Long-Term Perspectives of Family Quality of Life Following Music Therapy With Young Children on the Autism Spectrum: A Phenomenological Study

被引:18
|
作者
Thompson, Grace A. [1 ]
机构
[1] Univ Melbourne, Melbourne Conservatorium Mus, Melbourne, Vic, Australia
关键词
autism; children; disability; family; qualitative research; JOINT ATTENTION; EARLY INTERVENTION; DISORDER; PARENTS; COMMUNICATION; IMPACT; ATTACHMENT; BEHAVIORS; STRESS; MODEL;
D O I
10.1093/jmt/thx013
中图分类号
J6 [音乐];
学科分类号
摘要
Parents of children on the autism spectrum have consistently reported feeling uncertain in their parenting role, and desire more practical advice from service providers about how to support their child in the home. There is growing recognition of the need for interventions to provide support to the family as well as fostering child development outcomes. This study explores mothers' follow-up perspectives of family-centered music therapy (FCMT) four years after participating in a 16-week home-based program, and therefore provides a unique long-term viewpoint on FCMT outcomes. Eight mothers who previously participated in FCMT sessions with their young children on the autism spectrum were interviewed to explore their perception of any long-term outcomes. A descriptive phenomenological analysis revealed five global themes, including: improvement in mothers' confidence to engage their child; rare opportunities for mutual mother-child enjoyment; improved child social communication and quality of life; mothers' new understanding of the child's interests and strengths; and more opportunities for continuing the child's interest in music. Mothers perceived long-term benefits to social relationships within the family, leading to perceived enrichment in child and family quality of life following music therapy sessions.
引用
收藏
页码:432 / 459
页数:28
相关论文
共 50 条
  • [21] Predicting Caregiver and Family Quality of Life in Families With Children With Autism Spectrum Disorder
    Brockberg, Kerry
    Smedema, Susan Miller
    REHABILITATION RESEARCH POLICY AND EDUCATION, 2022, 36 (02): : 146 - 165
  • [22] Effect of long-term interactive music therapy on Behavior profile and musical skills in young adults with severe autism
    Boso, Marianna
    Emanuele, Enzo
    Minazzi, Vera
    Abbamonte, Marta
    Politi, Pierluigi
    JOURNAL OF ALTERNATIVE AND COMPLEMENTARY MEDICINE, 2007, 13 (07) : 709 - 712
  • [23] A Long-term Study of Robot-Assisted Therapy for Children with Severe Autism and ADHD
    Rakhymbayeva, Nazerke
    Seitkazina, Nurila
    Turabayev, Dauren
    Pak, Alina
    Sandygulova, Anara
    HRI'20: COMPANION OF THE 2020 ACM/IEEE INTERNATIONAL CONFERENCE ON HUMAN-ROBOT INTERACTION, 2020, : 401 - 402
  • [24] A follow-up study on the long-term effects of rehabilitation in children with autism spectrum disorders
    Zhang, Lili
    Liu, Yimei
    Zhou, Ziyun
    Wei, Yan
    Wang, Jie
    Yang, Jie
    Wu, Yanling
    Sun, Yan
    NEUROREHABILITATION, 2019, 44 (01) : 1 - 7
  • [25] Cohort study of long-term survival and quality of life following pelvic exenteration
    Steffens, D.
    Solomon, M. J.
    Young, J. M.
    Koh, C.
    Venchiarutti, R. L.
    Lee, P.
    Austin, K.
    BJS OPEN, 2018, 2 (05): : 328 - 335
  • [26] Younger Stroke Survivors' Experiences of Family Life in a Long-Term Perspective: A Narrative Hermeneutic Phenomenological Study
    Martinsen, Randi
    Kirkevold, Marit
    Sveen, Unni
    NURSING RESEARCH AND PRACTICE, 2012, 2012
  • [27] On My Own: A Qualitative Phenomenological Study of Mothers of Young Children with Autism Spectrum Disorder in Taiwan
    Hsu, Yu-Chien
    Tsai, Shu-Ling
    Hsieh, Mei-Hui
    Jenks, Michael S.
    Tsai, Chang-Hsiung
    Hsu, Min-Tao
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2017, 30 (01) : 147 - 156
  • [28] Saudi parents' perspectives of the factors influencing the quality of life of their children with autism spectrum disorder
    Alhuzimi, Talal E.
    RESEARCH IN DEVELOPMENTAL DISABILITIES, 2024, 152
  • [29] Early childhood music therapy and autism spectrum disorders: Developing potential in young children and their families
    Rivera, Nicole R.
    JOURNAL OF MUSIC THERAPY, 2014, 51 (01) : 126 - 129
  • [30] Launching a long-term research program on family quality of life
    Poston, D
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2004, 48 : 446 - 446