Patient and caregiver involvement in formulation of guideline questions: findings from the EAN guideline on palliative care of people with severe multiple sclerosis

被引：0

作者：

Solari, A. ^{[1
]}

Koepke, S. ^{[2
]}

Giordano, A. ^{[1
]}

Veronese, S. ^{[3
]}

Rahn, A. ^{[4
]}

Kleiter, I. ^{[5
]}

Basedow-Rajwich, B. ^{[5
]}

Fornari, A. ^{[1
]}

Battaglia, M. A. ^{[6
]}

Drulovic, J. ^{[7
]}

Kooij, L. ^{[8
]}

Koops, J. ^{[8
]}

Mens, J. ^{[8
]}

Meza Murillo, E. R. ^{[9
]}

Milanov, I. ^{[10
]}

Milo, R. ^{[11
]}

Patti, F. ^{[12
]}

Pekmezovic, T. ^{[13
]}

Sastre-Garriga, J. ^{[9
]}

Vosburgh, J. ^{[14
]}

Voltz, R. ^{[15
]}

Bay, J. ^{[16
]}

Oliver, D. J. ^{[17
]}

机构：

[1] Fdn IRCCS Neurol Inst C Besta, Unit Neuroepidemiol, Milan, Italy

[2] Univ Lubeck, Inst Social Med & Epidemiol, Lubeck, Germany

[3] FARO Charitable Fdn, Turin, Italy

[4] Univ Klinikum Hamburg Eppendorf, Inst Neuroimmunol & Multiple Sklerose INIMS, Hamburg, Germany

[5] Marianne Strauss Klin, Kempfenhausen Ctr Treatment Multiple Sclerosis, Berg, Germany

[6] Univ Siena, Dept Life Sci, Siena, Italy

[7] Univ Hosp Belgrade, Fac Med, CSS, Clin Neurol, Belgrade, Serbia

[8] Nieuw Unicum, Zandvoort, Netherlands

[9] Hosp Valle De Hebron, MS Ctr Catalonia Cemcat, Barcelona, Spain

[10] Univ Sofia, Neurol Clin, Sofia, Bulgaria

[11] Barzilai Govt Hosp, Dept Neurol, Ashqelon, Israel

[12] Univ Hosp Policlin Vittorio Emanuele, Multiple Sclerosis Ctr, Neurol Clin, Catania, Italy

[13] Univ Belgrade, Inst Epidemiol, Fac Med, Belgrade, Serbia

[14] Israel Multiple Sclerosis Soc, Hazafon North Dist, Israel

[15] Univ Hosp Cologne, Dept Palliat Med, Cologne, Germany

[16] Multiple Sclerosis Int Federat, People MS Advisory Comm, Copenhagen, Denmark

