Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities

被引：1

作者：

Wissing, Maureen B. G. ^{[1
,2
,3
,4
,5
]}

Dijkstra, Roos ^{[4
,6
]}

van der Wal, Ina A. ^{[4
]}

Grootendorst, Esther S. ^{[7
]}

Hobbelen, Johannes S. M. ^{[3
,8
]}

van der Putten, Annette A. J. ^{[5
,9
]}

De Deyn, Peter P. ^{[1
,2
,10
,11
,12
]}

Waninge, Aly ^{[3
,5
,13
,14
]}

Dekker, Alain D. ^{[1
,2
,4
]}

机构：

[1] Univ Groningen, Univ Med Ctr Groningen, Dept Neurol, Groningen, Netherlands

[2] Univ Groningen, Univ Med Ctr Groningen, Alzheimer Ctr, Groningen, Netherlands

[3] Hanze Univ Appl Sci, Res Grp Hlth Ageing Allied Hlth Care & Nursing, Groningen, Netherlands

[4] Alliade, Dept Practice Oriented Sci Res PWO, Heerenveen, Netherlands

[5] Acad Collaborat Ctr PIMD, Groningen, Netherlands

[6] S Heeren Loo Advisium, Amersfoort, Netherlands

[7] Ipse Bruggen, Zwammerdam Nieuwveen Noo, Netherlands

[8] Univ Groningen, Univ Med Ctr Groningen, Dept Gen Practice & Elderly Care Med, Groningen, Netherlands

[9] Univ Groningen, Fac Behav & Social Sci, Dept Inclus & Special Needs Educ, Groningen, Netherlands

[10] Univ Antwerp, Lab Neurochem & Behav, Antwerp, Belgium

[11] Hosp Network Antwerp ZNA Middelheim & Hoge Beuken, Dept Neurol, Antwerp, Belgium

[12] Hosp Network Antwerp ZNA Middelheim & Hoge Beuken, Memory Clin, Antwerp, Belgium

[13] Univ Groningen, Univ Med Ctr Groningen, Dept Hlth Psychol, Groningen, Netherlands

[14] Royal Dutch Visio, Vries, Netherlands

来源：

JOURNAL OF MENTAL HEALTH RESEARCH IN INTELLECTUAL DISABILITIES | 2022年

关键词：

Dementia; intellectual disabilities; severe; profound intellectual (and multiple) disabilities; Down syndrome; instruments; DOWN-SYNDROME; ALZHEIMERS-DISEASE; PSYCHOLOGICAL SYMPTOMS; MENTAL-RETARDATION; OLDER-ADULTS; NEUROPSYCHOLOGICAL ASSESSMENT; LEARNING-DISABILITY; MOTOR DISABILITIES; COGNITIVE DECLINE; BEHAVIOR CHANGES;

D O I：

10.1080/19315864.2022.2111737

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

Introduction Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia screening instruments. Methods Informant interviews about 40 people with SPI(M)D were conducted to identify applicable items in the Dementia Scale for Down Syndrome, Behavioral and Psychological Symptoms of Dementia in Down Syndrome II scale, Dementia Questionnaire for persons with Mental Retardation and Social competence Rating scale for people with Intellectual Disabilities. Results Among 193 items, 101 items were found applicable, categorized in 5 domains: behavioral and psychological functioning (60 items), cognitive functioning (25), motor functioning (6), activities of daily living (5) and medical comorbidities (5). Conclusion Identifying applicable items for people with SPI(M)D is an essential step in developing a dedicated dementia screening instrument for this population.

引用

页码：322 / 363

页数：42

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