What's in a name? That which we callMultiple Sclerosis Fatigue

被引:6
|
作者
Hubbard, Amy Lynn [1 ]
Golla, Heidrun [2 ]
Lausberg, Hedda [1 ,3 ]
机构
[1] German Sport Univ Cologne, Inst Hlth Promot & Clin Movement Sci, Dept Neurol Psychosomat Med & Psychiat, Sportpark Mungersdorf 6, D-50933 Cologne, Germany
[2] Univ Cologne, Dept Palliat Med, Fac Med, Cologne, Germany
[3] Univ Cologne, Univ Hosp Cologne, Cologne, Germany
基金
欧盟地平线“2020”;
关键词
Multiple sclerosis; fatigue; Uhthoff's phenomenon; daily onset MS symptomology; quality of life; MULTIPLE-SCLEROSIS; MOTOR; TEMPERATURE; VALIDATION; IMPACT; SCALE;
D O I
10.1177/1352458520941481
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Very limited progress has been made to date in the treatment of debilitating Multiple Sclerosis (MS) daily onset symptoms. These daily symptoms include motor, sensory, and cognitive impairments as well as an overwhelming feeling of tiredness, often referred to as "MS fatigue." Although widely cited as a main cause of inability to work and poor quality of life in patients with MS, daily onset MS-related tiredness continues to defy definition, and, consequently, measurement and treatment. Beginning with a historical overview of observations of daily onset MS-related tiredness, this Topical Review demonstrates how the misnomer "MS fatigue" has introduced ongoing misunderstanding for patients, investigators, clinicians, and therapists. Finally, combining current findings in clinical neuroscience with the striking set of long-standing commonalities present throughout the past 200 years of clinical observations, we underscore the immediate necessity for conceptual and applied change, to be initiated by the renaming of this distinct syndrome.
引用
收藏
页码:983 / 988
页数:6
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