Narrative analysis of the hospital experience for older parents of people who cannot speak

被引:20
|
作者
Hemsley, Bronwyn [1 ]
Balandin, Susan [1 ]
Togher, Leanne [1 ]
机构
[1] Univ Sydney, Sch Commun Sci & Disorders, Sydney, NSW 2141, Australia
基金
英国医学研究理事会;
关键词
parents; unpaid carers; complex communication needs; cerebral palsy; aging; hospitalization; developmental disability;
D O I
10.1016/j.jaging.2006.12.001
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
In this study eight parents aged over 60 years participated in in-depth interviews about their experiences in supporting an adult son or daughter with cerebral palsy and complex communication needs (CCN) in hospital. A narrative analysis of the interviews provided insights into the nature of the parent carer's experiences in hospital. The results are presented as an interpretation of the participants' perceptions of their roles in hospital and the impact of these upon their health and wellbeing in older age. The participants' suggestions of how to improve the hospital care experience for all concerned are included and directions for future research are discussed. (C) 2007 Elsevier Inc. All rights reserved.
引用
收藏
页码:239 / 254
页数:16
相关论文
共 50 条
  • [31] Navigating an unfamiliar world: how parents of young people who self-harm experience support and treatment
    Stewart, Anne
    Hughes, Nicholas D.
    Simkin, Sue
    Locock, Louise
    Ferrey, Anne
    Kapur, Navneet
    Gunnell, David
    Hawton, Keith
    CHILD AND ADOLESCENT MENTAL HEALTH, 2018, 23 (02) : 78 - 84
  • [32] Dementia in older people admitted to hospital: An analysis of length of stay and associated costs
    Ahern, Susan
    Cronin, Jodi
    Woods, Noel
    Brady, Noeleen M.
    O'Regan, Niamh A.
    Trawley, Steven
    Timmons, Suzanne
    INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, 2019, 34 (01) : 137 - 143
  • [33] Suicide From the Perspectives of Older Men Who Experience Depression: A Gender Analysis
    Oliffe, John L.
    Han, Christina S. E.
    Ogrodniczuk, John S.
    Phillips, J. Craig
    Roy, Philippe
    AMERICAN JOURNAL OF MENS HEALTH, 2011, 5 (05) : 444 - 454
  • [34] Institutionalized Risks and Shiduers' Post-loss Experience: A Qualitative Analysis Among Older Bereaved Chinese Parents Who Have Lost Their Only Child
    Yang, Lei
    OMEGA-JOURNAL OF DEATH AND DYING, 2024, 89 (01) : 315 - 332
  • [35] EXPERIENCE OF PRESENT AND FUTURE LIFE SITUATIONS OF OLDER PEOPLE - LONGITUDINAL DIMENSIONAL ANALYSIS
    SCHREINE.M
    ARCHIV FUR PSYCHOLOGIE, 1971, 123 (3-4): : 268 - 284
  • [36] University libraries and lifelong learning of older people: analysis of an experience in a digital environment
    Heredia-Sanchez, Fernando
    REVISTA GENERAL DE INFORMACION Y DOCUMENTACION, 2023, 33 (01): : 281 - 298
  • [37] Who is online? A latent class analysis of internet activities and determinant characteristics of older people
    Pantelaki, Evangelia
    Maggi, Elena
    Crotti, Daniele
    COMPUTERS IN HUMAN BEHAVIOR, 2023, 147
  • [38] The effectiveness of group educational interventions for parents who experience a conflicted separation: A meta-analysis
    Bussieres, Eve-Line
    Godbout, Elisabeth
    Lachance, Veronique
    Drapeau, Sylvie
    CANADIAN PSYCHOLOGY-PSYCHOLOGIE CANADIENNE, 2021, 62 (03): : 252 - 266
  • [39] It is something special: How children and their parents experience a camp for young people who care for a parent with a severe physical illness
    Nagl-Cupal, Martin
    Prajo, Natasa
    CHILDREN AND YOUTH SERVICES REVIEW, 2019, 107
  • [40] When people who inject drugs speak: Qualitative thematic analysis of the perception of a mobile app for needle exchange programs
    Calvo, Fran
    Carbonell, Xavier
    Rived, Merce
    Giralt, Cristina
    ADICCIONES, 2021, 33 (03) : 217 - 233