"You really need a whole community": a qualitative study of mothers' need for and experiences with childcare support during cancer treatment and recovery
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作者:
Pritlove, Cheryl
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St Michaels Hosp, Appl Hlth Res Ctr, 30 Bond St, Toronto, ON M5B 1W8, Canada
Univ Toronto, Dalla Lana Sch Publ Hlth, 155 Coll St, Toronto, ON M5T 3M7, CanadaSt Michaels Hosp, Appl Hlth Res Ctr, 30 Bond St, Toronto, ON M5B 1W8, Canada
Pritlove, Cheryl
[1
,2
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Dias, Lisa, V
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St Michaels Hosp, Appl Hlth Res Ctr, 30 Bond St, Toronto, ON M5B 1W8, CanadaSt Michaels Hosp, Appl Hlth Res Ctr, 30 Bond St, Toronto, ON M5B 1W8, Canada
Dias, Lisa, V
[1
]
机构:
[1] St Michaels Hosp, Appl Hlth Res Ctr, 30 Bond St, Toronto, ON M5B 1W8, Canada
[2] Univ Toronto, Dalla Lana Sch Publ Hlth, 155 Coll St, Toronto, ON M5T 3M7, Canada
Purpose A cancer diagnosis poses unique challenges for moms with young children who must balance illness-management alongside existing paid (e.g., employment) and unpaid (e.g., domestic/caregiving) work. The goal of this study was to improve understanding of the support needs of mothers living with cancer and their experiences receiving psychosocial and childcare support from a community organization, the Nanny Angel Network (NAN). Methods Mothers who accessed NAN services during their cancer treatment and/or recovery (N = 20) participated in qualitative semi-structured interviews. Thematic analysis was used to inductively and deductively identify emerging patterns in the data and theoretical abduction was applied to further interpret participants' accounts using a feminist political economy framework. Results Participants expressed how balancing the demands of patienthood and parenthood was challenging and how cancer treatment created new needs for support with care work. Mothers explained that NAN offered indispensable family-centered support largely missing from the health care system, promoting improved physical, psychosocial, and relational health for them and their families. While accessible from a cost-perspective, participants identified different pathways, including awareness, cross- system collaboration, and stable funding, that limited timely access to NAN. Conclusion Access to family-centered care, such as that offered through NAN, was vital to the health and healing of the study participants and their families. Improved collaboration with and investment in community organizations like NAN that have a strong infrastructure to support moms living with cancer offers a practical, feasible, and immediate solution to help address some of the distinct challenges this population faces.
机构:
Univ Adelaide, Adelaide Med Sch, Discipline Paediat, Adelaide, SA, Australia
South Australian Hlth & Med Res Inst, Aboriginal Hlth Equ, Adelaide, SA, AustraliaUniv Adelaide, Adelaide Med Sch, Discipline Paediat, Adelaide, SA, Australia
Stephens, Jacqueline H.
O'Keefe, Maree
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Univ Adelaide, Fac Hlth & Med Sci, Adelaide, SA, AustraliaUniv Adelaide, Adelaide Med Sch, Discipline Paediat, Adelaide, SA, Australia
O'Keefe, Maree
Schembri, Mark
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Womens & Childrens Hosp, Ear Nose & Throat Dept, Adelaide, SA, AustraliaUniv Adelaide, Adelaide Med Sch, Discipline Paediat, Adelaide, SA, Australia
Schembri, Mark
Baghurst, Peter A.
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Univ Adelaide, Fac Hlth & Med Sci, Adelaide, SA, AustraliaUniv Adelaide, Adelaide Med Sch, Discipline Paediat, Adelaide, SA, Australia
机构:
Univ Toronto, Temerty Fac Med, Dept Occupat Sci & Occupat Therapy, Toronto, ON, Canada
Univ Hlth Network, KITE Toronto Rehabil Inst, Toronto, ON, Canada
Univ Toronto, Temerty Fac Med, Rehabil Sci Inst, Toronto, ON, CanadaUniv Toronto, Temerty Fac Med, Dept Occupat Sci & Occupat Therapy, Toronto, ON, Canada
Singh, Hardeep
Nguyen, Tram
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机构:
March Dimes Canada, Toronto, ON, Canada
Univ Toronto, Dalla Lana Sch Publ Hlth, Inst Hlth Policy Management & Evaluat, Toronto, ON, CanadaUniv Toronto, Temerty Fac Med, Dept Occupat Sci & Occupat Therapy, Toronto, ON, Canada
Nguyen, Tram
Hahn-Goldberg, Shoshana
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机构:
Univ Hlth Network, OpenLab, Toronto, ON, Canada
Univ Toronto, Leslie Dan Fac Pharm, Toronto, ON, CanadaUniv Toronto, Temerty Fac Med, Dept Occupat Sci & Occupat Therapy, Toronto, ON, Canada
Hahn-Goldberg, Shoshana
Lewis-Fung, Samantha
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Univ Hlth Network, OpenLab, Toronto, ON, CanadaUniv Toronto, Temerty Fac Med, Dept Occupat Sci & Occupat Therapy, Toronto, ON, Canada
Lewis-Fung, Samantha
Smith-Bayley, Suzanne
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机构:
March Dimes Canada, Toronto, ON, CanadaUniv Toronto, Temerty Fac Med, Dept Occupat Sci & Occupat Therapy, Toronto, ON, Canada
Smith-Bayley, Suzanne
Nelson, Michelle L. A.
