Patient and caregiver involvement in formulation of guideline questions: findings from the EAN guideline on palliative care of people with severe multiple sclerosis

被引：0

作者：

Solari, A. ^{[1
]}

Koepke, S. ^{[2
]}

Giordano, A. ^{[1
]}

Veronese, S. ^{[3
]}

Rahn, A. ^{[4
]}

Kleiter, I. ^{[5
]}

Basedow-Rajwich, B. ^{[5
]}

Fornari, A. ^{[1
]}

Battaglia, M. A. ^{[6
]}

Drulovic, J. ^{[7
]}

Kooij, L. ^{[8
]}

Koops, J. ^{[8
]}

Mens, J. ^{[8
]}

Meza Murillo, E. R. ^{[9
]}

Milanov, I. ^{[10
]}

Milo, R. ^{[11
]}

Patti, F. ^{[12
]}

Pekmezovic, T. ^{[13
]}

Sastre-Garriga, J. ^{[9
]}

Vosburgh, J. ^{[14
]}

Voltz, R. ^{[15
]}

Bay, J. ^{[16
]}

Oliver, D. J. ^{[17
]}

机构：

[1] Fdn IRCCS Neurol Inst C Besta, Unit Neuroepidemiol, Milan, Italy

[2] Univ Lubeck, Inst Social Med & Epidemiol, Lubeck, Germany

[3] FARO Charitable Fdn, Turin, Italy

[4] Univ Klinikum Hamburg Eppendorf, Inst Neuroimmunol & Multiple Sklerose INIMS, Hamburg, Germany

[5] Marianne Strauss Klin, Kempfenhausen Ctr Treatment Multiple Sclerosis, Berg, Germany

[6] Univ Siena, Dept Life Sci, Siena, Italy

[7] Univ Hosp Belgrade, Fac Med, CSS, Clin Neurol, Belgrade, Serbia

[8] Nieuw Unicum, Zandvoort, Netherlands

[9] Hosp Valle De Hebron, MS Ctr Catalonia Cemcat, Barcelona, Spain

[10] Univ Sofia, Neurol Clin, Sofia, Bulgaria

[11] Barzilai Govt Hosp, Dept Neurol, Ashqelon, Israel

[12] Univ Hosp Policlin Vittorio Emanuele, Multiple Sclerosis Ctr, Neurol Clin, Catania, Italy

[13] Univ Belgrade, Inst Epidemiol, Fac Med, Belgrade, Serbia

[14] Israel Multiple Sclerosis Soc, Hazafon North Dist, Israel

[15] Univ Hosp Cologne, Dept Palliat Med, Cologne, Germany

[16] Multiple Sclerosis Int Federat, People MS Advisory Comm, Copenhagen, Denmark

[17] Univ Kent, Tizard Ctr, Canterbury, Kent, England

来源：

MULTIPLE SCLEROSIS JOURNAL | 2018年 / 24卷

关键词：

D O I：

暂无

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

P1272

引用

页码：726 / 727

页数：2

共 35 条

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[22] The development and use of the European academy of neurology guideline on palliative care in advanced progressive multiple sclerosis
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[23] Monitoring and evaluation of patient involvement in clinical practice guideline development: lessons from the Multidisciplinary Guideline for Employment and Severe Mental Illness, the Netherlands
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[25] PATIENT, CAREGIVER, AND PHYSICIAN BARRIERS TO HOME-BASED PALLIATIVE CARE: FINDINGS FROM A TERMINATED STUDY
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[27] Unmet needs of people with severe multiple sclerosis and their carers: qualitative data to construct a home palliative care programme
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[29] People with severe multiple sclerosis participating in a palliative care intervention in Italy: costs of illness and cost-effectiveness data
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[30] Influence of patient age and sex on delivery of guideline-recommended heart failure care in the outpatient cardiology practice setting: Findings from IMPROVE HF
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