The impact on activity of relatives and those affected with rare diseases during the Covid-19 lockdown in Spain

The Covid-19 pandemic has evolved into a health crisis with far-reaching repercussions. Healthcare for rare diseases (RD) has been affected by the changes deriving from the measures put in place for such management. In this article we analyse the impact of a strict lockdown on the services and activity of those entities associated with such diseases. A total of 81 RD entities in Spain participated in the study. The results show a negative effect on the number of activities and services performed by these entities during this period of time, both as a consequence of eliminating such activities and services and also on account of the changes undertaken in order to carry them out.