Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management

被引:20
|
作者
Foster, C. [1 ,2 ]
Calman, L. [1 ,2 ]
Grimmett, C. [1 ,2 ]
Breckons, M. [1 ,2 ]
Cotterell, P. [1 ,2 ]
Yardley, L. [3 ]
Joseph, J. [3 ]
Hughes, S. [3 ]
Jones, R. [3 ]
Leonidou, C. [3 ]
Armes, J. [4 ]
Batehup, L. [1 ,2 ]
Corner, J. [1 ,2 ]
Fenlon, D. [1 ,2 ]
Lennan, E. [1 ,2 ]
Morris, C. [1 ,2 ]
Neylon, A. [5 ]
Ream, E. [6 ]
Turner, L. [1 ,2 ]
Richardson, A. [1 ,2 ]
机构
[1] Univ Southampton, Fac Hlth Sci, Southampton, Hants, England
[2] Univ Southampton, Fac Hlth Sci, Southampton SO17 1BJ, Hants, England
[3] Univ Southampton, Sch Psychol, Southampton SO17 1BJ, Hants, England
[4] Kings Coll London, Florence Nightingale Sch Nursing & Midwifery, London SW1 8WA, England
[5] Macmillan Canc Support, London SE1 7UQ, England
[6] Univ Surrey, Sch Hlth Sci, Guildford GU2 7TE, Surrey, England
关键词
BREAST-CANCER; EDUCATION-PROGRAM; SURVIVORS; EFFICACY; HEALTH; INTERVENTION; PROTOCOL; MODEL; TRIAL;
D O I
10.1002/pon.3747
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
ObjectiveThe aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. MethodsA nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention. ResultsKey stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3-5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment. ConclusionsIt is feasible to systematically co-create' an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted. Copyright (c) 2015 John Wiley & Sons, Ltd.
引用
收藏
页码:940 / 949
页数:10
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