Health-related quality of life in sickle cell disease

被引：23
|
作者：
Panepinto, Julie A. [1 ]
机构：
[1] Childrens Hosp Wisconsin, Dept Pediat Hematol Oncol Bone Marrow Transplant, MFRC, Med Coll Wisconsin,Childrens Res Inst, Milwaukee, WI 53226 USA
来源：
PEDIATRIC BLOOD & CANCER | 2008年 / 51卷 / 01期
关键词：
health-related quality of life; patient-reported outcomes; sickle cell disease;
D O I：
10.1002/pbc.21557
中图分类号：
R73 [肿瘤学];
学科分类号：
100214 ;
摘要：
Advances in drug therapy, hematopoietic stem cell transplantation, and technology have improved the morbidity and survival for those with sickle cell disease. The effect of this modern therapy on the health-related quality of life (HRQL) of those with sickle cell disease is not known. HRQL provides an assessment of how an illness, its complications, and its treatment are experienced by a patient. This review will examine prior work in HRQL in sickle cell disease and the rationale for utilizing HRQL as an outcome to measure impact of treatment. In addition, issues to consider when reporting HRQL will be presented.
引用
收藏
页码：5 / 9
页数：5
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