End-of-Life Dreams and Visions in Pediatric Patients: A Case Study
被引:5
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作者:
Levy, Kathryn
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机构:
Palliat Care Inst, Ctr Hosp & Palliat Care, 225 Como Pk Blvd, Cheektowaga, NY 14227 USAPalliat Care Inst, Ctr Hosp & Palliat Care, 225 Como Pk Blvd, Cheektowaga, NY 14227 USA
Levy, Kathryn
[1
]
Grant, Pei C.
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机构:
Palliat Care Inst, Ctr Hosp & Palliat Care, 225 Como Pk Blvd, Cheektowaga, NY 14227 USAPalliat Care Inst, Ctr Hosp & Palliat Care, 225 Como Pk Blvd, Cheektowaga, NY 14227 USA
Grant, Pei C.
[1
]
Kerr, Christopher W.
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机构:
Palliat Care Inst, Ctr Hosp & Palliat Care, 225 Como Pk Blvd, Cheektowaga, NY 14227 USAPalliat Care Inst, Ctr Hosp & Palliat Care, 225 Como Pk Blvd, Cheektowaga, NY 14227 USA
Kerr, Christopher W.
[1
]
机构:
[1] Palliat Care Inst, Ctr Hosp & Palliat Care, 225 Como Pk Blvd, Cheektowaga, NY 14227 USA
adolescents;
children;
dreams;
end of life;
end-of-life dreams and visions;
end-of-life experiences;
hospice;
palliative care;
pediatric;
DEATHBED VISIONS;
EXPERIENCES;
D O I:
10.1089/jpm.2019.0547
中图分类号:
R19 [保健组织与事业(卫生事业管理)];
学科分类号:
摘要:
Background: End-of-life dreams and visions (ELDVs) are a recognized phenomenon that can occur as part of the normal dying process. Data suggest that ELDVs can provide comfort, foster discussion of waking life concerns, and lessen the fear of death. Current literature on ELDVs focuses on the prevalence, content, and effects of ELDVs exclusively in adult populations. Methods: We present the case of a 15-year-old girl with terminal glioblastoma who was enrolled in a pediatric palliative care program and later in hospice care. During her end-of-life trajectory, the patient experienced two distinct ELDV experiences, from which she recalled vivid details regarding the setting, characters, and content. These ELDV experiences afforded comfort and meaning to the patient and her family through her end-of-life trajectory as well as provided relief for her grieving family. Conclusion: In the case presented, ELDVs appear to show similar characteristics and impact in the adolescent population as described in the previous literature examining adult ELDVs. In addition, this case demonstrates the potential benefits of ELDV awareness for the bereaved. Clinicians working with pediatric and adolescent end-of-life populations should take note of the potential for ELDVs and the impact they can have on both patients and families.
机构:
Toseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, JapanToseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, Japan
Ara, Momoko
Isobe, Tomomi
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Toseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, JapanToseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, Japan
Isobe, Tomomi
Kawanabe, Satomi
论文数: 0引用数: 0
h-index: 0
机构:
Toseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, JapanToseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, Japan
Kawanabe, Satomi
Yamada, Yuriko
论文数: 0引用数: 0
h-index: 0
机构:
Toseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, JapanToseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, Japan
Yamada, Yuriko
Miyake, Noeru
论文数: 0引用数: 0
h-index: 0
机构:
Toseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, JapanToseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, Japan
Miyake, Noeru
Dobata, Nana
论文数: 0引用数: 0
h-index: 0
机构:
Toseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, JapanToseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, Japan
Dobata, Nana
Suzuki, Hiromasa
论文数: 0引用数: 0
h-index: 0
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Toseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, JapanToseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, Japan
Suzuki, Hiromasa
Kawamura, Kentaro
论文数: 0引用数: 0
h-index: 0
机构:
Toseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, JapanToseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, Japan
Kawamura, Kentaro
Dobata, Tomoyuki
论文数: 0引用数: 0
h-index: 0
机构:
Toseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, JapanToseikai Healthcare Corp, Life Long Care Clin Disabled People Sapporo, Sapporo, Hokkaido, Japan
机构:
Univ Missouri, Sch Med, Dept Pediat, Childrens Mercy Kansas City, Kansas City, MO 64110 USAUniv Missouri, Sch Med, Dept Pediat, Childrens Mercy Kansas City, Kansas City, MO 64110 USA
Linebarger, Jennifer S.
