Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management

被引:20
|
作者
Foster, C. [1 ,2 ]
Calman, L. [1 ,2 ]
Grimmett, C. [1 ,2 ]
Breckons, M. [1 ,2 ]
Cotterell, P. [1 ,2 ]
Yardley, L. [3 ]
Joseph, J. [3 ]
Hughes, S. [3 ]
Jones, R. [3 ]
Leonidou, C. [3 ]
Armes, J. [4 ]
Batehup, L. [1 ,2 ]
Corner, J. [1 ,2 ]
Fenlon, D. [1 ,2 ]
Lennan, E. [1 ,2 ]
Morris, C. [1 ,2 ]
Neylon, A. [5 ]
Ream, E. [6 ]
Turner, L. [1 ,2 ]
Richardson, A. [1 ,2 ]
机构
[1] Univ Southampton, Fac Hlth Sci, Southampton, Hants, England
[2] Univ Southampton, Fac Hlth Sci, Southampton SO17 1BJ, Hants, England
[3] Univ Southampton, Sch Psychol, Southampton SO17 1BJ, Hants, England
[4] Kings Coll London, Florence Nightingale Sch Nursing & Midwifery, London SW1 8WA, England
[5] Macmillan Canc Support, London SE1 7UQ, England
[6] Univ Surrey, Sch Hlth Sci, Guildford GU2 7TE, Surrey, England
关键词
BREAST-CANCER; EDUCATION-PROGRAM; SURVIVORS; EFFICACY; HEALTH; INTERVENTION; PROTOCOL; MODEL; TRIAL;
D O I
10.1002/pon.3747
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
ObjectiveThe aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. MethodsA nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention. ResultsKey stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3-5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment. ConclusionsIt is feasible to systematically co-create' an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted. Copyright (c) 2015 John Wiley & Sons, Ltd.
引用
收藏
页码:940 / 949
页数:10
相关论文
共 50 条
  • [21] Development and usability testing of a web-based self-management intervention for oral cancer survivors and their family caregivers
    Badr, H.
    Lipnick, D.
    Diefenbach, M. A.
    Posner, M.
    Kotz, T.
    Miles, B.
    Genden, E.
    EUROPEAN JOURNAL OF CANCER CARE, 2016, 25 (05) : 806 - 821
  • [22] Evaluation of a web-based resource to improve menstrual health literacy and self-management in young women
    Armour, Mike
    Parry, Kelly
    Curry, Christina
    Ferfolja, Tania
    Parker, Melissa A.
    Farooqi, Toobah
    MacMillan, Freya
    Smith, Caroline A.
    Holmes, Kathryn
    JOURNAL OF PSYCHOSOMATIC RESEARCH, 2022, 162
  • [23] Development of a web-based self-management program for teens with IBD and their parents:: The mission is Remission©
    不详
    JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION, 2005, 41 (04): : 542 - 542
  • [24] Stepping Up: integrating a new web-based self-management support intervention into primary care
    Dodson, S.
    Batterham, R.
    Ginnifer, Y.
    Buchbinder, R.
    McCabe, M.
    Bentley, S.
    Cavill, S.
    Osborne, R. H.
    PSYCHOLOGY & HEALTH, 2012, 27 : 198 - 198
  • [25] Effects of a web-based expert support self-management program (WEST) for women with breast cancer: A randomized controlled trial
    Kim, Hye-Jin
    Kim, Hee-Seung
    JOURNAL OF TELEMEDICINE AND TELECARE, 2020, 26 (7-8) : 433 - 442
  • [26] WEB-BASED MEDIA AS A SELF-MANAGEMENT TOOL FOR PEOPLE WITH EPILEPSY
    Alison, McKinlay
    Leone, Ridsdale
    JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 2018, 89 (10):
  • [27] A Web-Based Self-management Sodium Intervention in Individuals With CKD
    Anderson, Cheryl A. M.
    Wright, C. Michael
    Ambeba, Erica J.
    AMERICAN JOURNAL OF KIDNEY DISEASES, 2020, 75 (06) : 824 - 826
  • [28] Web-based Kidney Education: Supporting Patient Self-Management
    Schatell, Dori
    SEMINARS IN DIALYSIS, 2013, 26 (02) : 154 - 158
  • [29] Hope for Parents of Children with Cancer - Development and Evaluation of a Group-Based and Web-Based Self-Management Intervention for Parents of Children with Cancer
    Polanco, A.
    Turner, A.
    PEDIATRIC BLOOD & CANCER, 2016, 63 : S232 - S232
  • [30] Nurses' Perception of a Tailored Web-Based Intervention for the Self-Management of Pain After Cardiac Surgery
    Martorella, Geraldine
    Graven, Lucinda
    Schluck, Glenna
    Berube, Melanie
    Gelinas, Celine
    SAGE OPEN NURSING, 2018, 4