Adapting Disability Research Methods and Practices During the Covid-19 Pandemic: Experiences from the Field

被引:6
|
作者
Banks, Lena Morgon [1 ]
Willan, Samantha [2 ]
Inglis-Jassiem, Gakeemah [3 ]
Dunkle, Kristin [2 ]
Ganle, John [4 ]
Shakespeare, Tom [1 ]
Khan, Rifat Shahpar [5 ]
Hameed, Shaffa [1 ]
Machisa, Mercilene [2 ]
Watson, Nicholas [6 ]
Carpenter, Bradley [2 ,7 ]
Smythe, Tracey [1 ]
Mthethwa, Nomfundo [2 ]
Seketi, Queen [8 ]
Wilbur, Jane [1 ]
Nzuza, Ayanda [2 ]
Ilkkursun, Zeynep [9 ]
Tetali, Shailaja [10 ]
Huq, Lopita [5 ]
Clyde, Amanda [2 ]
Hanass-Hancock, Jill [2 ,7 ]
机构
[1] London Sch Hyg & Trop Med, Int Ctr Evidence Disabil, London, England
[2] South African Med Res Council, Gender & Hlth Res Unit, Cape Town, South Africa
[3] Stellenbosch Univ, Dept Hlth & Rehabil Sci, Stellenbosch, South Africa
[4] Univ Ghana, Accra, Ghana
[5] BRAC Univ, BRAC Inst Governance & Dev, Dhaka, Bangladesh
[6] Univ Glasgow, Disabil Studies, Glasgow, Lanark, Scotland
[7] Univ KwaZulu Natal, Sch Hlth Sci, Durban, South Africa
[8] Univ Zambia, Lusaka, Zambia
[9] Koc Univ, Sariyer, Turkey
[10] Publ Hlth Fdn India, Bengaluru, Karnataka, India
来源
基金
英国科研创新办公室;
关键词
disability; inclusion; ethics; Covid-19; research practices; accessibility; DISABLED PEOPLE; ISSUES; US;
D O I
10.19088/1968-2022.130
中图分类号
K9 [地理];
学科分类号
0705 ;
摘要
People with disabilities are often excluded from research, which may be exacerbated during the ongoing Covid-19 pandemic. This article provides an overview of key challenges, opportunities, and strategies for conducting disability-inclusive research during the pandemic, drawing on the experience of research teams working across ten countries on disability-focused studies. It covers adaptations that are relevant across the project lifecycle, including maintaining ethical standards and safeguarding; enabling active participation of people with disabilities; adapting remote research data collection tools and methods to meet accessibility, feasibility, and acceptability requirements; and promoting inclusive and effective analysis and dissemination. While this article is focused on adaptations during the pandemic, it is highly likely that the issues and strategies highlighted here will be relevant going forward, either in similar crises or as the world continues to move towards greater digital communication and connectedness.
引用
收藏
页码:129 / 151
页数:23
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