View from inside: Patient advocacy in guiding policy development for metabolic disorders

被引：1

作者：

Millis, Nicole ^{[1
]}

机构：

[1] Rare Voices Australia, Mentone, Australia

来源：

JOURNAL OF INHERITED METABOLIC DISEASE | 2022年 / 45卷 / 05期

关键词：

advocacy; advocating for better health outcomes; National Strategic Action Plan for Rare Disease; policy reform; rare disease;

D O I：

10.1002/jimd.12532

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

引用

页码：866 / 871

页数：6

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