[17] Univ Kent, Tizard Ctr, Canterbury, Kent, England

来源：

MULTIPLE SCLEROSIS JOURNAL | 2018年 / 24卷

关键词：

D O I：

暂无

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

P1272

引用

页码：726 / 727

页数：2

共 35 条

[1] Patient and caregiver involvement in formulation of guideline questions: Findings from the EAN Guideline on Palliative Care of People with Severe Multiple Sclerosis
Solari, Alessandra
Koepke, Sascha
Giordano, Andrea
Veronese, Simone
Rahn, Anne Christin
Kleiter, Ingo
Basedow-Rajwich, Birgit
Fornari, Arianna
Battaglia, Mario Alberto
Drulovic, Jelena
Kooij, Liesbeth
Koops, Johan
Mens, John
Meza Murillo, Edwin Roger
Milanov, Ivan
Milo, Ron
Patti, Francesco
Pekmezovic, Tatjana
Sastre-Garriga, Jaume
Silber, Eli
Vosburgh, Janine
Voltz, Raymond
Bay, Jette
Oliver, David J.
Solari, Alessandra
MULTIPLE SCLEROSIS JOURNAL, 2018, 24 (06) : 843 - 844
[2] Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis
Kopke, S.
Giordano, A.
Veronese, S.
Rahn, A. C.
Kleiter, I
Basedow-Rajwich, B.
Fornari, A.
Battaglia, M. A.
Drulovic, J.
Kooij, L.
Koops, J.
Mens, J.
Murillo, E. R. Meza
Milanov, I
Milo, R.
Patti, F.
Pekmezovic, T.
Sastre-Garriga, J.
Vosburgh, J.
Voltz, R.
Bay, J.
Oliver, D. J.
Solari, A.
EUROPEAN JOURNAL OF NEUROLOGY, 2019, 26 (01) : 41 - 50
[3] Consumer involvement in formulation of the questions to be answered: findings from the EAN Guideline on Palliative Care of People with severe Multiple Sclerosis
Koepke, S.
Giordano, A.
Veronese, S.
Rahn, A. C.
Kleiter, I.
Basedow-Rajwich, B.
Fornari, A.
Battaglia, M.
Drulovic, J.
Kooij, L.
Koops, J.
Mens, J.
Meza Murillo, E. R.
Milanov, I.
Milo, R.
Patti, F.
Pekmezovic, T.
Sastre-Garriga, J.
Silber, E.
Vosburgh, J.
Voltz, R.
Bay, J.
Oliver, D.
Solari, A.
EUROPEAN JOURNAL OF NEUROLOGY, 2018, 25 : 546 - 547
[4] Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis (vol 26, pg 41, 2018)
Rahn, A. C.
EUROPEAN JOURNAL OF NEUROLOGY, 2020, 27 (03) : 594 - 594
[5] EAN Guideline on Palliative Care of People with Severe, Progressive Multiple Sclerosis
Solari, Alessandra
Giordano, Andrea
Sastre-Garriga, Jaume
Koepke, Sascha
Rahn, Anne C.
Kleiter, Ingo
Aleksovska, Katina
Battaglia, Mario A.
Bay, Jette
Copetti, Massimiliano
Drulovic, Jelena
Kooij, Liesbeth
Mens, John
Meza Murillo, Edwin R.
Milanov, Ivan
Milo, Ron
Pekmezovic, Tatiana
Vosburgh, Janine
Silber, Eli
Veronese, Simone
Patti, Francesco
Voltz, Raymond
Oliver, David J.
JOURNAL OF PALLIATIVE MEDICINE, 2020, 23 (11) : 1426 - 1443
[6] EAN guideline on palliative care of people with severe, progressive multiple sclerosis
Solari, A.
Giordano, A.
Sastre-Garriga, J.
Kopke, S.
Rahn, A. C.
Kleiter, I
Aleksovska, K.
Battaglia, M. A.
Bay, J.
Copetti, M.
Drulovic, J.
Kooij, L.
Mens, J.
Meza Murillo, E. R.
Milanov, I
Milo, R.
Pekmezovic, T.
Vosburgh, J.
Silber, E.
Veronese, S.
Patti, F.
Voltz, R.
Oliver, D.
EUROPEAN JOURNAL OF NEUROLOGY, 2020, 27 (08) : 1510 - 1529
[7] Patient and carer involvement in the formulation of research questions: findings from the Italian guideline on palliative care in adults with glioma
Veronese, Simone
Bertocchi, Elisabetta
Lissoni, Barbara
Ruda, Roberta
Silvani, Antonio
Simonetti, Giorgia
Pisanello, Anna
Ieraci, Sonia
Salmaggi, Andrea
Merli, Rossella
Verza, Marina
De Panfilis, Ludovica
Solari, Alessandra
Pace, Andrea
NEUROLOGICAL SCIENCES, 2023, 44 (07) : 2491 - 2499
[8] Patient and carer involvement in the formulation of research questions: findings from the Italian guideline on palliative care in adults with glioma
Simone Veronese
Elisabetta Bertocchi
Barbara Lissoni
Roberta Rudà
Antonio Silvani
Giorgia Simonetti
Anna Pisanello
Sonia Ieraci
Andrea Salmaggi
Rossella Merli
Marina Verza
Ludovica De Panfilis
Alessandra Solari
Andrea Pace
Neurological Sciences, 2023, 44 : 2491 - 2499
[9] European academy of neurology guideline on palliative care of people with severe multiple sclerosis
Solari, A.
Giordano, A.
Koepke, S.
Patti, F.
Drulovic, J.
Sastre-Garriga, J.
Kleiter, I.
Rahn, A. C.
Silber, E.
Milo, R.
Vosburgh, J.
Mens, J.
Milanov, I.
Pekmezovic, T.
Meza-Murillo, E. R.
Copetti, M.
Aleksovska, K.
Bay, J.
Battaglia, M. A.
Voltz, R.
Veronese, S.
Oliver, D. J.
MULTIPLE SCLEROSIS JOURNAL, 2019, 25 : 891 - 892
[10] Health professional involvement in the formulation of research questions: findings from the Italian guideline on palliative care in adults with glioma
Alessandra Solari
Simone Veronese
Giulia Dalla Verde
Ludovica De Panfilis
Elisabetta Bertocchi
Barbara Lissoni
Rossella Merli
Andrea Salmaggi
Antonio Silvani
Roberta Rudà
Andrea Pace
Neurological Sciences, 2023, 44 : 1749 - 1754

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