Typology of informal carers providing care to family members after cerebrovascular accident

被引:0
|
作者
Paulicek, Miroslav [1 ]
Krhutova, Lenka [1 ]
Kuznikova, Iva [1 ]
Vondrousova, Kamila [1 ]
Ticha, Iva [1 ]
Luksova, Hana [1 ]
Blahova, Petra Anna-Marie [1 ]
Valouskova, Veronika [1 ]
Dabrowska, Marcela [2 ]
Kristinikova, Jarmila [2 ]
Saloun, Petr [3 ]
机构
[1] Univ Ostrava, Fac Social Studies, Dept Hlth & Social Studies, Ceskobratrska 16, Ostrava 70103, Czech Republic
[2] Univ Ostrava, Fac Med, Dept Rehabil, Ostrava, Czech Republic
[3] VSB Tech Univ Ostrava, Fac Elect Engn & Comp Sci, Dept Comp Sci, Ostrava, Czech Republic
关键词
Cerebrovascular accident; Informal carer; Typology; STROKE SURVIVORS; CAREGIVERS; VALIDATION; BURDEN;
D O I
10.32725/kont.2021.039
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Introduction: The study is underpinned by the research of people providing care to relatives after a cerebrovascular accident outside the sphere of public institutions - so called informal carers. The aim was to create a typology of these carers, reflecting their way of constructing identity, their attitude to their own emotions, their reflections on and experience with caring, their forms of communication, and how they work with information. Methods: The research was led by a qualitative approach with the use of the principles of biographical research. It is based on thirty semistructured interviews. Areas were identified within these interviews in which the carers reflected on themselves. Through these areas, the carers differ in the ways in which they experience their roles of carers. The research was complemented with a questionnaire survey in order to acquire demographic and other data from the same sample. Results: The result of the study is a typology which contains five pure types of informal carers who provide care to family members after a Cerebrovascular Accident (CVA): (1) rational, (2) self-construing, (3) depressive, (4) traditional and (5) optimistic. Discussion: The results of the study are discussed in the context of caregiving in general, and in comparison with research focusing on the ways in which carers cope with decreased autonomy, emotions, gender, or their approach to obtaining information. Conclusions: Within the above types, carers differed in the variety of ways in which they controlled their emotions, in the different relationships to self, or in their reflections on the future. Which category an individual carer fell into depended on the volume of care they provided, how long they had been providing it, the possibilities to obtain support or assistance, and the personality of the carer. This typology may be useful from the analytical perspective, as well as from the perspective of potential interventions aimed at the dissemination of information and the sharing of the carers' experience.
引用
收藏
页码:200 / 206
页数:7
相关论文
共 50 条
  • [31] Self-care to elderly after cerebrovascular accident: caregiver and academics experiences
    Gomes Nascimento, Marcia Gabriela
    Figueiredo Martins, Paula Cristina
    Rodrigues Resck, Zelia Marilda
    Rezende Dazio, Eliza Maria
    Terra, Fabio de Souza
    REV RENE, 2015, 16 (05) : 682 - 689
  • [32] Developing strategies to support family members providing home-based palliative care
    Stajduhar, KI
    Cohen, SR
    JOURNAL OF PALLIATIVE CARE, 2002, 18 (03) : 209 - 209
  • [33] Factors affecting burden of South Koreans providing care to disabled older family members
    Lee, Minhong
    Yoon, Eunkyung
    Kropf, Nancy P.
    INTERNATIONAL JOURNAL OF AGING & HUMAN DEVELOPMENT, 2007, 64 (03): : 245 - 262
  • [34] Family carers? experiences of providing care for their adult relative with intellectual disabilities and mental health problems in Singapore
    Ee, Jonathan
    Lim, Jan Mei
    Kroese, Biza Stenfert
    Rose, John
    RESEARCH IN DEVELOPMENTAL DISABILITIES, 2022, 126
  • [35] Barriers to the Detection and Management of Depression by Palliative Care Professional Carers Among Their Patients: Perspectives From Professional Carers and Patients' Family Members
    Mellor, David
    McCabe, Marita P.
    Davison, Tanya E.
    Goldhammer, Denisa L.
    Hallford, David J.
    AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE, 2013, 30 (01): : 12 - 20
  • [36] After the care journey: exploring the experiences of family carers of people living with dementia
    Jameson, Sonja
    Parkinson, Lynne
    Banbury, Annie
    AGEING & SOCIETY, 2020, 40 (11) : 2429 - 2447
  • [37] Life after care: psychological adjustment to bereavement in family carers of people with dementia
    Vlachogianni, Aggeliki
    Efthymiou, Areti
    Potamianou, Dimitra
    Sakka, Paraskevi
    Orgeta, Vasiliki
    INTERNATIONAL PSYCHOGERIATRICS, 2016, 28 (05) : 815 - 823
  • [38] The Effects of Resources on Caregiver Outcomes for Family Members Providing Care to Community Dwelling Older Adults
    McGhan, Gwen
    BeLue, Rhonda
    Penrod, Janice
    NURSING RESEARCH, 2013, 62 (02) : E102 - E102
  • [39] Structural Equation Model for Caregiving Experience of Families Providing Care for Family Members with Mental Disorders
    Oh, In Ohg
    Kim, Sunah
    JOURNAL OF KOREAN ACADEMY OF NURSING, 2015, 45 (01) : 97 - 106
  • [40] Sleeping with One Eye Open: The sleep experience of family members providing palliative care at home
    Hearson, Brenda
    McClement, Susan
    McMillan, Diana E.
    Harlos, Michael
    JOURNAL OF PALLIATIVE CARE, 2011, 27 (02) : 69 - 78