The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models

被引:7
|
作者
Ferreira, Ricardo J. O. [1 ,2 ]
Gossec, Laure [3 ,4 ]
Duarte, Catia [1 ,5 ]
Nicklin, Joanne K. [6 ]
Hewlett, Sarah [6 ,7 ]
da Silva, J. A. P. [1 ,5 ]
Ndosi, Mwidimi [6 ,7 ]
机构
[1] Ctr Hosp & Univ Coimbra, Dept Rheumatol, Coimbra, Portugal
[2] Escola Super Enfermagem Coimbra, Hlth Sci Res Unit: Nursing UICiSA E, Coimbra, Portugal
[3] UPMC Univ Paris 06, Sorbonne Univ, GRC UPMC, Inst Pierre Louis Epidemiol & Sante Publ, Paris, France
[4] Hop La Pitie Salpetriere, AP HP, Dept Rheumatol, Paris, France
[5] Univ Coimbra, Coimbra Inst Clin & Biomed Res iCBR, Fac Med, Coimbra, Portugal
[6] Univ West England, Dept Nursing & Midwifery, Bristol, Avon, England
[7] Univ Hosp Bristol, Acad Rheumatol Unit, Bristol, Avon, England
关键词
Rheumatoid arthritis; Health-related quality of life; Patient-reported outcome measures; Validation studies; Cross-Cultural comparison; Disease impact; PATIENT-REPORTED OUTCOMES; RHEUMATOLOGY/EUROPEAN LEAGUE; AMERICAN-COLLEGE; SCALE; CLASSIFICATION; FATIGUE; PERSPECTIVE; REGISTER; VALIDITY; CRITERIA;
D O I
10.1007/s11136-018-1959-4
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
PurposeThe Rheumatoid Arthritis Impact of Disease (RAID) score assesses seven impact domains of interest for people with RA. This study aimed to test patients' understanding of the Portuguese RAID and evaluate its cross-cultural validity for use in Portugal.MethodsThis was a mixed methods study comprising two phases: (i) cognitive debriefing to determine patient's comprehension of the Portuguese RAID and (ii) cross-cultural validation using Rasch analysis. Construct validity was determined by fit to the model, invariance culture (compared with France and UK datasets) and evidence of convergent and divergent validity.ResultsPatients' input (n=38) led to minor changes in the phrasing of two items to ensure conceptual equivalence between the Portuguese and the original RAID. In Rasch analysis (n=288), two items Sleep' and Physical well-being' in the Portuguese dataset did not adequately fit the model specifications, suggesting multidimensionality (sleepnot necessarily associated with RA) and redundancy (physical well-being overlapping with functional disability). Despite the imperfections, the scale had high internal consistency, evidence of convergent and divergent validity and invariance to culture (compared to France n=195 and UK n=205 datasets). The scale was well targeted for patients with different levels of disease impact.ConclusionsThe RAID has been successfully adapted into Portuguese and it can be used with confidence in clinical practice. Further research will be required to ensure it captures the full range of sleep problems in RA. Meanwhile, data across the three countries (Portugal, France and the UK) are comparable except for the two items (sleep and physical well-being).
引用
收藏
页码:2909 / 2921
页数:13
相关论文
共 50 条
  • [31] RESPONSIVENESS AND DISCRIMINATIVE ABILITY OF THE RHEUMATOID ARTHRITIS IMPACT OF DISEASE (RAID) SCORE TO CLINICAL DISEASE FLARE: DATA FROM THE DMARD TAPERING ARCTIC REWIND TRIALS
    Holten, K.
    Sundlisaeter, N. P.
    Sexton, J.
    Nordberg, L.
    Uhlig, T.
    Kvien, T. K.
    Haavardsholm, E. A.
    Lillegraven, S.
    Aga, A. B.
    ANNALS OF THE RHEUMATIC DISEASES, 2023, 82 : 183 - 184
  • [32] PATIENT-REPORTED OUTCOME MEASURES FOR RHEUMATOID ARTHRITIS DISEASE ACTIVITY: USING RASCH MEASUREMENT THEORY TO ACHIEVE MORE MEANINGFUL MEASUREMENT
    Pickles, Tim
    Horton, Mike
    Christensen, Karl B.
