Grieving Experiences of Parents with Children in End-of-Life Care-A Qualitative Review Protocol

被引:1
|
作者
Correia, Maria Eduarda [1 ,2 ]
Melo, Tania [3 ,4 ,5 ]
Nobre, Joana [2 ,6 ,7 ]
机构
[1] Nursing Res Innovat & Dev Ctr Lisbon CIDNUR, P-1990096 Lisbon, Portugal
[2] Polytech Inst Portalegre, Hlth Sch, P-7300555 Portalegre, Portugal
[3] Paediat Hosp Ctr Hosp, P-3000602 Coimbra, Portugal
[4] Univ Coimbra, P-3000602 Coimbra, Portugal
[5] Nursing Sch Coimbra, P-3000232 Coimbra, Portugal
[6] Polytech Inst Portalegre, VALORIZA Res Ctr Endogenous Resource Valorizat, P-7300555 Portalegre, Portugal
[7] Nursing Res Unit South & Isl NURSEIN, P-2914503 Setubal, Portugal
关键词
grief; grieving; bereavement; parents; experience; end-of-life care; palliative care; PALLIATIVE CARE; ADOLESCENTS;
D O I
10.3390/nursrep12030041
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Parents that accompany their children in end-of-life care until death go through a devastating, complex and vulnerable situation, which is experienced in a unique way and with individual needs, given the specificity of the palliative care setting in which it occurs. This qualitative review aims to identify and synthesize the best evidence available on the grieving experiences of parents with children in end-of-life care in a palliative care setting. This qualitative review protocol is according to the review method proposed by the Joanna Briggs Institute. The results will enable us to identify how parents of children in end-of-life care in a palliative care setting experience their grieving process. This review will broaden the horizon of understanding of the specificities of the grieving experience of parents who have accompanied their children in end-of-life care until their death in a palliative care setting and promote research in this context. The results of the review will also allow the construction of an "end-of-life grieving script", with the aim of identifying one's individuality in the grieving process. This protocol is registered at Open Science Framework.
引用
收藏
页码:426 / 430
页数:5
相关论文
共 50 条
  • [1] End-of-life palliative home care for children with cancer: A qualitative study on parents' experiences
    Hansson, Helena
    Bjork, Maria
    Santacroce, Sheila Judge
    Raunkiaer, Mette
    SCANDINAVIAN JOURNAL OF CARING SCIENCES, 2023, 37 (04) : 917 - 926
  • [2] Informal caregivers' experiences of transitioning during end-of-life care-A scoping review
    McCarthy, Brid
    Timmins, Fiona
    Eustace-Cook, Jessica
    Connolly, Michael
    JOURNAL OF ADVANCED NURSING, 2024, 80 (05) : 1719 - 1731
  • [3] Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis
    Barrett, Laura
    Fraser, Lorna
    Noyes, Jane
    Taylor, Jo
    Hackett, Julia
    PALLIATIVE MEDICINE, 2023, 37 (02) : 178 - 202
  • [4] Nurses' Experiences in End-of-Life Care in the PICU: A Qualitative Systematic Review
    Mu, Pei-Fan
    Tseng, Yun-Min
    Wang, Chia-Chi
    Chen, Yi-Ju
    Huang, Shu-He
    Hsu, Teh-Fu
    Florczak, Kristine L.
    NURSING SCIENCE QUARTERLY, 2019, 32 (01) : 12 - 22
  • [5] Relationship Between the Choice of End-Of-Life Location by Parents of Children with Cancer and the End-of-Life Care Desired by the Parents
    Sato, T.
    Fujitsuka, M.
    Shimomichi, C.
    Sato, T.
    PEDIATRIC BLOOD & CANCER, 2021, 68 : S133 - S133
  • [6] Lived experiences of end-of-life care at home in the UK: a scoping review of qualitative research
    Clark, Claire
    Fenning, Stephen
    Haynes, Wendy
    Clay, Sarah
    Maddicks, Jack
    Bowden, Joanna
    BRITISH JOURNAL OF GENERAL PRACTICE, 2024, 74 (749): : e839 - e844
  • [7] Location of end-of-life care of children with cancer: A systematic review of parent experiences
    Noyes, Michelle
    Herbert, Anthony
    Moloney, Susan
    Irving, Helen
    Bradford, Natalie
    PEDIATRIC BLOOD & CANCER, 2022, 69 (06)
  • [8] End-of-Life Care in the Neonatal Intensive Care Unit: Experiences of Staff and Parents
    Cortezzo, DonnaMaria E.
    Sanders, Marilyn R.
    Brownell, Elizabeth A.
    Moss, Kerry
    AMERICAN JOURNAL OF PERINATOLOGY, 2015, 32 (08) : 713 - 723
  • [9] Family Experiences in End-of-Life Care: A Literature Review
    Yoo, Ji-Soo
    Lee, Juhee
    Chang, Soo Jung
    ASIAN NURSING RESEARCH, 2008, 2 (04) : 223 - 234
  • [10] Parent Experiences of Child Loss and End-of-Life Care in a Pediatric Intensive Care Unit: Protocol for a Qualitative Study
    Najera, Sara Alcon
    Gonzalez-Gil, Maria Teresa
    JMIR RESEARCH PROTOCOLS, 2023, 12