Development of community participation indicators to advance the quality of spinal cord injury rehabilitation: SCI-High Project

被引:7
|
作者
Hitzig, Sander L. [1 ,2 ,3 ]
Jeyathevan, Gaya [4 ]
Farahani, Farnoosh [4 ]
Noonan, Vanessa K. [5 ]
Linassi, Gary [6 ]
Routhier, Francois [7 ,8 ]
Jetha, Arif [9 ,10 ]
McCauley, Diana [11 ]
Alavinia, S. Mohammad [4 ]
Omidvar, Maryam [4 ]
Craven, B. Catharine [4 ,12 ,13 ]
机构
[1] Sunnybrook Hlth Sci Ctr, Sunnybrook Res Inst, St Johns Rehab Res Program, Toronto, ON, Canada
[2] Univ Toronto, Temerty Fac Med, Dept Occupat Sci & Occupat Therapy, Toronto, ON, Canada
[3] Univ Toronto, Temerty Fac Med, Rehabil Sci Inst, Dept Med, Toronto, ON, Canada
[4] Univ Hlth Network, KITE Res Inst, Toronto Rehabil Inst, Toronto, ON, Canada
[5] Praxis Spinal Cord Inst, Vancouver, BC, Canada
[6] Univ Saskatchewan, Coll Med, Dept Phys Med & Rehabil, Saskatoon, SK, Canada
[7] Univ Laval, Fac Med, Dept Rehabil, Quebec City, PQ, Canada
[8] Ctr Integre Univ Sante & Serv Sociaux Capitale Na, Ctr Interdisciplinary Res Rehabil & Social Integr, Quebec City, PQ, Canada
[9] Inst Work & Hlth, Toronto, ON, Canada
[10] Univ Toronto, Dalla Lana Sch Publ Hlth, Toronto, ON, Canada
[11] Spinal Cord Injury Ontario, Toronto, ON, Canada
[12] Univ Toronto, Temerty Fac Med, Dept Med, Div Phys Med & Rehabil, Toronto, ON, Canada
[13] Univ Hlth Network, Brain & Spinal Cord Rehabil Program, Toronto Rehabil Inst, Toronto, ON, Canada
来源
关键词
Spinal cord injuries; Community participation; Self-efficacy; Healthcare quality indicator; Community integration; Health service delivery; Rehabilitation; TIME PHYSICAL-ACTIVITY; SELF-EFFICACY; INTERNATIONAL-CLASSIFICATION; LIFE SATISFACTION; PEOPLE; DISABILITY; QUESTIONNAIRE; REINTEGRATION; VALIDATION; POSTDISCHARGE;
D O I
10.1080/10790268.2021.1955204
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Context Community participation following spinal cord injury/disease (SCI/D) can be challenging due to associated primary impairments and secondary health conditions as well as difficulties navigating both the built and social-emotional environment. To improve the quality of SCI/D rehabilitation care to optimize community participation, the SCI-High Project developed a set of structure, process and outcome indicators for adults with SCI/D in the first 18 months after rehabilitation admission. Methods A pan-Canadian Working Group of diverse stakeholders: (1) defined the community participation construct; (2) conducted a systematic review of available outcomes and their psychometric properties; (3) constructed a Driver diagram summarizing available evidence associated with community participation; and (4) prepared a process map. Facilitated meetings allowed selection and review of a set of structure, process and outcome indicators. Results The structure indicator is the proportion of SCI/D rehabilitation programs with availability of transition living setting/independent living unit. The process indicators are the proportion of SCI/D rehabilitation inpatients who experienced: (a) a therapeutic community outing prior to rehabilitation discharge; and, (b) those who received a pass to go home for the weekend. The intermediary and final outcome measures are the Moorong Self-Efficacy Scale and the Reintegration to Normal Living Index. Conclusion The proposed indicators have the potential to inform whether inpatient rehabilitation for persons with SCI/D can improve self-efficacy and lead to high levels of community participation post-rehabilitation discharge.
引用
收藏
页码:S79 / S93
页数:15
相关论文
共 50 条
  • [21] Development of the spinal cord injury pressure sore onset risk screening (SCI-PreSORS) instrument: a pressure injury risk decision tree for spinal cord injury rehabilitation
    Delparte, Jude J.
    Flett, Heather M.
    Scovil, Carol Y.
    Burns, Anthony S.
    [J]. SPINAL CORD, 2021, 59 (02) : 123 - 131
  • [22] Development of the spinal cord injury pressure sore onset risk screening (SCI-PreSORS) instrument: a pressure injury risk decision tree for spinal cord injury rehabilitation
    Jude J. Delparte
    Heather M. Flett
    Carol Y. Scovil
    Anthony S. Burns
    [J]. Spinal Cord, 2021, 59 : 123 - 131
  • [23] Inpatient rehabilitation wheelchair management quality improvement project: Implications for patients with spinal cord injury
    Taylor, Sally M.
    Slowinske, Laura
    Dennison, Michael
    Manusky, Colton
    Tan, Shawn
    Patel, Kinjal
    Brewington, David
    [J]. JOURNAL OF SPINAL CORD MEDICINE, 2023, 46 (03): : 414 - 423
  • [24] Early Trauma Indicators and Rehabilitation Outcomes in Traumatic Spinal Cord Injury
    Slocum, Chloe
    Shea, Cristina
    Goldstein, Richard
    Zafonte, Ross
    [J]. TOPICS IN SPINAL CORD INJURY REHABILITATION, 2020, 26 (04) : 253 - 260
  • [25] Resilience and Indicators of Adjustment During Rehabilitation From a Spinal Cord Injury
    White, Brian
    Driver, Simon
    Warren, Ann Marie
    [J]. REHABILITATION PSYCHOLOGY, 2010, 55 (01) : 23 - 32
  • [26] PREDICTING COMMUNITY PARTICIPATION AFTER SPINAL CORD INJURY IN THAILAND
    Suttiwong, Jatuporn
    Vongsirinavarat, Mantana
    Chaiyawat, Pakaratee
    Vachalathiti, Roongtiwa
    [J]. JOURNAL OF REHABILITATION MEDICINE, 2015, 47 (04) : 325 - 329
  • [27] Obstacles to community participation among youth with spinal cord injury
    Gorzkowski, Julie
    Kelly, Erin H.
    Klaas, Sara J.
    Vogel, Lawrence C.
    [J]. JOURNAL OF SPINAL CORD MEDICINE, 2011, 34 (06): : 576 - 585
  • [28] Translational Research in Spinal Cord Injury: A Survey of Opinion from the SCI Community
    Kwon, Brian K.
    Hillyer, Jessica
    Tetzlaff, Wolfram
    [J]. JOURNAL OF NEUROTRAUMA, 2010, 27 (01) : 21 - 33
  • [29] The role of spirituality in spinal cord injury (SCI) rehabilitation: exploring health professional perspectives
    Jones K.F.
    Dorsett P.
    Briggs L.
    Simpson G.K.
    [J]. Spinal Cord Series and Cases, 4 (1)
  • [30] Spinal cord injury (SCI) rehabilitation: systematic analysis of communication from the biopsychosocial perspective
    Hartley, Naomi A.
    [J]. DISABILITY AND REHABILITATION, 2015, 37 (26) : 2383 - 2392