Patterns of Suffering in Palliative Care: A Descriptive Study

被引：4

作者：

Beng, Tan Seng ^{[1
]}

Ting, Tan Ting ^{[1
]}

Karupiah, Malathi ^{[1
]}

Ni, Cheah Xin ^{[1
]}

Li, Hong Li ^{[1
]}

Guan, Ng Chong ^{[2
]}

Chin, Loh Ee ^{[1
]}

Loong, Lam Chee ^{[1
]}

Pin, Tan Maw ^{[1
]}

机构：

[1] Univ Malaya, Fac Med, Dept Med, Med Ctr, Kuala Lumpur 59100, Malaysia

[2] Univ Malaya, Fac Med, Dept Psychol Med, Med Ctr, Kuala Lumpur, Malaysia

来源：

OMEGA-JOURNAL OF DEATH AND DYING | 2021年 / 84卷 / 02期

关键词：

suffering; patterns of suffering; palliative care; psychosocial care; cancer; CANCER-PATIENTS; END; LIFE; EXPERIENCES; DISTRESS; DECLINE; ILL;

D O I：

10.1177/0030222820903221

中图分类号：

B84 [心理学];

学科分类号：

04 ; 0402 ;

摘要：

Suffering experiences are common phenomena in palliative care. In this study, we aim to explore the different patterns of suffering in palliative care. Adult palliative care patients were recruited from the University of Malaya Medical Centre. Suffering scores were charted 3 times a day for a week. The characteristics of the suffering charts were analyzed using SPSS. The patterns of suffering were analyzed using structural pattern recognition. A total of 53 patients participated. The overall trends of suffering were downward (64%), upward (19%), and stable (17%). Median minimum and maximum suffering scores were 2/10 and 6/10, with an average of 3.6/10. Nine patterns of suffering were recognized from categorizing two key characteristics of suffering (intensity and fluctuation)-named S1 to S9. Understanding the different patterns of suffering may lead to better suffering management.

引用

页码：512 / 524

页数：13

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