American Heart Association Precision Medicine Platform Addresses Challenges in Data Sharing

被引:7
|
作者
Stevens, Laura M. [1 ,2 ,3 ]
de Lemos, James A. [4 ]
Das, Sandeep R. [4 ,5 ]
Rutan, Christine [3 ]
Alger, Heather M. [3 ]
Elkind, Mitchell S. V. [6 ,7 ]
Zhao, Juan [8 ]
Iyer, Kritika [9 ]
Figueroa, C. Alberto [9 ,10 ]
Hall, Jennifer L. [3 ,11 ]
机构
[1] Univ Colorado, Dept Cardiol, Aurora, CO USA
[2] Univ Colorado, Computat Biosci Program, Aurora, CO USA
[3] Amer Heart Assoc, Qual Outcomes Res & Analyt, Dallas, TX USA
[4] Univ Texas Southwestern Med Ctr Dallas, Dallas, TX 75390 USA
[5] Ctr Innovat & Value Parkland, Dallas, TX USA
[6] Columbia Univ, New York Presbyterian Hosp, Mailman Sch Publ Hlth, New York, NY USA
[7] Columbia Univ, Vagelos Coll Phys & Surg, New York, NY USA
[8] Vanderbilt Univ, Med Ctr, Dept Biomed Informat, Nashville, TN USA
[9] Univ Michigan, Dept Biomed Engn, Ann Arbor, MI 48109 USA
[10] Univ Michigan, Dept Surg, Ann Arbor, MI 48109 USA
[11] Univ Minnesota, Dept Med, Lillehei Heart Inst, Box 736 UMHC, Minneapolis, MN 55455 USA
来源
关键词
clinical study; computational biology; database; machine learning; registries;
D O I
10.1161/CIRCOUTCOMES.121.007949
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
AHA’s PMP has enabled secure delivery of data through agile workspaces that scale with the high-performance compute needs of researchers and allow flexibility in the ready-to-run analysis tools. By listening and partnering with end users, we have overcome many of the hurdles facing researchers today including outdated data governance policies, insufficient data documentation, and inability of cloud-based environments to scale up resources for performance and allow researchers to personalize their workspaces with their own tools and pipelines. © 2021 Lippincott Williams and Wilkins. All rights reserved.
引用
收藏
页数:4
相关论文
共 50 条
  • [41] The Brazilian Initiative on Precision Medicine (BIPMed): fostering genomic data-sharing of underrepresented populations
    Cristiane S. Rocha
    Rodrigo Secolin
    Maíra R. Rodrigues
    Benilton S. Carvalho
    Iscia Lopes-Cendes
    [J]. npj Genomic Medicine, 5
  • [42] Precision Oncology and Genomically Guided Radiation Therapy: A Report From the American Society for Radiation Oncology/American Association of Physicists in Medicine/National Cancer Institute Precision Medicine Conference
    Hall, William A.
    Bergom, Carmen
    Thompson, Reid F.
    Baschnagel, Andrew M.
    Vijayakumar, Srinivasan
    Willers, Henning
    Li, X. Allen
    Schultz, Christopher J.
    Wilson, George D.
    West, Catharine M. L.
    Capala, Jacek
    Coleman, C. Norman
    Torres-Roca, Javier F.
    Weidhaas, Joanne
    Feng, Felix Y.
    [J]. INTERNATIONAL JOURNAL OF RADIATION ONCOLOGY BIOLOGY PHYSICS, 2018, 101 (02): : 274 - 284
  • [43] Pharmacoepidemiology and Big Data Analytics: Challenges and Opportunities when Moving towards Precision Medicine
    Burden, Andrea M.
