Facilitators of Premarital Genetic Counseling for Sickle Cell Disease in Northern Nigeria
    Galadanci, Aisha A.
    Estepp, Jeremie H.
    Khan, Hamda
    Farouk, Zubaida L.
    Caroll, Yvonne
    Hodges, Jason
    Yarima, Sabiu
    Ibrahim, Umma A.
    Idris, Ibrahim M.
    Gambo, Awwal
    Hussaini, Nafiu
    Mukaddas, Aisha
    DeBaun, Michael R.
    Galadanci, Najibah A.
    JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY, 2023, 45 (06) : E716 - E722
  • [35] FERTILITY AND REPRODUCTIVE HEALTH COUNSELING FOR ADOLESCENTS AND YOUNG ADULTS WITH SICKLE CELL DISEASE
    Reich, Jenna
    Stanek, Charis
    Theroux, Charleen I.
    Walsh, Madeleine
    Peng, Lulu
    Marty, Lindsay
    Dahiya, Asha K.
    Creary, Susan E.
    Nahata, Leena
    Quinn, Gwendolyn P.
    FERTILITY AND STERILITY, 2022, 118 (04) : E69 - E69
  • [36] Three decades of innovation in the management of sickle cell disease: the road to understanding the sickle cell disease clinical phenotype
    Bonds, DR
    BLOOD REVIEWS, 2005, 19 (02) : 99 - 110
  • [37] Frequency of sickle cell genotype among the Yorubas in Lagos: Implications for the level of awareness and genetic counseling for sickle cell disease in Nigeria
    Taiwo I.A.
    Oloyede O.A.
    Dosumu A.O.
    Journal of Community Genetics, 2011, 2 (1) : 13 - 18
  • [38] Sickle cell Disease, Sickle Cell Trait and Other Hemoglobinopathies, Excluding Thalassemias: Clinical and Epidemiological
    O'Brien, Sndrew Ross Wickman
    Fujiki, Robert Brinton
    BLOOD, 2023, 142
  • [39] Clinical Complications in Adult Patients with Sickle Cell Anemia and β-Thalassemia-Sickle Cell Disease
    Graziadei, Giovanna
    Marcon, Alessia
    Soldarini, Martina
    Gandolfi, Ilaria
    Ronzoni, Luisa
    Giuditta, Marianna
    Ridolfi, Pietro
    Cappellini, Maria Domenica
    BLOOD, 2012, 120 (21)
  • [40] Sickle Cell Disease: Clinical-Pathological Correlation
    Correa Saavedra, Maria Antonia
    ARCHIVOS DE MEDICINA, 2019, 19 (01):