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h-index: 0
机构:
March Dimes Canada, Toronto, ON, Canada
Univ Toronto, Dalla Lana Sch Publ Hlth, Inst Hlth Policy Management & Evaluat, Toronto, ON, Canada
Sinai Hlth Syst, Bridgepoint Collaboratory Res & Innovat, Toronto, ON, CanadaUniv Toronto, Temerty Fac Med, Dept Occupat Sci & Occupat Therapy, Toronto, ON, Canada
机构:
Univ Leeds, Fac Med & Hlth, Leeds Inst Hlth Sci, Sch Med, Leeds, W Yorkshire, EnglandUniv Leeds, Fac Med & Hlth, Leeds Inst Hlth Sci, Sch Med, Leeds, W Yorkshire, England
Taylor, Anna Kathryn
Kausar, Ambareen
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机构:
East Lancashire Hosp NHS Trust, Royal Blackburn Hosp, Dept Gen Surg, Blackburn, Lancs, EnglandUniv Leeds, Fac Med & Hlth, Leeds Inst Hlth Sci, Sch Med, Leeds, W Yorkshire, England
Kausar, Ambareen
Chang, David
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机构:
East Lancashire Hosp NHS Trust, Royal Blackburn Hosp, Dept Gen Surg, Blackburn, Lancs, EnglandUniv Leeds, Fac Med & Hlth, Leeds Inst Hlth Sci, Sch Med, Leeds, W Yorkshire, England
Chang, David
Phelan, Alison
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Patient Advisory Grp Member, Blackburn, Lancs, EnglandUniv Leeds, Fac Med & Hlth, Leeds Inst Hlth Sci, Sch Med, Leeds, W Yorkshire, England
Phelan, Alison
Chew-Graham, Carolyn Anne
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Keele Univ, Sch Med, Keele, Staffs, EnglandUniv Leeds, Fac Med & Hlth, Leeds Inst Hlth Sci, Sch Med, Leeds, W Yorkshire, England
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Mexican Social Secur Inst, CMN Siglo 21, CMN Siglo21, Mexico City, MexicoMexican Social Secur Inst, CMN Siglo 21, CMN Siglo21, Mexico City, Mexico
Doubova, Svetlana, V
Bhadelia, Afsan
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机构:
Purdue Univ, Coll Hlth & Human Sci, Dept Publ Hlth, W Lafayette, IN USAMexican Social Secur Inst, CMN Siglo 21, CMN Siglo21, Mexico City, Mexico
Bhadelia, Afsan
Perez-Moran, Diana
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机构:
Mexican Social Secur Inst, CMN Siglo 21, CMN Siglo21, Mexico City, MexicoMexican Social Secur Inst, CMN Siglo 21, CMN Siglo21, Mexico City, Mexico
Perez-Moran, Diana
Martinez-Vega, Ingrid Patricia
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Mexican Social Secur Inst, CMN Siglo 21, CMN Siglo21, Mexico City, MexicoMexican Social Secur Inst, CMN Siglo 21, CMN Siglo21, Mexico City, Mexico
Martinez-Vega, Ingrid Patricia
Garcia-Cervantes, Nancy
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机构:
Mexican Social Secur Inst, Family Med Clin, Mexico City, MexicoMexican Social Secur Inst, CMN Siglo 21, CMN Siglo21, Mexico City, Mexico
Garcia-Cervantes, Nancy
Knaul, Felicia
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机构:
Univ Miami, Sylvester Comprehens Canc Ctr, Miami, FL USA
Univ Miami, Inst Adv Study Amer, Coral Gables, FL USA
Univ Miami, Leonard M Miller Sch Med, Dept Publ Hlth Sci, Miami, FL USA
Tomatelo Pecho, Mexico City, Mexico
Fdn Mexicana Salud, Mexico City, MexicoMexican Social Secur Inst, CMN Siglo 21, CMN Siglo21, Mexico City, Mexico
机构:
Department of Pediatrics, Karolinska University Hospital Huddinge, StockholmDepartment of Pediatrics, Karolinska University Hospital Huddinge, Stockholm
Weimers L.
Svensson K.
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机构:
Department of Obstetrics, Karolinska University Hospital Solna, Stockholm
Department of Women and Child Health, Division of Reproductive and Perinatal Health Care, Karolinska Institutet, StockholmDepartment of Pediatrics, Karolinska University Hospital Huddinge, Stockholm
Svensson K.
Dumas L.
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机构:
Department of Women and Child Health, Division of Reproductive and Perinatal Health Care, Karolinska Institutet, Stockholm
Department of Nursing Sciences, Université du Québec en Outaouais, Outaouais, QCDepartment of Pediatrics, Karolinska University Hospital Huddinge, Stockholm
Dumas L.
Navér L.
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机构:
Department of Pediatrics, Karolinska University Hospital Huddinge, Stockholm
Division of Pediatrics, Department of Clinical Sciences, Intervention and Technology (CLINTEC), Karolinska Institutet, StockholmDepartment of Pediatrics, Karolinska University Hospital Huddinge, Stockholm
Navér L.
Wahlberg V.
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机构:
Ersta Sköndal University College, Department of Health Care Sciences, StockholmDepartment of Pediatrics, Karolinska University Hospital Huddinge, Stockholm
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Christie NHS Fdn Trust, Manchester, England
Univ Manchester, Fac Biol Med & Hlth, Div Canc Sci, Manchester, EnglandManchester Univ NHS Fdn Trust, Manchester, England