    [J]. CHIMIA, 2019, 73 (12) : 1012 - 1017
  • [44] THE BENEFITS AND CHALLENGES OF HAVING AN OPEN AND FREE BASIS SATELLITE DATA SHARING PLATFORM IN TURKEY: GEZGIN
    Deveci, Husne Seda
    Koru, Aziz
    Sakarya, Ufuk
    Tevrizoglu, Ismail
    Teke, Mustafa
    Kupcu, Ramazan
    Avenoglu, Bulent
    Demirkesen, Can
    Gurbuz, Sevgi Zubeyde
    Oztoprak, A. Feray
    Acikgoz, Ibrahim Serdar
    Demirhan, Ismail Hakki
    Kozal, Ali Omer
    Efendioglu, Mehmet
    Berke, Erdinc
    Simsek, F. Fehmi
    Atil, Ilkay
    Kaya, Derya
    Ucmak, Pinar
    Ersoz, Eda
    Ozen, Hilal
    [J]. XXIII ISPRS CONGRESS, COMMISSION VIII, 2016, 41 (B8): : 1341 - 1347
  • [45] Accelerating advanced precision medicine through a harmonized data exchange platform and research consortium (PMEC).
    Sohal, Davendra
    Doudement, Julien
    George, Ben
    Alexander, Brian Michael
    Grant, Stefan C.
    Kim, William Y.
    Gutierrez, Martin
    Kelly, William Kevin
    Knudsen, Karen E.
    McPherson, John
    Hoimes, Christopher J.
    Davis, Elizabeth J.
    Singal, Gaurav
    Webster, Jennifer
    Chan, Lindsay
    Cristofanilli, Massimo
    Miller, Vincent A.
    [J]. JOURNAL OF CLINICAL ONCOLOGY, 2019, 37 (15)
  • [46] "Who is watching the watchdog?": ethical perspectives of sharing health-related data for precision medicine in Singapore
    Lysaght, Tamra
    Ballantyne, Angela
    Xafis, Vicki
    Ong, Serene
    Schaefer, Gerald Owen
    Ling, Jeffrey Min Than
    Newson, Ainsley J.
    Khor, Ing Wei
    Tai, E. Shyong
    [J]. BMC MEDICAL ETHICS, 2020, 21 (01)
  • [47] Data Sharing, Clinical Trials, and Biomarkers in Precision Oncology: Challenges, Opportunities, and Programs at the Department of Veterans Affairs
    Fiore, L. D.
    Brophy, M. T.
    Ferguson, R. E.
    Shannon, C.
    Turek, S. J.
    Pierce-Murray, K.
    Ajjarapu, S.
    Huang, G. D.
    Lee, C. S. E.
    Lavori, P. W.
    [J]. CLINICAL PHARMACOLOGY & THERAPEUTICS, 2017, 101 (05) : 586 - 589
  • [48] “Who is watching the watchdog?”: ethical perspectives of sharing health-related data for precision medicine in Singapore
    Tamra Lysaght
    Angela Ballantyne
    Vicki Xafis
    Serene Ong
    Gerald Owen Schaefer
    Jeffrey Min Than Ling
    Ainsley J. Newson
    Ing Wei Khor
    E. Shyong Tai
    [J]. BMC Medical Ethics, 21
  • [49] Precision medicine in diabetes: a Consensus Report from the American Diabetes Association (ADA) and the European Association for the Study of Diabetes (EASD)
    Wendy K. Chung
    Karel Erion
    Jose C. Florez
    Andrew T. Hattersley
    Marie-France Hivert
    Christine G. Lee
    Mark I. McCarthy
    John J. Nolan
    Jill M. Norris
    Ewan R. Pearson
    Louis Philipson
    Allison T. McElvaine
    William T. Cefalu
    Stephen S. Rich
    Paul W. Franks
    [J]. Diabetologia, 2020, 63 : 1671 - 1693
  • [50] Precision Medicine in Diabetes: A Consensus Report From the American Diabetes Association (ADA) and the European Association for the Study of Diabetes (EASD)
    Chung, Wendy K.
    Erion, Karel
    Florez, Jose C.
    Hattersley, Andrew T.
    Hivert, Marie-France
    Lee, Christine G.
    McCarthy, Mark I.
    Nolan, John J.
    Norris, Jill M.
    Pearson, Ewan R.
    Philipson, Louis
    McElvaine, Allison T.
    Cefalu, William T.
    Rich, Stephen S.
    Franks, Paul W.
    [J]. DIABETES CARE, 2020, 43 (07) : 1617 - 1635