Pediatric Palliative Care for Children With Severe Neurological Impairment and Their Families

被引:15
|
作者
Bogetz, Jori F. [1 ,2 ]
Lemmon, Monica E. [3 ]
机构
[1] Univ Washington, Sch Med, Div Pediat Bioeth & Palliat Care, Dept Pediat, Seattle, WA USA
[2] Seattle Childrens Res Inst, Ctr Clin & Translat & Res, Seattle, WA USA
[3] Duke Univ, Sch Med, Dept Pediat & Populat Hlth Sci, Div Neurol, Duke Univ Med Ctr 3936, Durham, NC USA
关键词
Pediatric; neuropalliative care; severe neurologic impairment; disability; complex chronic conditions; MEDICALLY COMPLEX CHILDREN; HEALTH-CARE; PARENTS; PERCEPTIONS; LIFE;
D O I
10.1016/j.jpainsymman.2021.01.008
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
[No abstract available]
引用
收藏
页码:662 / 667
页数:6
相关论文
共 50 条
  • [31] Is it possible to provide palliative care to pediatric patients with neurological diseases?
    Kim, Young-Hoon
    CLINICAL AND EXPERIMENTAL PEDIATRICS, 2024, 67 (08) : 403 - 404
  • [32] Navigating Stress in the Pediatric Intensive Care Unit Among Parents of Children with Severe Neurological
    Bogetz, Jori F.
    Yu, Justin
    Oslin, Ellie
    Barton, Krysta S.
    Yi-Frazier, Joyce P.
    Watson, Robert Scott
    Rosenberg, Abby R.
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2023, 66 (06) : 647 - 655
  • [33] Supportive and palliative care of children with metabolic and neurological diseases
    Hauer, Julie M.
    Wolfe, Joanne
    CURRENT OPINION IN SUPPORTIVE AND PALLIATIVE CARE, 2014, 8 (03) : 296 - 302
  • [34] Giving information to Latino and Chinese families in pediatric palliative care
    Davies, Betty
    Larson, Judith
    Contro, Nancy
    JOURNAL OF PALLIATIVE CARE, 2007, 23 (03) : 227 - 227
  • [35] Giving information to Latino and Chinese families in pediatric palliative care
    Davies, Betty
    Contro, Nancy
    Larson, Judith
    JOURNAL OF PALLIATIVE CARE, 2008, 24 (03) : 214 - 214
  • [36] Creating a "Journey Map" for Children with Severe Neurologic Impairment: A Collaboration Between Private and Academic Pediatric Palliative Care, Nonprofit Organizations, and Parents.
    Thienprayoon, Rachel
    Lord, Blyth T.
    Siedman, Jennifer
    Hauer, Julie
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2023, 65 (03) : E270 - E271
  • [37] Accompaniment and follow-up of children with severe neurological diseases. Care by a specialised paediatric palliative care team
    Porras-Cantarero, Jose A.
    Gutierrez-Rada, Cristina
    Palomares-Delgado, Marta
    Navarro-Marchena, Lucia
    Navarro-Villarrubi, Sergi
    REVISTA DE NEUROLOGIA, 2018, 66 : S47 - S51
  • [38] Families' Perspectives of Quality of Life in Pediatric Palliative Care Patients
    Gaab, Erin Mary
    CHILDREN-BASEL, 2015, 2 (01): : 131 - 145
  • [39] Unheard Voices: Underrepresented Families Perspectives of Pediatric Palliative Care
    Sample, Erika
    Mikulic, Chris
    Christian-Brandt, Allison
    CLINICAL PRACTICE IN PEDIATRIC PSYCHOLOGY, 2021, 9 (03) : 318 - 322
  • [40] Describing Pediatric Palliative Care Concepts to Patients and Families #442
    Spruit, Jessica L.
    Bell, Cynthia J.
    JOURNAL OF PALLIATIVE MEDICINE, 2022, 25 (07) : 1154 - 1155