Management of People With a Fontan Circulation: a Cardiac Society of Australia and New Zealand Position Statement

被引：39

作者：

Zentner, Dominica ^{[1
,2
,3
]}

Celermajer, David S. ^{[4
,5
]}

Gentles, Thomas ^{[6
]}

d'Udekem, Yves ^{[2
,7
,8
]}

Ayer, Julian ^{[9
,10
]}

Blue, Gillian M. ^{[9
,10
]}

Bridgman, Cameron ^{[11
]}

Burchill, Luke ^{[1
,12
]}

Cheung, Michael ^{[2
,8
,13
]}

Cordina, Rachael ^{[4
,10
]}

Culnane, Evelyn ^{[14
]}

Davis, Andrew ^{[2
,8
,13
]}

du Plessis, Karin ^{[2
,8
]}

Eagleson, Karen ^{[15
,16
]}

Finucane, Kirsten ^{[6
]}

Frank, Belinda ^{[17
,18
]}

Greenway, Sebastian ^{[6
]}

Grigg, Leeanne ^{[1
,12
]}

Hardikar, Winita ^{[2
,8
,19
]}

Hornung, Tim ^{[6
]}

Hynson, Jenny ^{[8
,20
]}

Iyengar, Ajay J. ^{[2
,7
,8
]}

James, Paul ^{[3
,21
]}

Justo, Robert ^{[15
,16
]}

Kalman, Jonathan ^{[1
,12
]}

Kasparian, Nadine ^{[9
,22
]}

Le, Brian ^{[12
,23
]}

Marshall, Kate ^{[9
,22
]}

Mathew, Jacob ^{[2
,13
]}

McGiffin, David ^{[24
,25
]}

McGuire, Mark ^{[4
,10
]}

Monagle, Paul ^{[2
,8
,26
]}

Moore, Ben ^{[4
,10
]}

Neilsen, Julie ^{[27
]}

O'Connor, Bernadette ^{[28
]}

O'Donnell, Clare ^{[6
]}

Pflaumer, Andreas ^{[2
,8
,13
]}

Rice, Kathryn ^{[6
]}

Sholler, Gary ^{[9
,10
]}

Skinner, Jonathan R. ^{[6
]}

Sood, Siddharth ^{[12
,29
]}

Ward, Juliet ^{[1
]}

Weintraub, Robert ^{[2
,8
,13
]}

Wilson, Tom ^{[2
,8
]}

Wilson, William ^{[1
,12
]}

Winlaw, David ^{[5
,9
]}

Wood, Angela ^{[13
,30
]}

机构：

[1] Royal Melbourne Hosp, Dept Cardiol, Melbourne, Vic, Australia

[2] Murdoch Childrens Res Inst, Melbourne, Vic, Australia

[3] Royal Melbourne Hosp, Dept Genom Med, Melbourne, Vic, Australia

[4] Royal Prince Alfred Hosp, Dept Cardiol, Sydney, NSW, Australia

[5] Univ Sydney, Fac Med & Hlth, Sydney, NSW, Australia

[6] Starship Childrens Hosp, Paediat & Congenital Cardiac Serv, Auckland, New Zealand

[7] Royal Childrens Hosp, Dept Cardiac Surg, Melbourne, Vic, Australia

[8] Univ Melbourne, Dept Paediat, Melbourne, Vic, Australia

[9] Sydney Childrens Hosp Network, Heart Ctr Children, Sydney, NSW, Australia

[10] Univ Sydney, Sydney Med Sch, Sydney, NSW, Australia

[11] Flinders Med Ctr, Dept Cardiol, Adelaide, SA, Australia

[12] Univ Melbourne, Dept Med, Melbourne, Vic, Australia

[13] Royal Childrens Hosp, Dept Cardiol, Melbourne, Vic, Australia

[14] Royal Childrens Hosp, Transit Support Serv, Melbourne, Vic, Australia

[15] Univ Queensland, Fac Med, Brisbane, Qld, Australia

[16] Childrens Hlth Queensland, Queensland Paediat Cardiac Res, Brisbane, Qld, Australia

[17] Australian & New Zealand Fontan Advocacy Comm, Parkville, Vic, Australia

[18] Australian & New Zealand Fontan Advocacy Comm, Auckland, New Zealand

[19] Royal Childrens Hosp, Dept Gastroenterol & Clin Nutr, Melbourne, Vic, Australia

[20] Royal Childrens Hosp, Victorian Paediat Palliat Care Program, Melbourne, Vic, Australia

[21] Univ Melbourne, Dept Pathol, Melbourne, Vic, Australia

[22] Univ New South Wales, Sch Womens & Childrens Hlth, UNSW Med, Discipline Paediat, Sydney, NSW, Australia

[23] Royal Melbourne Hosp, Palliat Care, Melbourne, Vic, Australia

[24] Alfred Hlth, Dept Cardiothorac Surg, Melbourne, Vic, Australia

[25] Monash Univ, Dept Surg, Melbourne, Vic, Australia

[26] Royal Childrens Hosp, Dept Haematol, Melbourne, Vic, Australia

[27] Heart Kids NZ, Auckland, New Zealand

[28] Royal Childrens Hosp, Allied Hlth, Melbourne, Vic, Australia

[29] Royal Melbourne Hosp, Dept Gastroenterol & Hepatol, Melbourne, Vic, Australia

[30] Congenital Heart Alliance Australia & New Zealand, Melbourne, Vic, Australia

来源：

HEART LUNG AND CIRCULATION | 2020年 / 29卷 / 01期

关键词：

CONGENITAL HEART-DISEASE; PROTEIN-LOSING ENTEROPATHY; QUALITY-OF-LIFE; TOTAL CAVOPULMONARY CONNECTION; INTRAATRIAL REENTRANT TACHYCARDIA; ANGIOTENSIN RECEPTOR BLOCKADE; PULMONARY VASCULAR-RESISTANCE; EXPERT CONSENSUS STATEMENT; VENTRICULAR ASSIST DEVICE; HIGH-DOSE SPIRONOLACTONE;

D O I：

10.1016/j.hlc.2019.09.010

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

The Fontan circulation describes the circulatory state resulting from an operation in congenital heart disease where systemic venous return is directed to the lungs without an intervening active pumping chamber. As survival increases, so too does recognition of the potential health challenges. This document aims to allow clinicians, people with a Fontan circulation, and their families to benefit from consensus agreement about management of the person with a Fontan circulation. The document was crafted with input from a multidisciplinary group of health care providers as well as individuals with a Fontan circulation and families. It is hoped that the shared common vision of long-term wellbeing will continue to drive improvements in care and quality of life in this patient population and eventually translate into improved survival.

引用

页码：5 / 39

页数：35

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