Johnson, Victoria
论文数: 0引用数: 0
h-index: 0
机构:
Johns Hopkins Univ, Sch Med, Berman Inst Bioeth, Dept Pediat, Baltimore, MD USAUniv Missouri, Sch Med, Dept Pediat, Childrens Mercy Kansas City, Kansas City, MO 64110 USA
Johnson, Victoria
Boss, Renee D.
论文数: 0引用数: 0
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机构:
Univ Penn, Perelman Sch Med, Childrens Hosp Philadelphia, Philadelphia, PA 19104 USAUniv Missouri, Sch Med, Dept Pediat, Childrens Mercy Kansas City, Kansas City, MO 64110 USA
机构:
Santa Marcelina Hosp, Dept Pediat Oncol, Sao Paulo, Brazil
TUCCA Associacao Criancas & Adolescentes Canc, Sao Paulo, BrazilSanta Marcelina Hosp, Dept Pediat Oncol, Sao Paulo, Brazil
机构:
Univ Alabama Birmingham, Sch Med, Div Prevent Med, Birmingham, AL 35294 USAUniv Alabama Birmingham, Sch Med, Div Prevent Med, Birmingham, AL 35294 USA
Bateman, Lori Brand
Tofil, Nancy M.
论文数: 0引用数: 0
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机构:
Univ Alabama Birmingham, Sch Med, Dept Pediat, Birmingham, AL 35294 USAUniv Alabama Birmingham, Sch Med, Div Prevent Med, Birmingham, AL 35294 USA
Tofil, Nancy M.
White, Marjorie Lee
论文数: 0引用数: 0
h-index: 0
机构:
Univ Alabama Birmingham, Sch Med, Dept Pediat, Birmingham, AL 35294 USAUniv Alabama Birmingham, Sch Med, Div Prevent Med, Birmingham, AL 35294 USA
White, Marjorie Lee
Dure, Leon S.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Alabama Birmingham, Sch Med, Dept Pediat, Birmingham, AL 35294 USAUniv Alabama Birmingham, Sch Med, Div Prevent Med, Birmingham, AL 35294 USA
Dure, Leon S.
Clair, Jeffrey Michael
论文数: 0引用数: 0
h-index: 0
机构:
Univ Alabama Birmingham, Dept Sociol, Birmingham, AL 35294 USAUniv Alabama Birmingham, Sch Med, Div Prevent Med, Birmingham, AL 35294 USA
Clair, Jeffrey Michael
Needham, Belinda L.
论文数: 0引用数: 0
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机构:
Univ Michigan, Sch Publ Hlth, Dept Epidemiol, Ann Arbor, MI 48109 USAUniv Alabama Birmingham, Sch Med, Div Prevent Med, Birmingham, AL 35294 USA
Needham, Belinda L.
AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE,
2016,
33
(10):
: 935
-
941
机构:
Sydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, Australia
Sydney Childrens Hosp, Child Life & Mus Therapy Dept, Randwick, NSW, AustraliaSydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, Australia
Goymour, Kirsty-Leah
Heaton, Maria
论文数: 0引用数: 0
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机构:
Sydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, AustraliaSydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, Australia
Heaton, Maria
Coombs, Sandra
论文数: 0引用数: 0
h-index: 0
机构:
Sydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, AustraliaSydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, Australia
Coombs, Sandra
Kelk, Norm
论文数: 0引用数: 0
h-index: 0
机构:
Sydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, AustraliaSydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, Australia
Kelk, Norm
Estreich, Kylie
论文数: 0引用数: 0
h-index: 0
机构:
Sydney Childrens Hosp, Child Life & Mus Therapy Dept, Randwick, NSW, AustraliaSydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, Australia
Estreich, Kylie
Sarraf, Sara
论文数: 0引用数: 0
h-index: 0
机构:
Sydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, AustraliaSydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, Australia
Sarraf, Sara
Trethewie, Susan
论文数: 0引用数: 0
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机构:
Sydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, AustraliaSydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, Australia
Trethewie, Susan
Jaaniste, Tiina
论文数: 0引用数: 0
h-index: 0
机构:
Sydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, Australia
Univ New South Wales, Sch Womens & Childrens Hlth, Kensington, NSW, AustraliaSydney Childrens Hosp, Dept Palliat Care, Randwick, NSW 2031, Australia