Exploring the Advocacy Experiences of Military Families with Children Who Have Disabilities

被引:2
|
作者
Aleman-Tovar, Janeth [1 ]
Schraml-Block, Kristen [1 ]
DiPietro-Wells, Robyn [2 ]
Burke, Meghan [1 ]
机构
[1] Univ Illinois, 1310 S 6th St,288 Educ Bldg, Champaign, IL 61820 USA
[2] 149 Childrens Res Ctr,51 E Gerry, Champaign, IL 61820 USA
关键词
Military families; Qualitative; Parent advocacy; Disability; AUTISM SPECTRUM DISORDER; PARENT ADVOCACY; NEEDS; SERVICES; IMPACT; HOME;
D O I
10.1007/s10826-021-02161-5
中图分类号
D669 [社会生活与社会问题]; C913 [社会生活与社会问题];
学科分类号
1204 ;
摘要
When children with disabilities receive appropriate services, they experience long-term developmental benefits. Yet, military families of children with disabilities in the United States report lacking access to needed services and having difficulty navigating service delivery systems. Unlike civilian families, military families face added stressors such as deployment and relocation. Parent advocacy may be critical for military families of children with disabilities to access needed services. However, little research has explored advocacy among military families. The purpose of this exploratory study was to examine the advocacy experiences of military families of children with disabilities. Using a snowballing sampling, we conducted individual interviews with 11 military parents of children with disabilities from five states. Participants reported unique military experiences (e.g., satisfaction with the coverage of their healthcare program but had difficulty navigating healthcare policies), barriers to advocacy (e.g., limited school resources), and facilitators to advocacy (e.g., perseverance and resilience). Based on the findings, implications for practice and research are discussed.
引用
收藏
页码:843 / 853
页数:11
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