"You really need a whole community": a qualitative study of mothers' need for and experiences with childcare support during cancer treatment and recovery

被引:6
|
作者
Pritlove, Cheryl [1 ,2 ]
Dias, Lisa, V [1 ]
机构
[1] St Michaels Hosp, Appl Hlth Res Ctr, 30 Bond St, Toronto, ON M5B 1W8, Canada
[2] Univ Toronto, Dalla Lana Sch Publ Hlth, 155 Coll St, Toronto, ON M5T 3M7, Canada
关键词
Cancer; Parental cancer; Gender; Childcare; Psychosocial care; Qualitative research; BREAST-CANCER; PARENTAL CANCER; IMPACT; WOMEN; SURVIVORS; DISTRESS; ILLNESS; PATIENT; STRESS; GENDER;
D O I
10.1007/s00520-022-07399-3
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Purpose A cancer diagnosis poses unique challenges for moms with young children who must balance illness-management alongside existing paid (e.g., employment) and unpaid (e.g., domestic/caregiving) work. The goal of this study was to improve understanding of the support needs of mothers living with cancer and their experiences receiving psychosocial and childcare support from a community organization, the Nanny Angel Network (NAN). Methods Mothers who accessed NAN services during their cancer treatment and/or recovery (N = 20) participated in qualitative semi-structured interviews. Thematic analysis was used to inductively and deductively identify emerging patterns in the data and theoretical abduction was applied to further interpret participants' accounts using a feminist political economy framework. Results Participants expressed how balancing the demands of patienthood and parenthood was challenging and how cancer treatment created new needs for support with care work. Mothers explained that NAN offered indispensable family-centered support largely missing from the health care system, promoting improved physical, psychosocial, and relational health for them and their families. While accessible from a cost-perspective, participants identified different pathways, including awareness, cross- system collaboration, and stable funding, that limited timely access to NAN. Conclusion Access to family-centered care, such as that offered through NAN, was vital to the health and healing of the study participants and their families. Improved collaboration with and investment in community organizations like NAN that have a strong infrastructure to support moms living with cancer offers a practical, feasible, and immediate solution to help address some of the distinct challenges this population faces.
引用
收藏
页码:10051 / 10065
页数:15
相关论文
共 50 条
  • [31] Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media
    Stephens, Jacqueline H.
    O'Keefe, Maree
    Schembri, Mark
    Baghurst, Peter A.
    JOURNAL OF PATIENT EXPERIENCE, 2020, 7 (05): : 717 - 725
  • [32] "it's a medical condition ... you need to support as much as possible": a qualitative analysis of teachers' experiences of chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME)
    Brigden, Amberly
    Shaw, Alison
    Crawley, Esther
    BMC PEDIATRICS, 2021, 21 (01)
  • [33] A qualitative study exploring the experiences of individuals living with stroke and their caregivers with community-based poststroke services: A critical need for action
    Singh, Hardeep
    Nguyen, Tram
    Hahn-Goldberg, Shoshana
    Lewis-Fung, Samantha
    Smith-Bayley, Suzanne
    Nelson, Michelle L. A.
    PLOS ONE, 2022, 17 (10):
  • [34] 'You know where we are if you need us.' The role of primary care in supporting patients following pancreaticoduodenectomy for cancer: a qualitative study
    Taylor, Anna Kathryn
    Kausar, Ambareen
    Chang, David
    Phelan, Alison
    Chew-Graham, Carolyn Anne
    BJGP OPEN, 2022, 6 (02)
  • [35] Dimensions of suffering and the need for palliative care: experiences and expectations of patients living with cancer and diabetes and their caregivers in Mexico - a qualitative study
    Doubova, Svetlana, V
    Bhadelia, Afsan
    Perez-Moran, Diana
    Martinez-Vega, Ingrid Patricia
    Garcia-Cervantes, Nancy
    Knaul, Felicia
    BMJ OPEN, 2023, 13 (12):
  • [36] Hands-on approach during breastfeeding support in a neonatal intensive care unit: A qualitative study of Swedish mothers' experiences
    Weimers L.
    Svensson K.
    Dumas L.
    Navér L.
    Wahlberg V.
    International Breastfeeding Journal, 1 (1)
  • [37] Black men?s experiences of support following treatment for prostate cancer in England: A qualitative study
    Alexis, Obrey
    Worsley, Aaron James
    EUROPEAN JOURNAL OF ONCOLOGY NURSING, 2023, 62
  • [38] Tell us what you need and we′ll build it together: Government - community partnerships for cancer prevention and support in the Northwest Territories
    Corriveau, Andre
    Broadhead, Sabrina
    Milligan, Crystal
    Laboucan, Melinda
    Barnaby, Florence
    INTERNATIONAL JOURNAL OF CIRCUMPOLAR HEALTH, 2016, 75 : 85 - 85
  • [39] Patient Experiences of Using Wearable Health Monitors During Cancer Treatment: A Qualitative Study
    Collinson, S.
    Ingram-Walpole, S.
    Jackson, C.
    Soliman, A.
    Chan, A. K. C.
    Tholouli, E.
    Balata, H.
    Merchant, M.
    Kirkby, K. J.
    Sweeney, S.
    Blackhall, F.
    Bashall, T.
    Searle, E.
    Pan, S.
    Braun, M.
    Kitchen, G. B.
    Moore, J. A.
    Merchant, Z.
    Wilson, A. J.
    CLINICAL ONCOLOGY, 2025, 37
  • [40] Experiences of everyday life and self during outpatient cancer treatment and care: A qualitative study
    Siersbaek, T. M.
    ANNALS OF ONCOLOGY, 2022, 33 (07) : S1379 - S1379