Disease Self-Efficacy and Health-Related Quality of Life in Adolescents With Sickle Cell Disease

被引：17

作者：

Goldstein-Leever, Alana ^{[1
,2
]}

Peugh, James L. ^{[3
,5
]}

Quinn, Charles T. ^{[4
,5
]}

Crosby, Lori E. ^{[3
,5
]}

机构：

[1] Nationwide Childrens Hosp, Div Pediat Psychol & Neuropsychol, Columbus, OH USA

[2] Ohio State Univ, Dept Pediat, Columbus, OH 43210 USA

[3] Cincinnati Childrens Hosp Med Ctr, Div Behav Med, Cincinnati, OH 45229 USA

[4] Cincinnati Childrens Hosp Med Ctr, Div Hematol, Cincinnati, OH 45229 USA

[5] Univ Cincinnati, Coll Med, Dept Pediat, Cincinnati, OH USA

来源：

JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY | 2020年 / 42卷 / 02期

基金：

美国国家卫生研究院;

关键词：

health-related quality of life; disease self-efficacy; adolescents and young adults; sickle cell disease; TRANSITION; RELIABILITY; MANAGEMENT; CARE; INSTRUMENT; VALIDITY;

D O I：

10.1097/MPH.0000000000001363

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Adolescents and young adults (AYA) with sickle cell disease (SCD) are at risk for poor health-related quality of life (HRQOL). Research suggests that vulnerability factors (eg, disease severity) and self-management resources (eg, disease self-efficacy) jointly impact health outcomes, including HRQOL; however, this has not been studied among AYA with SCD. This study examined the relationship between disease self-efficacy, HRQOL, and disease severity in AYA with SCD. HRQOL was positively correlated with disease self-efficacy and negatively correlated with disease severity. Disease self-efficacy and severity accounted for 35% of variance in HRQOL. Findings support the impact of disease self-efficacy on HRQOL.

引用

页码：141 / 144

页数：4

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