mySinusitisCoach: patient empowerment in chronic rhinosinusitis using mobile technology

被引：2

作者：

Seys, S. F. ^{[1
,2
]}

Bousquet, J. ^{[3
]}

Bachert, C. ^{[4
,5
]}

Fokkens, W. J. ^{[6
]}

Agache, I ^{[7
]}

Bernal-Sprekelsen, M. ^{[8
]}

Callebaut, I ^{[9
]}

Cardel, L. O. ^{[10
]}

Carrie, S. ^{[11
]}

Castelnuovo, P. ^{[12
]}

Cathcart, R. ^{[13
]}

Constantinidis, J. ^{[14
]}

Cools, L. ^{[9
]}

Cornet, M. ^{[6
]}

Clement, G. ^{[15
]}

de Souse, J. C. ^{[16
]}

Cox, T. ^{[17
]}

Doulaptsi, M. ^{[18
]}

Gevaert, P. ^{[4
]}

Hopkins, C. ^{[19
]}

Hox, V ^{[20
]}

Hummel, T. ^{[21
]}

Hosemann, W. ^{[22
]}

Jacobs, R. ^{[23
]}

Jorissen, M. ^{[9
]}

Landis, B. N. ^{[24
]}

Leunig, A. ^{[25
]}

Lund, V. J. ^{[26
]}

Mullol, J. ^{[27
]}

Onerci, M. ^{[28
]}

Palkonen, S. ^{[29
]}

Proano, I ^{[29
]}

Prokopakis, E. ^{[17
]}

Ryan, D. ^{[30
]}

Riechelmann, H. ^{[31
]}

Saevels, J. ^{[32
]}

Segboer, C. ^{[6
]}

Speleman, K. ^{[33
]}

Steinsvik, E. A. ^{[34
]}

Surda, P. ^{[18
]}

Tomazic, P., V ^{[35
]}

Vanderveken, O. ^{[36
]}

Van Gerven, L. ^{[9
]}

Van Zele, T. ^{[4
]}

Verhaeghe, B. ^{[37
]}

Vierstraete, K. ^{[38
]}

Vlaminck, S. ^{[33
]}

Wilkinson, J. ^{[39
]}

Williams, S. ^{[40
]}

Pugin, B. ^{[1
,2
]}

机构：

[1] European Forum Res & Educ Allergy & Airway Dis EU, Brussels, Belgium

[2] Katholieke Univ Leuven, Lab Clin Immunol, Dept Microbiol & Immunol, Leuven, Belgium

[3] Univ Hosp Arnaud Villeneuve, Dept Resp Dis, Montpellier, France

[4] Univ Ghent, Dept Otorhinolaryngol Head & Neck Surg, Upper Airways Res Lab, Ghent, Belgium

[5] Karolinska Inst, Dept Otorhinolaryngol, Stockholm, Sweden

[6] Acad Med Ctr, Dept Otorhinolaryngol, Amsterdam, Netherlands

[7] Transylvania Univ, Fac Med, Brasov, Romania

[8] Hosp Clin Univ, Dept Otorhinolaryngol, Barcelona, Spain

[9] UZ Leuven, Dept Otorhinolaryngol Head & Neck Surg, Leuven, Belgium

[10] Karolinska Inst, Dept Clin Sci Intervent & Technol, Div ENT Dis, Stockholm, Sweden

[11] Freeman Rd Hosp, ENT Dept, Newcastle Upon Tyne, Tyne & Wear, England

[12] Osped Di Circolo E Fdn Macchi, ENT Dept, Varese, Italy

[13] Cumberland Infirm, ENT Dept, Carlisle, Cumbria, England

[14] Aristotle Univ Thessaloniki, Papageorgiou Gen Hosp, Acad ENT Dept 2, Thessaloniki, Greece

[15] AZ Damiaan, ENT Dept, Oostende, Belgium

[16] Univ Minho, Life & Hlth Sci Res Inst, Community Hlth, Sch Hlth Sci, Minho, Portugal

[17] Jessa Hosp, ENT Dept, Hasselt, Belgium

[18] Univ Crete, Dept Otorhinolaryngol, Sch Med, Iraklion, Crete, Greece

[19] Guys & St Thomas NHS Fdn Trust, ENT Dept, London, England

[20] Clin Univ St Luc, Dept Otorhinolaryngol, Woluwe St Lambert, Belgium

[21] Tech Univ Dresden, Smell & Taste Clin, ENT Dept, Dresden, Germany

[22] Univ Greifswald, ENT Dept, Greifswald, Germany

[23] Gen Hosp Sint Blasius, Dept Otorhinolaryngol Head & Neck Surg, Dendermonde, Belgium

[24] Hop Univ Geneve, Serv Otorhinolaryngol Chirurg Cerv Faciale, Unite Rhinol Olfactol, Geneva, Switzerland

[25] Ludwig Maximilians Univ Munchen, ENT Dept, Munich, Germany

[26] UCLH, UCL & Honorary Consultant ENT Surg, London, England

[27] Univ Barcelona, IDIBAPS, CIBERES Barcelona, Hosp Clin, Catalonia, Spain

[28] Hacettepe Univ, Fac Med, ENT Dept, Ankara, Turkey

[29] European Federat Allergy & Airways Dis Patients A, Brussels, Belgium

[30] Univ Edinburgh, Usher Inst Populat Hlth Sci & Informat, Allergy & Resp Res Grp, Edinburgh, Midlothian, Scotland

[31] Univ Klin Hals Nasen Ohrenheilkunde Innsbruck, Innsbruck, Austria

[32] Assoc Pharmacists Belgium, Brussels, Belgium

[33] Acad Hosp St Jan, ENT Dept, Brugge, Belgium

[34] Oslo Univ Hosp, Dept Otorhinolaryngol, Rikshosp, Oslo, Norway

[35] Med Univ Graz, Dept Gen ORL Head & Neck Surg, Graz, Austria

[36] Univ Hosp Antwerp, ENT Dept, Antwerp, Belgium

[37] Sint Jozefsklin, ENT Dept, Izegem, Belgium

[38] AZ Groeninge, ENT Dept, Kortrijk, Belgium

[39] Pharmaceut Grp European Union, Brussels, Belgium

[40] Int Primary Care Resp Grp, Aberdeen, Scotland

来源：

RHINOLOGY | 2018年 / 56卷 / 03期

关键词：

chronic airway disease; rhinosinusitis; mobile application; education; self-management; ADULT CHRONIC RHINOSINUSITIS; ALLERGIC RHINITIS; SINUS SURGERY; PRECISION MEDICINE; DISEASES; LIFE;

D O I：

10.4193/RHIN17.253

中图分类号：

R76 [耳鼻咽喉科学];

学科分类号：

100213 ;

摘要：

Mobile health technology is emerging to take a prominent position in the management of chronic diseases. These technologies aim at enhancing patient empowerment via education and self-management. To date, of all the different apps available for patients with sinus disease, none were developed by medical experts dealing with chronic rhinosinusitis (CRS). The European Forum for Research and Education in Allergy and Airway diseases (EUFOREA) has undertaken a multi-stakeholder approach for designing, developing and implementing a tool to support CRS patients in monitoring their symptoms and to provide patients with a digital support platform containing reliable medical information about their disease and treatment options. mySinusitisCoach has been developed by medical experts dealing with CRS in close collaboration with patients, primary care physicians and community pharmacists, meeting the needs of both patients and health care providers. From a research perspective, the generation of real life data will help to validate clinical studies, patient stratification and improve understanding of the socio-economic impact of CRS, thereby paving the way for better treatment strategies.

引用

页码：209 / 215

页数：7

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