    Phillips, Rhiannon
    Gillespie, David
    Mo, Neil
    Choy, Ernest
    RHEUMATOLOGY, 2023, 62
  • [33] Practical Cut-off Points for Using the Rheumatoid Arthritis Impact of Disease (RAID) Questionnaire in Remote Consult Triage
    Van den Dikkenberg, Marijke
    Kuijper, Martijn
    Kok, Marc
    Barreto, Deirisa Lopes
    Weel, Angelique
    ARTHRITIS & RHEUMATOLOGY, 2022, 74 : 512 - 513
  • [34] CAN RHEUMATOID ARTHRITIS IMPACT OF DISEASE (RAID) SCORE BE USED AS A PATIENT REPORTED OUTCOME BASED TARGET IN A TREAT-TO-TARGET APPROACH: A PROSPECTIVE STUDY FROM INDIA
    Kumar, P. S.
    Kumar, A.
    Garg, M. K.
    Gopalakrishnan, M.
    ANNALS OF THE RHEUMATIC DISEASES, 2023, 82 : 1289 - 1289
  • [35] Patient Reported Outcome Measures for Rheumatoid Arthritis Disease Activity: Using Rasch Measurement Theory and Cognitive Interviewing to Achieve More Meaningful Measurement
    Pickles, Tim
    Horton, Mike
    Christensen, Karl Bang
    Phillips, Rhiannon
    Gillespie, David
    Mo, Neil
    Choy, Ernest
    ARTHRITIS & RHEUMATOLOGY, 2023, 75 : 2532 - 2533
  • [36] RHEUMATOID ARTHRITIS IMPACT OF DISEASE (RAID) SCORE IS NOT ASSOCIATED TO SYNOVITIS IN JOINTS AND TENDONS ASSESSED BY ULTRASONOGRAPHY; RESULTS FROM CROSS-SECTIONAL AND LONGITUDINAL ANALYSES
    Hammer, H. B.
    Kvien, T. K.
    ANNALS OF THE RHEUMATIC DISEASES, 2013, 71 : 601 - 602
  • [37] Evaluation of the Rheumatoid Arthritis Observation of Biologic Therapy risk score in Japanese patients with rheumatoid arthritis starting first biologic disease-modifying antirheumatic drugs: A validation study using the Institute of Rheumatology, Rheumatoid Arthritis cohort data
    Higuchi, Tomoaki
    Tanaka, Eiichi
    Inoue, Eisuke
    Abe, Mai
    Saka, Kumiko
    Sugano, Eri
    Sugitani, Naohiro
    Higuchi, Yoko
    Ochiai, Moeko
    Yamaguchi, Rei
    Ikari, Katsunori
    Yamanaka, Hisashi
    Harigai, Masayoshi
    MODERN RHEUMATOLOGY, 2023, 34 (04) : 693 - 699
  • [38] DOES PSYCHOLOGICAL STATUS DRIVE PATIENT GLOBAL ASSESSMENT FOR RHEUMATOID ARTHRITIS PATIENTS WHO DO NOT HAVE ANY CLINICAL SIGNS OF INFLAMMATION? AN EXPLORATORY ANALYSIS OF NEAR-REMISSION USING THE RHEUMATOID ARTHRITIS IMPACT OF DISEASE (RAID) SCORE.
    Gossec, L.
    Kirwan, J.
    Paternotte, S.
    Balanescu, A.
    Boumpas, D.
    de Wit, M.
    Dijkmans, B. A.
    Englbrecht, M.
    Gogus, F.
    Heiberg, T.
    Mola, E. Martin
    Cerinic, M. Matucci
    Otsa, K.
    Sokka-Isler, T.
    Dougados, M.
    Kvien, T. K.
    ANNALS OF THE RHEUMATIC DISEASES, 2013, 72 : 393 - 393
  • [39] Is the Rheumatoid Arthritis Impact of Disease (RAID) score a meaningful instrument for other inflammatory rheumatic diseases? A cross-sectional analysis of data from the German National Database
    Thiele, Katja
    Albrecht, Katinka
    Zink, Angela
    Aringer, Martin
    Karberg, Kirsten
    Spaethling-Mestekemper, Susanna
    von Hinueber, Ulrich
    Callhoff, Johanna
    RMD OPEN, 2022, 8 (02):
  • [40] PREVALENCE OF NEUROPATHIC PAIN AND ITS IMPACT ON THE DISEASE ACTIVITY IN PATIENTS WITH PSORIATIC ARTHRITIS AND RHEUMATOID ARTHRITIS IN A MULTICENTER STUDY IN ARGENTINA
    Brom, M.
    Scolnik, M.
    Luna, G.
    Sevillano, J.
    Correa, M.
    Matire, V.
    Caicedo Correa, O.
    Garcia, M.
    Rosa, J.
    Citera, G.
    Soriano, E.
    JCR-JOURNAL OF CLINICAL RHEUMATOLOGY, 2020, 26 : 130 - 130